There is a new show coming on called "The Doctors" that premiers on September 8th.  I think it's going to be a very interesting medical show.  You can go onto their website and actually tell your story.  Check the website out at www.TheDoctorsTV.com.  Also, if you go to this link http://www.thedoctorstv.com/ds/tell/45 you can tell your story under the topic of Rare Disease or Medical Mysteries.  I told my story and I hope that you all take the opportunity to tell yours.  Maybe if enough of us tell our stories, they will feature MM on the show.  

Just now realized that this show comes on in the afternoon.  But it's on CBS and at 4:00 PM I believe.  I haven't seen it yet, but I've started taping them and will watch them this weekend.