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Moyamoya Related Topics >> Patient Resources >> Medical Air Travel Resources http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl?num=1124824691 Message started by LisaH on Jul 22nd, 2004 at 10:56pm |
Title: Re: Medical Air Travel Post by connie1 on Jul 23rd, 2004 at 12:03am
That is amazing work Lisa.
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Title: Re: Medical Air Travel Resources Post by STrantas on Jul 23rd, 2004 at 8:43am
Lisa -
Awesome, Awesome, Awesome!!! I agree with Connie - this is amazing work! -Shari |
Title: Re: Medical Air Travel Resources Post by Nancy_N. on Jul 23rd, 2004 at 9:13am
Great job Lisa this could truely save a life, I'm sure this will be the difference in someone getting to where there is a true MM surgeon and specialist instead of just settling because they cannot afford to get there. Superb work!!!
This should have a link of its own for easy access so no one misses it. Again excellent job Lisa. Nancy ;;D |
Title: Re: Medical Air Travel Resources Post by Mar on Jul 23rd, 2004 at 11:00am
[smiley=bow.gif]That's my girl!! [smiley=thumb.gif]
Mar [smiley=winkkiss.gif] |
Title: Re: Medical Air Travel Resources Post by Kath41 on Dec 14th, 2004 at 7:02pm
Hello everyone [smiley=hiya.gif] I just found out some wonderful information on my quest to get to Stanford- If you call Gene with National Patient registery (?) he is able to help coordinate for us adults either free or discounted airfare to the surgeon. You need to have a surgery date in place before he can get the wheels turning but I felt this is great news to pass along to other financially strapped families like myself this time of year.
Kathleen |
Title: Re: Medical Air Travel Resources Post by Kath41 on Dec 14th, 2004 at 7:04pm
Short term Memory loss :P It would probably help to have his phone number! 757-318-9175 Good Luck to All [smiley=laugh.gif]
Kathleen |
Title: Re: Medical Air Travel Resources Post by mattsmom on Oct 3rd, 2005 at 2:30pm
When we flew with our son to Boston in '99 for his surgery, we received three plane tickets on TWA through the Make-a-Wish foundation. Our pediatrician had to sign off on it.
When I think of Make-a-Wish, I think of vacations for terminally ill kids. However, if an intervention is available, they will provide transportation to obtain that intervention. Kim |
Title: Resources for family members obtained by nonrelati Post by suzQ on Jan 10th, 2007 at 12:14pm
Hi - this is my first post...I have been reading and reading for days...
you all seem so supportive and helpful so here goes:::: I am on a power search to help our (a community of over 500) friend Killagrrrl (Donna) who "went down" on New Years Even, in SanFRan (she is from NYC) - and...yeah - you know what it was - or I wouldn't be here. She is beautiful and strong and full of do it no matter what energy strength and spirit - not to mention spit, and fight, and all of us pulling for her. She has been "out" since New Years Eve. She has visitors "out there" and cards letters and support from all over.... NOW...we need to find out how WE can help her family get there... I have seen the posts - from 2004....and will continue to read/research...followup BUT has anyone had any first hand experience with fundraising for this purpose OR getting resources for family members AS non-family memebers (ie: we are trying to take some of the stress/strain/responsibility off of them). Choked up all day long.... any help would be soooooooooooo appreciated! |
Title: Re: Medical Air Travel Resources Post by tiomasai on Jan 10th, 2007 at 8:10pm
SuzQ -- I am so sorry to hear about Donna, but I'm so glad you came to this website. I saw her website, and I have two things to add:
1-you are in san francisco...have you gotten a second opinion, or arranged for one? Dr. Steinberg is right nearby in Palo Alto and Donna's website said that surgery was not recommended. Not knowing her specifics, I would suggest getting a second opinion and being so close by, you could get one for free from someone who sees Moya Moya on a regular basis. 2-I know some resources out there (Mercy Flight) MAY give one family member a free ticket. I used Mercy Flight and they allow it for patient and one companion. But you could explain this unique situation. Also, try appealing to airlines directly, sometimes they will provide deep discounts if you provide and press upon enough details of the situation. I hope this helps - best wishes and keep us posted on Donna's status. Hugs, Trina |
Title: Re: Medical Air Travel Resources Post by janicetedd on Jan 10th, 2007 at 9:15pm
SusQ
My heart goes out to you and your family. My sister, Patty, was dx with mm and had a wait-and-see doctors. She had a massive stroke in 02/01. It left her in a coma. She has come along way, but still requires 14 hours a day in home care. Patty was 41, 120 lbs of flying terror. Please read all that you can. If you want to email me. Please do so. We are all here for you. My prayers are with you. Janice |
Title: Re: Medical Air Travel Resources Post by suzQ on Jan 11th, 2007 at 1:57am
thank you thank you
I have passed the info on to the folks who are doing the organization. I am actually in Turkey for the year with the State Department - like I said - our grrrl Donna has people all over the world who love her. I sent her a voice recording last night that said I expect her to be on the stool at the bar to greet me in july when I come back! Keep her in your thoughts!!!! |
Title: Re: Medical Air Travel Resources Post by DJ on Jan 30th, 2012 at 11:57pm
Been a long time since this info was bumped...
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Title: Re: Medical Air Travel Resources Post by yourbuddyaimee on Feb 23rd, 2018 at 10:31am
Bump.
Thanks everyone for posting this resource! |
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