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Moyamoya Related Topics >> Patient Resources >> social security disability
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Message started by Larry on Aug 21st, 2012 at 4:47pm

Title: social security disability
Post by Larry on Aug 21st, 2012 at 4:47pm
Is it possible to get social security disabilty after 2 STA-MCA surgeries in 2010. I returned to work after each surgery and was working until my plant closed at the end of June. I will lose all my insurance coverage 08/31 due to the liquidation of the Co. I have been looking for a new job since being laid off 06/22. I will be 59 this Nov. One place I applied for work saw my 2 scars and asked me why I don't try and get disability.  I was told since I returned to work after my surgeries I can never get it. Anybobody have any suggestions?

Title: Re: social security disability
Post by Larry on Aug 31st, 2012 at 5:37pm
Last day for company paid insurance. Have visits to Cleveland Clinic scheduled for early Oct. Will probably have to cancel. Trying to find affordable health care somewhere. My wife retired from her job in April due to attacks of SVT. Her employer offers health care for $1800 a month. hard to afford on unemployment benefits that will end in December. I take several prescription drugs, some needed for my MM condition. Just looking for advice.

Title: Re: social security disability
Post by hrsridermom on Sep 1st, 2012 at 10:12am
Larry if you haven't filed for SS disability you should.  It usually takes a couple of tries. If you get turned down file again.  Good luck with it.

Title: Re: social security disability
Post by Chris D on Sep 16th, 2012 at 4:13pm
My husband was not able to return to work after surgery and we are still waiting for social security.  His date of disability onset is 11/2010 and they have turned him down twice and now we are waiting for our hearing.  They turned him down on the basis that he could perform a less strenous job.  It has been a wreck.  I've learned so much. We've had an attorney the entire time but social security is not required to review medical documentation.  They just look at his date of birth and turn him down.  People with ADHD and depression can get it- but a man in his mid-thirties that suffered a stroke and has permanent damage cannot. It's all a game but the sooner you file in this economy, the better.

Title: Re: social security disability
Post by Larry on Oct 17th, 2012 at 1:53pm
Just started a SS Disability claim myself online the other day. I guess I can continue it at a later date. Question, do I need a lawyer to complete the form or should I already be in touch with one ? Has anyone successfuly filed and received SS disability without an attorney's help.

Title: Re: social security disability
Post by DawnR on Nov 8th, 2012 at 10:57am
My friend and I both have Moyamoya. We live in the same small town and our children are in the same 2nd grade class together. I got to Stanford and am doing well, and I wish I could say the same for her. She saw a doctor here in MN that operated on her, ruined her and her chance for a successful STA-MCA, went to see Dr. Steinberg and he tried to help, but the first doctor messed things up so badly he wasn't able to help. In a last ditch effort she went to the Mayo Clinic here in MN for help from Dr. Meyer, but was deemed unable to be helped, by both Meyer and Steinberg. She was told her next stroke will kill her. She has 4 small children, is losing her home due to medical bills and was just denied SS benefits. What more can she do to get these benefits for her family? Is there any where else she can go for financial help? Thank you so much in advance for any help.

Title: Re: social security disability
Post by hrsridermom on Nov 9th, 2012 at 7:43am
I would tell her to get an attorney if she doesn't have one.  I have another daughter (without MM). she is on SS disability for other reasons.  It took her 3 tries before they said yes.  Once her atty. got her approved they paid her benefits retroactive to the first time she applied.  She will probably need something from all of her doctors saying she can't work.

Title: Re: social security disability
Post by Larry on Jan 25th, 2013 at 4:18pm
Got refusal letter. I filed on my own initially but now have a lawyer who specilizes in SSDI. I have  60 days to appeal. The lawyer started the process. All this does is put your case in front of another processor. Lawyer said chances for approval are not that great second time. He said if we get a hearing in front of a judge, which would be next if turned down again, he could win it for me . On my initial claim I got a call from Columbus from my caseworker questioning what Moyamoya was. I sent her all my medical info from Moyamoya along with all my other ailments. She didn't put down half the doctors I've seen in the last few years.Now it play the waiting game. I wonder why Moyamoya isn't listed in SSDI's "bluebook"?

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