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Moyamoya Related Topics >> Moyamoya Related Information and Support >> Moayamoya and panorex/panolipse radiation exposure http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl?num=1231193443 Message started by KTiller on Jan 5th, 2009 at 5:10pm |
Title: Re: Moayamoya and panorex/panolipse radiation exposure Post by Becky on Jan 6th, 2009 at 12:18pm
Intresting theory but I was diagnosed before I had the X-ray thing you are talking about and I was a healthy child. The only X-rays i remember are the anual teeth, once for phenumonia (chest), and once for an almost broken anckel before my diangosis. I also did the gean analysis and I can up negative. Thier is bairly a chance looking over my family history. Most of my family has had Cancer (ovaren and lung), or diabtetes. I was diagnosed with MM when i was 23. It will be intersting to see what others respond.
That is my 2 cents. Becky |
Title: Re: Moayamoya and panorex/panolipse radiation exposure Post by LA on Jan 8th, 2009 at 1:39pm
Kim~ And anyone else who wonders......
Interesting topic. Brings up lots of questions we all probably have about when, where, and how we affected with mm. I honor your research and quest. Here's my 2 cents which really just adds to the data. I have been partially blind since birth -- 1950. was the rod and cone structure anomaly in my eye it due to the lack of vascular system that was later discovered by Steinberg and Dr. Lawton (SF) in 2000? Early on, Steinberg commented that he couldn't make a connection...but that was long ago and maybe more is known now. Actually my lack of vascular system was 'accidentally' discovered in the late 1980's during another scan...but there was no moyamoya knowledge for the most part so it went down as just another odd thing about Linda. until the strokes....1999. I had tons of old time x-rays in the 1950's because my mother sensed that something was wrong with my eye and/or brain. or both. A good eye doctor straightened that out when I was about 5. My mom also refused to let dentists do x rays every year, as I'd already been x rayed so much. Who's to know if I did or didn't have a vascular system in/on my left side back then. I tend to think not. If so, where did it go? When" How? Are there traces that it leaves? My scan showed very little happening on that side. Please keep this quest open. I'l interested and also want to know. Linda (LA) |
Title: Re: Moayamoya and panorex/panolipse radiation exposure Post by Michele on Jan 8th, 2009 at 9:55pm
I have no idea what kind of x-rays they were, but in 1983 I had a spinal injury and 3 surgeries to fix it. Needless to say, LOTS of x-rays!! My cousin had 2 strokes a few months ago. He was told he had a narrowing of the arteries, but not moyamoya. I personally feel like it is just a matter of time before he is doagnosed, so I think we are probably in the genetic "group." I believe there have been some genetic markers identified and connected to moyamoya, but I wouldn't have a clue where to get tested for them! Trying to figure out this mystery can be very mind boggling! :D
God Bless You All! Michele |
Title: Re: Moayamoya and panorex/panolipse radiation exposure Post by Little Luca on Jan 9th, 2009 at 6:10am
Well, to add Luca's two cents worth, at the ripe old age of 1 she certainly had not had any x-ray in her life. Due to how extensive the moyamoya was in her, they are summising that she's had it from a very young age i.e. her first month or two or even pre-birth.
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Title: Re: Moayamoya and panorex/panolipse radiation exposure Post by KTiller on Jan 9th, 2009 at 10:54pm
The panorex xray I had was different from the typical bite-wing xrays that the dentist orders to check out a possible cavity. I was standing (I think, it's been a long while ago) and the panorex apparatus then rotated around my entire head, right around the part of the brain that is affected by Moyamoya disease.
I don't think that Moyamoya is caused by the same thing in all people. Especially as some like little Luca are struck at such a very young age. There certainly are a lot of different names for the disease, such as Moyamoya Syndrome and Moyamoya-like. But, for those of us who made it into our mid-years without symptoms ...? Maybe there is some cause other than genetics or maybe we had a genetic predisposition for Moyamoya, and it had been waiting for some trigger to set it off; something like this type of radiation exposure from this new imaging method, or some other environmental exposure. I'm just curious as to whether anyone else with Moyamoya has had this particular type of xray as the radiation was focused so directly on the circle of willis and the interanal carotid arteries; those very areas that Moyamoya attacks. Kim |
Title: Re: Moayamoya and panorex/panolipse radiation exposure Post by cdducky on Jan 23rd, 2009 at 1:54am
My husband just had an MCA bypass on the 13th, then on the 21st had a nasty seizure. He was doing so well. I have read that mm is common in patients with neurofibramatosis. My husband has had this for as long as he can remember. His mother has nf also but never had any of the problems or complications. No family connection of MM or NF.
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Title: Re: Moayamoya and panorex/panolipse radiation exposure Post by Becky on Jan 23rd, 2009 at 12:42pm
Not in mine. I am the first with MM. most of my family dies from cancer (lung or overian), and a fwe from diabeties.
Becky |
Title: Re: Moayamoya and panorex/panolipse radiation exposure Post by freckles on Jan 24th, 2009 at 4:06pm
:oI remember having that x-ray done, the kind that you stand for and it goes around the head at the dentist's office. I only had it once and it [i]was[i] before I was diagnosed. I just can't help but wonder if a one time deal like that could cause moyamoya espcially when there are so many others with it that didn't have it. It makes you wonder just how many causes there can be for moyamoya. It really is interesting though. Sure wish someone would figure it out already!
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Title: Re: Moayamoya and panorex/panolipse radiation exposure Post by Michele on Feb 6th, 2009 at 9:33pm
This would be an interesting read for you!
It is only for sale on the internet, (that I could find anyway) but you may be close to a med school w/ a library??? Journal Article Title Radiation-Induced Aneurysm and Moyamoya Vessels Presenting with Subarachnoid Haemorrhage Excerpt ...of a ruptured internal carotid artery (ICA) aneurysm, with ICA stenosis and moyamoya vessels, was diagnosed in a young female patient after radiotherapy for optic... Journal Acta Neurochirurgica Issue Volume 142, Number 2 / February, 2000 Authors K. Maruyama, K. Mishima, N. Saito, T. Fujimaki, T. Sasaki and T. Kirino |
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