I wanted to add a new board so people could add links to news and media articles they ran across on the internet.

I hope you'll help me add to this board as you find information inthe news!

DJ

Hey DJ. I wanted to thank you for your website. My best friend ED just had an event ( stroke ) last week which landed him in ICU and diagnoses with MM. We are all really scared but thanks to your site we have a little more information. Im sure he will be having the surgery on at least one side sometime soon. I was wondering if anyone had multiple spinal taps and/or a perminant drain placed for spinal fluid. My info is coming from my friend and hes pretty drugged up and tired so Im not sure Im understanding what hes telling me. Thanks again. Ken

i am so happy to have found this site ,, way up here in canada .. my neurologist here in Nova Scotia Canda suggested your site to me...i will have to thank him with cookies..i am enjoying  reading all the stories articles information etc etc here... i sit down with my coffee and read read read
    thank everyone for being here

             Heather ( mom of emily 18 with moya moya )..


     

I too, am so happy to find this message board!  Our son was diagnosed 10 years ago and is doing great with the exception of chronic headaches.  I only wish that I had gotten familiar with this site awhile ago.  It is always so nice to know that there are other people out there who know what it is all about.  Thanks so much for this opportunity to reach out to others!  

http://www.patient.co.uk/showdoc/40001992/

http://www.cumc.columbia.edu/dept/nsg/ct/moyamoya_disease.html

http://www.wrongdiagnosis.com/m/moyamoya_disease/doctors.htm

http://www.hmc.psu.edu/childrens/healthinfo/m/moyamoya.htm

http://stroke.ahajournals.org/cgi/content/abstract/39/12/3193

http://content.karger.com/produktedb/produkte.asp?doi=147451

If nothing else, I hope these articles could be used to track down doctors with experience with mmd!