Mar
Ex Member
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Hi Kath,
I’m a supporter here, and just wanted to say WELCOME to our MM family and also comment on a few of your questions. I must start by saying you’ve got the best doctor in the world looking at your films and he’s usually excellent about getting back to you with his opinion in a timely fashion. I’ve been told that he reviews his cases on Mondays. His “right hand man” so to speak, "Theresa," should get back to you and work out time and dates that best suits you, if that’s the direction you choose. I hope your insurance issues were resolved. It’s a shame that an insurance hassle has to be involved and delay getting the best possible care.
To answer your question,” was there ever a situation where surgery wasn’t done?” Well…Yes and no. It would all depend on how advanced your mm is and the degree of blockage of blood flow to the brain. Unfortunately, mm in most cases is progressive and surgery is the only option if you lack the proper blood flow. Your blood thinners are essential in treating MMD, they help prevent blood clots from temporarily or permanently blocking the blood vessels, which can cause a stroke, but NO medication can prevent the narrowing process from progressing, so the only way to get the proper blood and oxygen to the brain, is surgery. I don’t know your case, but whatever your situation, please know you have a lot of people here who’s been through it and will be there for you for support or any questions you may have.
I did notice that there is a member, Chloe09. Tell your daughter to feel free also to ask any questions. We'll do the best we can to help her understand all this. She can be a big support to you as well. Learning all you can and understanding MM is always more comforting, rather than fears of not knowing. Knowledge is power and saves lives, IMO.
We too wait with you for your results. Please keep us updated, and know you're in our thoughts and prayers.
Mar
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