A while ago Hillary mentioned ordering car magnents for moyamoya awareness.  They were similar to the "Support our Troops" and "Breast Cancer" ribbon magnents.

I had another thought - how about wristbands?  I think we've all seen the Lance Armstrong yellow wristbands for cancer.  I've seen them in many colors - for many causes.  I'm wondering how many people would be interested in a MM wristband?  I was thinking black or grey with "Moyamoya Awareness" imprinted on them.  What does everyone think?  I e-mailed for a price quote and will let you know when I have more information.  

-Shari

I think that would be a great idea! My husband works for the American Red Cross and they have red wrist bands that say give blood. I will be interested in how much they cost. Ann

Good idea, Shari . . . I'd love to hear about them!

BTW -  Good luck with your trip to Boston this weekend!  I'll be anxious to hear how everything went when you get home!

[smiley=hug.gif], Jill

Shari...that would be the coolest....I'd love it in black !!!  I was looking at all the people in Vegas (I was there yesterday for a company Christmas party - my office is there) and MANY of them had the yellow ones.  Let me know if you find out about them, price and information.   Just realized you will be heading to Boston...wishing you all the luck while you are there...look forward to hearing about your trip when you return.

Warm hugs,  CarasMOM

It sounds like a realy good idea to me.

Me and my family would definately be interested. By the way, what ever happened to the magnets?

Sounds good to me.  I would be interested.  Would there be any interest in bumper stickers?

My mom had the idea of bumper stickers that say "I know someone with moyamoya.  To learn more go to www.moyamoya.com."

Anyone have opinions?

Michelle

Well, turns out the first place I looked for the wristbands is too expensive.  We would need a minimum purchase of 1000 bands at 89 cents each - which is $890.00.  Plus there is a one time set-up fee of about $40.00.  I'll continue to look for better prices...

-Shari

hey, i would be interested in this as well....as soon as i move i planned on getting quotes on the ribbons again as well....i think they were about 2.00 each, if thats the case then i'll order some and just sell them to you all at the same cost as what i paid for them, i'm interested in both....

hillary

Shari...right after I saw your post I did my own search and found a source that would make them 99 cents each for minimum of 200 !!!!   Too good to be true ?!...but none in black...just various of colors...coolest thing....got an hour and two to wait up for my boys anyway so am going back on and search...print up some sources and see if I can find that 99 cent each for minimum of 200 ...see what they offer...some have printed on or embossed like the lance armstrong one.    xoxoxo  CarasMOM

Shari...

look at :

http://www.reminderband.com

for 20 to 120 bands = 2.50 each
for 140 to 240 bands = 2.00 each
for 260 to 1000 bands = 1.50 each
and no set up fees or mold fees either.

Available in 11 colors, too.   I looked at 22 sources...and so far this one is best.   There are "rubber" versions but the silicone is better which is what Lance Armstrong bands are....and the above is silicone, too.

What would we put on it...."PUFF of HOPE"  (from puff of smoke ???)  or something else unique.

:D,  CarasMOM

I don't care wich color you pick, but don't get the orange one,Here in the Netherlands we already have orange rspect to all wristbands and evereybody will think I am wearing one of those. The orange ones are for the numerous cases of what we call useless violence.A couple of weeks ago a famous director was murdered, maybe you know the name Theo van Gogh? He was famous here for his movie "Submission"

About the wristbands, I have no idea what it would cost me, since I live abroad., and you woudl have to send it to me.


Btw, DJ I love what you have done with the smileys, they look funny with those hats!

Hi

Just my opinion on the wristband colour.  Black armbands in Australia are worn by all sorts of sporting personalities when someone they know has died (it is considered a respectful kind of tribute).

Just thought you should know.  But I think it would be a fantastic idea in any other colour.  Maybe grey as CarasMOM suggested for "puff of smoke" or "puff of hope".

SPS

Been thinking of this one more.... as "MM" is rare and seems like no one knows of it unless they are associated with it....the name "MoyaMoya" should be used somehow....maybe "MoyaMoyaMiracle"  It allows people to "see" the word MoyaMoya...and it is a miracle what they do to help those of us with MM.  Everyone I have talked to always say "it is amazing what they can do to help Cara".   As for color...should be colorful and uplifting.  The more I look at the other bands...those are more common illnesses...and they use a word that is a positive one.   I'm afraid the "puff of hope" sounds too much like little bit of hope...not my intention...because I feel we all can excel with this disorder if we get on the right track.  Most common colors at the moment is pink and yellow...the orange and black will be kept off the list.  I would be happy to look further into this and get this started if anyone interested.   hugs, CarasMOM

I'm happy to do it - as my original intentions for this post.  I'm just waiting until after the new year.

The reason for the wristbands is to make people aware.  My original intention was to imprint "Moyamoya Awareness" on the bands.  Does anyone have any objections?

As for color, I was thinking of silver - since we nixed black and orange.  Silver - as in silver lining - as in the saying, "Every cloud has a silver lining."  Again, any objections??  Just in case, I would need a second color choice.  One I have not seen is baby blue - like the sky.

