I have a 22 year old daughter with Down syndrome, who had a stroke this past week and was diagnosed with mm. I live in the Dallas area, but can really go anywhere in the state of Texas, preferably Houston. I've seen a lot of older posts about surgeons at Memorial in Houston, but looking at their website, those surgeons are not there anymore. We were referred to UT Southwestern in Dallas, but I'm not finding much info. I was told to do everything I can to get her to Stanford in California, but she has Texas Medicaid and I don't think it transfers out of state.

Hi, so sorry to hear about your daughter. At the University of Texas is Dr. Arthur Day who's specialty is Moyamoya. When he was at Brigham and Womens he had done my left side bypass. He was a wonderful and caring Doctor, and I was very sad when he left to go to Texas. Please visit there website and look him up. Good luck and I look forward to hearing where you end up going.

Kathy

Hello Kellerzoo

I saw your post, my name is Charles Coryn and my son is William Coryn, deaf since birth, 41 years old, who was just diagnosed with moyamoya disease a few months ago, following a stroke a few months  prior to that.  He seems to be doing well following the operation on the right side, his TIA headaches in his frontal lobes are gone, and we're planning on returning in Dec to do the left side.

Please consult with Dr. Robert A. Mericle, (whose office is next to the Baptist Hospital) if you think he could be helpful.  He has an incredible reputation.   The address is:

HW Neurological Institute, LLC, Attn: Dr. Robert A. Mericle, 2011 Church Street, Suite 505, Nashville, Tn, 37203.  Phone Becky at 615 320 0007, fax 615 320 0009.

They accepted my son who lives in Florida and has MediCare and Fl Medicaid.  We thought maybe they could negotiate with Fl Medicaid but, believe it or do not, they just said "That's OK, we'll just drop the Medicaid 20 %", which was a blessing.  I flew Willy to my house in Lancing, Tn and then we drove over to Nashville, a 2 hour drive, for the surgery and follow-up.

Best wishes to you and your daughter,

charles coryn, lancing, tn.