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Chelsie Experienced Poster Offline Posts: 127 Columbus, USA, usa, 418, 135, OH, Ohio Gender:	Re: Wristbands Reply #25 - Jan 7^th, 2005 at 8:30am Shari- I'd like 20 in the adult size. Just let me know final cost and when you need $$. Thanks for all your work!! Chelsie
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STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: Wristbands Reply #26 - Jan 7^th, 2005 at 8:32am Thanks everyone! I'm going to wait a little bit longer for more requests - the more we order, the cheaper they are. So hopefully we can get a fairly sizeable order! -Shari
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CarasMOM

Old-Time Poster

Offline

My 11 year old Cara has
MM.

Posts: 525
Sedalia, Missouri
Gender: female

Re: Wristbands
Reply #27 - Jan 7^th, 2005 at 10:36am

Shari...thanks for doing this.

Everyone should double check about the sizes though...I made the 8 3/8" adult size out of paper 1/2" strip...and it comes right off my hand !!!! The reason I'm more aware of the wrist size is I wear a medical ID for my diabetes and that bracelet is a 7 inch with almost one inch extra space and I wear that bracelet 24 hrs. Then I made another strip of paper 7 3/8" (youth size)...and there is plenty of room...I measured my wrist size...it is 6 3/8" (I'm five feet and eight inches tall)...just thought you guys want to know.

I will look into Livestrong bands and see what their size is as I don't see them saying youth or adult and they seem to be the right size for the overall population...even my brother how bought the Livestrong bands for my boys was wearing one and he is six feet four inches tall and 275 pounds (big guy).

I may order all my 20 bands in youth size.

Thanks, CarasMOM

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Warm Hugs and Prayers, CarasMOM (Carol)

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lisa twin b New Poster Offline if ur gonna go... GO BIG!!! Posts: 34 houston, USA, usa, 287, 287, TX, Texas Gender:	Re: Wristbands Reply #28 - Jan 7^th, 2005 at 2:17pm Hi everyone !, Ive had both my surgeries done and im doin great! my twin is just getting started with her surgery and stent though. pray for her! anywhoo, we are definitely interested in the bracelets- we want 20 adult and 20 youth to start off with-- thanks ! lisa twin b & laura twin a
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STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: Wristbands Reply #29 - Jan 11^th, 2005 at 8:58am Ok - I'm going to place the initial order this evening. Does anyone else want to order the MM bands? CarasMom - did you want to go ahead and order your 20 in the youth size? For everyone else that has ordered, I will PM you when I know better about final cost. Thanks everyone! -Shari
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janicetedd Experienced Poster Offline Sister - Patty w mm Posts: 221 Waterford, MI Gender:	Re: Wristbands Reply #30 - Jan 11^th, 2005 at 9:41am Shari I would like to order 20 adult and 5 childrens. Janice
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LA Senior Poster Offline Moyamoya survivor since 1999! Posts: 334 Kneeland, USA, 15, 113, C Gender:	Re: Wristbands Reply #31 - Jan 15^th, 2005 at 4:58pm HELLO~ Count me in with the wristbands, buttons or whatever. I feel like my 'work' now is to educate people about mm so that it can be recognized and treated ASAP. Thanks LA (Linda)
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STrantas

MM.com Benefactor

Offline

MoyaMoya Survivor Since
2003

Posts: 1154
Philadelphia, USA, usa, 490, 122, PA, Pennsylvania
Gender: female

Re: Wristbands
Reply #32 - Jan 16^th, 2005 at 8:35am

Hi Linda - I've actually placed the order already. I've ordered some extras, though. I'll let you know how many I have extra when I get them.

For everyone that placed their order with me already, please send me your address (PM me) so that I can send them to you! I got a confimation e-mail where they gave an estimated ship date opf 1/25/05.

