hello, my daughter is currently having the moya moya surgery at boston childrens hospital by Dr. Micheal Scott, my family and i are having a very rough time and are loking for someone to talk to, maybe it would help. thank you.

I'm so sorry that your having a difficult time. We don't live in Boston (we're in NY) but our daughter ahd her surgery with Dr. Scott 4 yrs ago next month.If I can help you by listening or talking I'de be glad to.Just let me know if I can answer any questions or if you'de like to talk I will PM you my phone #. Mydaughtrer was 5 yrs old at the time of ehr surgeries.she had a rough time and was very unstable,but she's doing great now.Please know your family is in my prayers, and I'm sending many (((((warm hugs))))) your way.
Mary Grace

I live in the Boston area. I am new to MM as well. I did have my first surgery at Mass General  05/15/06. I am doing o.k. I will be more than happy to answer any questions that you may have if I can :)

I dont live near Boston - I live near Philadelphia - but Dr. Scott did my surgeries at Children's of Boston too.  If you want to talk, please let me know and I will PM you my phone number.

-Shari

Hi,

I live in L.A. but I will be in NY and probably visit BOSTON
in Oct. (My daughter goes to school there) I would be
more than happy to talk with you. You can email me anytime. Maybe we can meet up?
I had my surgery at Stanford June 2005 and life couldn't be better.
Don't worry most of us on this board have all "been there" please call me or get in touch with me anytime.

LOL,
itsme

itsme,where will you be in NY.We live just ourside of Albany NY.  
Mary Grace