Rena
Senior Poster
Offline
Hi, My son Tyler was diagnosed with MM in 2003
Posts: 467
, Colorado, USA
Gender:
|
Annica, My son was 11 when he had his stroke. It was 4 days before they even realized he had a stroke here and 2 months before they diagnosed the MM. I live in a small town in the US, even here some doctors don't know about MM. The first doctors that diagnosed him only wanted to do surgery on the side he didn't have a stroke. They said the damage was done on the stroke side, no reason to do surgery there unless I wanted to. With the info I found on this site, I felt something was wrong with that idea. Therefore, I contacted a speacialist in MM, Dr. Steinberg. I ended up taking my son 1,400 miles to have the surgeries. I had to fight to get the insurance to ok such a trip, and it took 6 months after the stroke before my son had the surgeries. It hasn't been a year since my son's stroke, but I feel alot better knowing the surgeries are done, both sides. He is still working on improving the use of his left arm, which he had lost complete use of. I would say he has about 50% of the use back. I suggest getting all the advice you can. Although it might be too late to repair all the affects of the stroke, I don't believe that, it is never too late to repair the MM and know that your child will not continue having stroke after stroke. I hope this helps your friends make a decision that helps them and their child. It was very hard for me to tell a doctor they didn't know what they were talking about, but I am glad I did.
|