-Shari

I like baby blue as a second choice.  

I haven't seen blue or silver and either sounds great.  I'm currently sporting a pink one for breast cancer awareness.  I've had lots of people ask me about it and where they could get one of their own.  It's exciting to think about the same response for an MM band!!!  Count me in!

I think silver or blue would be great, and I do think it should have moyamoya on it in some form.

SPS

Count me in as well.  I don't care what color they are, but I will purchase several.  I think this is a GREAT idea and will get the name out and make more people aware what all of us are going through. ;)

Ok - I checked out the webside that CarasMom gave me - great site - very affordable!

Looks like baby blue will be the color.  I now need to get an estimate of how many bands we want to order.  Please let me know how many you would like to order.  Thanks!!

They would be about $2.75 each (it's an additional 25cents each band for more that 14 characters) plus shipping and handeling.

Please let me know size too!  They come in 2 sizes:

Adult: 8 3/8 " (fits most adults)
Youth:  7 3/8" (fits most kids and teenagers + small-framed adults)


-Shari

Hey Shari,
I would like 15 of these braclets. if you can, i would like 10 in the youth size and 5 in the adult size. thanks so much! just let me know about payment...
                                       jessica

Shari:

I would like to have 50 in the adult size.  Please let me know if you need the money ahead of time and where to send it to.  

Michelle

Great Idea Shari!

I would like to order 10 for now in the adult size. And just wondering, how easy would it be to reorder? I know many people at my church and school would be more than willing to support awareness once they see mine. I am so excited about this!!

Jesenia

Thanks Shari!  I would like 30 now.  I would like 20 in the adult size and l0 in the youth size.  Let me know how to send you money and when.  Thanks so much, Laura :)

Thanks for your legwork on this Shari (and Carol)!  Please count me in for 20 adult ones for now.  Let me know when to send $, o.k.?

Can't wait for people to ask me about my new bracelet!  ;;D

[smiley=hug.gif]Jill

Shari-
I'd like 20 in the adult size.  Just let me know final cost and when you need $$.  Thanks for all your work!!
Chelsie

Thanks everyone!  I'm going to wait a little bit longer for more requests - the more we order, the cheaper they are.  So hopefully we can get a fairly sizeable order!

-Shari

Shari...thanks for doing this.

Everyone should double check about the sizes though...I made the 8 3/8" adult size out of paper 1/2" strip...and it comes right off my hand !!!!   The reason I'm more aware of the wrist size is I wear a medical ID for my diabetes and that bracelet is a 7 inch with almost one inch extra space and I wear that bracelet 24 hrs.  Then I made another strip of paper 7 3/8"  (youth size)...and there is plenty of room...I measured my wrist size...it is 6 3/8"  (I'm five feet and eight inches tall)...just thought you guys want to know.

I will look into Livestrong bands and see what their size is as I don't see them saying youth or adult and they seem to be the right size for the overall population...even my brother how bought the Livestrong bands for my boys was wearing one and he is six feet four inches tall and 275 pounds (big guy).

I may order all my 20 bands in youth size.

Thanks,  CarasMOM

Hi everyone !, Ive had both my surgeries done and im doin great! my twin is just getting started with her surgery and stent though. pray for her! anywhoo, we are definitely interested in the bracelets- we want 20 adult and 20 youth to start off with-- thanks ! lisa twin b & laura twin a :D

Ok - I'm going to place the initial order this evening.  Does anyone else want to order the MM bands?  

CarasMom - did you want to go ahead and order your 20 in the youth size?

For everyone else that has ordered, I will PM you when I know better about final cost.  Thanks everyone!

-Shari

Shari

I would like to order 20 adult and 5 childrens.


Janice

:D :D :D :D :D :D :D
HELLO~
Count me in with the wristbands, buttons or whatever. I feel like my 'work' now is to educate people about mm so that it can be recognized and treated ASAP.
Thanks
LA (Linda) :D

Hi Linda - I've actually placed the order already.  I've ordered some extras, though.  I'll let you know how many I have extra when I get them.

For everyone that placed their order with me already, please send me your address (PM me) so that I can send them to you!  I got a confimation e-mail where they gave an estimated ship date opf 1/25/05.

-Shari

Shari...I'll get my check off to you tomorrow.  Thanks for doing this and looking forward to wearing mine and sharing it !!!!

Hugs,  CarasMOM

Hey Shari,

sorry, I missed the order, my computer has been down and we finally have moved into our new house and trying to get unpacked...will you let me know if you order again, or if you have extra's i would also like some.


Hillary

Hi Hillary -

I will definatley let you know!  You could always order them on your own at www.reminderband.com.  You have to order them in lots of 20 - which isn't so bad.  And the more you order the cheaper they are - look at the pricing structure.  We ordered light blue bands, with "MOYAMOYA AWARENESS" on them.

