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Moyamoya Related Topics >> Moyamoya Related Information and Support >> Questions about tests!?! http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl?num=1086194484 Message started by joni_h on Jun 2nd, 2004 at 12:41pm |
Title: Questions about tests!?! Post by joni_h on Jun 2nd, 2004 at 12:41pm
Ok my mom got paperwork from the neurologist in Seattle today that explained a little on what they're going to do at her appt on the 23rd. They're going to do a transcranial doppler study, a CO2 challenge reactivity test and an auto regulation test is all they told her. I get what the TCD is but are the other two the SPECT scan with the Diamox?! I just want to know what we're in for. I know I've read that the Diamox makes some people ill afterwords and I just want to be able to prepare my mom if it's a possibility. Nothing was said in her paperwork about an angio.....should I push for an angio?! [smiley=huh.gif]
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Title: Re: Questions about tests!?! Post by Nancy_N. on Jun 2nd, 2004 at 12:47pm
I would push for the angio I'm not really sure how they could not do an angio before a surgery.
Nancy |
Title: Re: Questions about tests!?! Post by joni_h on Jun 3rd, 2004 at 1:14am
DJ thank you so much for all of the information. I looked online today for information on the tests myself and it looked like it wasn't the same as the SPECT (since I had read the info on yours) but since I'm new to all of this I figured it couldn't hurt to ask. Do you think it's possible to get an angio done if I push for it?! I've been trying to keep in contact with the "patient advocate" from the UofW (Harborview) but she doesn't seem too pleased with all of my questions. That doesn't matter to me though...it's my mom and I will do whatever it takes to make sure she's taken care of. I guess I just would like to know in your opinion if the angio is something I should push for now....BEFORE her appt. If I push the issue do you think we'll be able to get the angio done at her appt on the 23rd?! Thanks again for all of your help DJ!! I really appreciate it!!
Joni |
Title: Re: Questions about tests!?! Post by DJ on Jun 3rd, 2004 at 3:14am
Yes Joni, I would absolutely push for the angiogram as it is the most important test! Personally, I would even trade the CO2 AND the auto regulation tests for the angiogram... and sooner rather than later! Especially if you're sending her films to Stanford. They'll need an angiogram to see exactly what's going on.
Sorry the "patient advocate" doesn't like all of your questions, but that's what she's there for! Your mother's health is more important than the "patient advocate" being pissed off about having to do her job. If we're talking about Moyamoya disease here... I would say the cerebral angiogram needs to be your #1 priority at this point! They can do the CO2 and auto regulation tests after the angiogram if they think they are that important. Again, just my [smiley=twocents.gif] -DJ P.S. Nancy N., does the "firmness" of this message sound familiar? |
Title: Re: Questions about tests!?! Post by Nancy_N. on Jun 3rd, 2004 at 6:45am
ABSOLUTELY Deej! That is the test to get for sure and Dr. Steinberg is going to want to see for sure.
Nancy |
Title: Re: Questions about tests!?! Post by DJ on Jun 30th, 2004 at 2:28pm
Joni,
Wanted to check and see how everything was going with your mom. She had an appointment last week, right? How did it go? Are you getting any more cooperation from your patient advocate? Interested to hear how it's going.... -DJ |
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