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http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl Meetings and Gatherings >> Local Meetings and Gatherings >> anyone in CANADA http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl?num=1220027541 Message started by heather on Aug 29^th, 2008 at 12:32pm

Title: anyone in CANADA
Post by heather on Aug 29^th, 2008 at 12:32pm

wonder if anyone in Canada has ever travelled to USA for therapy or treatment consultation ,surgery ETC...

i have been comminicating with a doctor in Boston about my daughter... was hoping to see if anyone in canada was successful in getting our government to pay for help

thanks

HEATHER

Title: Re: anyone in CANADA
Post by gazou on Nov 19^th, 2008 at 1:42pm

Dear Heather,
We are from Canada and my boy who has moyamoya had his surgeries at the Alberta Children's Hospital in Calgary. Dr. Mark Hamilton has previous experience with moyamoya.
I cannot help you with procedures with getting treatment in the States but I thought I should tell you about treatment available here in Canada.
How old is your daughter? My son was 6 when he was 1st diagnosed. He is now amost 9 and is doing well thanks to EDAS procedures on both sides. Please feel free to contact me for any info!
All the best!
Gazou

Title: Re: anyone in CANADA
Post by heather on Nov 21^st, 2008 at 8:45pm

hello and thank you we actually met with a surgeon today in halifax nova scotia that trained under dr.stienburg in california...he is going to contact him about the complexity of daughters illnesses.. and her many EDAS surguries and post op strokes.. continuing TIA's.. amazing he said he would love to send her to stanford ,,we are now waiting on an angio ... my daughter is almost 19 to soon to transition to adult world which is scarey..thank you for replying... plz keep in contact

thanks heather