-Shari

Hi Shari,
 Great idea on the bands from everyone.  The website is easy enough for people to go to on their own and order.  It's going to be hard for you or anyone else to collect money then create an order.  By the time it's all done and everything is sent out it will end up costing the same $ in postage.  Maybe everyone can decide on one saying or quote.  Does it matter if the color differs?  What are everyones thoughts.  Looks to me as though the min order is 40 and they have to be same size and color.
                                Ron

Shari,
 Ron again.  Should this be a post on the most used topic area?  Everyone seems to access the 1st page.

                          Ron

They're here!!!  They arrived today and they look great...I'm wearing mine now!  I will be organizing and sorting and mailing them out this weekend.  I hope you like them!!

-Shari :) :) :) :) :)

Correction to my prior post - I'll be sending out those who I received checks from (freckles, Michelle, Janicetedd, jaredsis(jessica), and Chelsie).  I'm still waiting for checks and addresses from carasmom (Carol), Laura, gotchlorine (Jill) and lisa twin b.  Thanks!

-Shari

I received my wristbands today and they look GREAT!  I can't wait to see what everyone's thoughts are on them.  Shari did a great job and I truly appreciate her taking the lead on this.  

Kudos Shari!

Michelle

Shari

I got my braclets today --- great job

janice

shari
 i just got my braclets...
     thank you so much...
 I love them!!!!

                      jessica

Do you have any bands still left please let me know Ok!!!

Thanks Lynne

Me too if you have any left

Shari...my check went out today...sorry for the delay :( but thanks for doing this !!! [smiley=laugh.gif]  Can't wait to see mine.  xoxo  CarasMOM

Ok, I've set aside the wristbands that people have ordered.  After that, I have 25 adult and 15 youth sizes left (they are $2.00 each plus $4.00 for shipping).  I guess the way to handle this is first come first serve.  Just let me know if you want any by posting here or sending me a PM.  If you want a large quantity I'm going to suggest going to www.reminderband.com to order them yourself.  Minimum order there is 20 bands - no setup fee.  Thanks!

-Shari

I like the idea of wristbands and would definitely purchase some for myself and family and friends. I like the idea of silver but wouldn't object to blue either.
Tricia

8)Shari & others
I love the idea of the wristbands, color whatever you choose is fine with me..  I feel the world needs to be made aware of our rare disease... I was just recently diag. in Dec. 2004 & waiting to see the Neuro-surg. here in Alabama..  Keep me informed of the bands & I'll purchase one for sure..
Thanks
Dana Elmore
new to this website

triciab & 4evermine -

They've already been ordered and many people have already received theirs.  We ended up ordering them in light blue - with MOYAMOYA AWARENESS debossed on them.  I have some extras if you want to buy them off of me...they are $2.00 each plus $4.00 shipping.  Tommyb has asked for 5 of them. I have 22 adult and 13 youth sizes left.  Please PM me if you want any.  Thanks!

-Shari

Hey Shari,

Check will go out in tommorrows mail!!! :)

Got our wristbands yesterday, and Tara and I are proudly wearing ours.  We are looking forward to giving a few away, and continuing to get the word out. ;;D  

Thanks again Shari!

Jill

I would like to order 20 adult and 20 youth.

Oops never mind...I went to a site and already ordered some.  Thanks for the idea.

Shari-

Got my wristbamds and have been proudly wearing it along with my family and friends. I work in a restraunt and many customers jave asked me about it some even wanted to check out the MM website cause they were so amazed. Thank you again Shari!

Christy

Shari...all my boys friends want them...their first remark..."What the hell is MOYAMOYA ????"  My boys (I caught one saying it)...its what my little sister has, narrowing of arteries in her brain but she had surgery to help her.   It is still a complicated thing for a teenager to explain...but my heart goes out to them.   And to top it all...they lost another grandfather last week...my father-n-law....so two grandfathers in five weeks...and all they have been through with Cara !!!   hugs,  CarasMOM

Well, the word "Moyamoya" is slowly becoming more familiar!!!  My sister in law is a teacher and her students all ask her why she's wearing the wristband too.  She tells them, but them tells them to look on moyamoya.com.  It's pretty cool!  I just got a PM from DJ too (I sent some to DJ, Dr. Steinberg, and I will send some to Dr. Scott) - Theresa is asking where to order more!!!!  [smiley=sayyes.gif]

-Shari

It is spreading !!!!   I want to order lots more to spread it further which I will !!!!  xoxo  CarasMOM

Hey Guys,
I am trying to figure out who to get a braclet from. Ordering info and all that good stuff! Can someone help please![smiley=winkkiss.gif]
THANKS!!!
Tamara     Applejac

Hi Tamara -

I have a few left - I have to see exactly how many when I get back home from work.  You can get a few from me, but if you want to order a larger quantity you can get them from www.reminderband.com.  There's a minimum order of 40 bands from them.

-Shari

I haven't been on this site for quite a while.  Does anyone have any bracelets left?  Thanks, Patti