My father had moya moya.  He was one of the first known cases in the U.S.  He had a massive cereberal hemmorage when he was about 30, and they didn't know what caused it.  He didn't walk or talk until he was 5 years old and they think that may be why.  Anyway, being a mother now of a 2 year old I am worried what his risks would be is it passed though the family?  Could I be at risk later?  I can't really find that much info when it comes to that....   thanks,    Tonia

Tonia,

First let me say welcome to our MM family.   [smiley=wave.gif]  We are all glad you are here and were able to share your story with us.  

First, I should start off by saying the chances of MM being passed down to your son is about a 7% chance which isn't much.  I usually tell people that it's about as rare as having MM.  Anyway....on that note, we are suspecting that it's possible my brother might have moyamoya.  We certainly hope not, but it is a possibility.  He is working on getting an MRI done now.  

So....my advice is to definitely request an MRI through your doctor or a neurologist.  That would be the first step.  Does it look like he is having any symptoms?  I know it's hard to tell at that age.  It would never hurt to have the MRI done and then maybe keep checking him every couple of years, especially if he starts presenting with symptoms.  

Hope this helps and please do not hesitate to ask more questions.

Hugs,
Michelle

Just wondering if anyone out there knows anything about Dr. Charbel at UIC? Havind surgery next week and would like to hear something about him. [smiley=huh.gif]

Cindy wrote on Aug 1^st, 2005 at 9:34pm:

Just wondering if anyone out there knows anything about Dr. Charbel at UIC? Havind surgery next week and would like to hear something about him. [smiley=huh.gif]