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NON Moyamoya Related Topics >> Daily Jibber Jabber >> dissapointment in issurance...
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Message started by mg12061 on Feb 19th, 2011 at 10:08am

Title: dissapointment in issurance...
Post by mg12061 on Feb 19th, 2011 at 10:08am
I'm not sure if anyone remmebers but last summer Kathleen started working with an independant OT. We were hoping to use a new brace called a SAEBOFlEX
http://www.saebo.com/products/saeboflex/
It's been proven to be a very promising tool to regian lost function of a hand from strokes. Anyway she measured too small for the brace so the OT made a prototype of it and she's been using it successfully. The OT talked again with the company about her success and they agreed to make it fit her hand. As you can imagine I was soooo excited for her. The thought of regianing any use and in turn regaining some independance has been my dream for 9yr. She works so so hard at it and typical therapy just isn't enough. We got the script and letter of medical neccesity off to the company. We just got the bad news last night that they will not cover any part of the cost!!! What a let down... I was not at all ready for the fact that it would come down to money. The brace is over $1600. What's so ironic here is that my oldest daughter is in her first year of law school. She has always known that she would like to help individuals with health care and insurance issues in some way with her law dagree. Just eysterday she said she thought she may like to be a lobbiest, she saw this as a way to get out there and help in a big way. She was also a psych major and saw how difficult it was for individuals to get the care they needed. Not to mention right here at home watching me struggle to get what Kathleen needs. Anyway, sorry I just had to vent about this.
Mary Grace 



Title: Re: dissapointment in issurance...
Post by lynn on Feb 21st, 2011 at 2:40pm
That looks like an incredible thing for your daughter!  Life is so tough when money interferes in this way.  Will you appeal to your insurance company?

Title: Re: dissapointment in issurance...
Post by mg12061 on Feb 23rd, 2011 at 11:07am
I will try to appeal. What really bothers me is that we're wasting time. Now, it could take months to get this brace when we could have had it already if the insurance would pay for it or even part of it. We will do whatever it takes to get it for her because we want her to be as independant as possible and this is one huge stumbling block for her. If they only knew her and how hard she has worked for so long and what this could mean to her if it indeed works.Thanks...
Mary Grace

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