Our friend and fellow MM’er, LisaH, shared these wonderful articles with me (actually they were presented as an article within an article in her local newspaper) Even though they may not be specifically about MM, the vital message clearly comes through to our MM family. This crucial message is one that DJ has taught me along with many others here in our MM family. I thought this message should be shared with all that visit this website!! This message saves lives!! We must be our own advocates!!

http://dailyherald.com/story/?id=111401

http://dailyherald.com/story/?id=111397

http://dailyherald.com/story/?id=111294

Mar

Oh, those are fabulous articles!  Definitely affirmation that people need to push for answers and that no question is silly or too small.

Thanks for posting them Mar, and please thank Lisa for sharing them!  

[smiley=hug.gif]Jill

Mar,

The articles are wonderful and great reinforcement on not taking one opinion as gospel and and being your own advocate.  It can mean the difference between life and death.

I'm a firm believer in getting different opinions from specialist skilled in the treatment or surgery of a particular disease/condition and especially when it involves the brain. There have been times when I thought I put more effort and research into buying a car or a house than I did when it came to my own health. In my defense, I came from an era of time when one didn't question things and especially a doctor.

Then came Kevin!

Had I taken the advice of the first doctor who saw the collateral vessels on the angiogram and said "he didn't know what it was and that he had never seen anything like it" and then when I asked him what he suggested, he said "he would send Kevin home to live out whatever life he had left", Kevin would not be here today.  I don't know if I was stunned or frustrated or angry.  I felt like a human life was being thrown to the curb.  I was appalled.  The rest is history. I got busy and found this site (thank you DJ) and that led me to Dr. Steinberg and I'm elated to say that Kevin is alive and doing well today thanks to Dr. Steinberg and the entire Stanford MM Team. The moral to the story is "never say never". Kevin is living proof of what an opinion from a specialist can do....save your life!

In retrospect, I couldn't have lived with myself had I not gone on a mission to find someone somewhere who knew what was wrong with Kevin and who could possibly help him.

Thanks to you and Lisa for the informative and moving articles.

Tell Lisa we said Hi and we miss her.

Hugs,

Lore