-Shari

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« Last Edit: Jan 16^th, 2005 at 8:36am by STrantas »

A smile is contagious...start an epidemic!
Dr. Scott did my surgeries - 12/29/03 and 1/5/04

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CarasMOM Old-Time Poster Offline My 11 year old Cara has MM. Posts: 525 Sedalia, Missouri Gender:	Re: Wristbands Reply #33 - Jan 19^th, 2005 at 1:14am Shari...I'll get my check off to you tomorrow. Thanks for doing this and looking forward to wearing mine and sharing it !!!! Hugs, CarasMOM
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hillary Senior Poster Offline My daughter Holly has MM Posts: 340 new braunfels, USA, usa, 279, 285, TX, Texas Gender:	Re: Wristbands Reply #34 - Jan 27^th, 2005 at 9:30am Hey Shari, sorry, I missed the order, my computer has been down and we finally have moved into our new house and trying to get unpacked...will you let me know if you order again, or if you have extra's i would also like some. Hillary
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STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: Wristbands Reply #35 - Jan 28^th, 2005 at 8:58am Hi Hillary - I will definatley let you know! You could always order them on your own at www.reminderband.com. You have to order them in lots of 20 - which isn't so bad. And the more you order the cheaper they are - look at the pricing structure. We ordered light blue bands, with "MOYAMOYA AWARENESS" on them. -Shari
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mark

Junior Poster

Offline

I love YaBB 1G - SP1!

Posts: 86
cato, USA, usa, 468, 87, NY, New_York
Gender: male

Re: Wristbands
Reply #36 - Jan 28^th, 2005 at 3:06pm

Hi Shari,
Great idea on the bands from everyone. The website is easy enough for people to go to on their own and order. It's going to be hard for you or anyone else to collect money then create an order. By the time it's all done and everything is sent out it will end up costing the same $ in postage. Maybe everyone can decide on one saying or quote. Does it matter if the color differs? What are everyones thoughts. Looks to me as though the min order is 40 and they have to be same size and color.
Ron

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mark Junior Poster Offline I love YaBB 1G - SP1! Posts: 86 cato, USA, usa, 468, 87, NY, New_York Gender:	Re: Wristbands Reply #37 - Jan 28^th, 2005 at 3:09pm Shari, Ron again. Should this be a post on the most used topic area? Everyone seems to access the 1st page. Ron
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STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: Wristbands Reply #38 - Feb 2^nd, 2005 at 5:30pm They're here!!! They arrived today and they look great...I'm wearing mine now! I will be organizing and sorting and mailing them out this weekend. I hope you like them!! -Shari
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STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: Wristbands Reply #39 - Feb 3^rd, 2005 at 5:54pm Correction to my prior post - I'll be sending out those who I received checks from (freckles, Michelle, Janicetedd, jaredsis(jessica), and Chelsie). I'm still waiting for checks and addresses from carasmom (Carol), Laura, gotchlorine (Jill) and lisa twin b. Thanks! -Shari
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Seachelles Old-Time Poster Offline God never gives us more than we can handle. Posts: 681 Fredericksburg, USA, usa, 474, 157, VA, Virginia Gender:	Re: Wristbands Reply #40 - Feb 7^th, 2005 at 3:02pm I received my wristbands today and they look GREAT! I can't wait to see what everyone's thoughts are on them. Shari did a great job and I truly appreciate her taking the lead on this. Kudos Shari! Michelle
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janicetedd Experienced Poster Offline Sister - Patty w mm Posts: 221 Waterford, MI Gender:	Re: Wristbands Reply #41 - Feb 7^th, 2005 at 5:10pm Shari I got my braclets today --- great job janice
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jaredsis2 New Poster Offline Posts: 31 brooklyn, USA, usa, 488, 138, NY, New_York Gender:	Re: Wristbands Reply #42 - Feb 8^th, 2005 at 4:12pm shari i just got my braclets... thank you so much... I love them!!!! jessica
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LynnePat New Poster Offline Mother of 18 year old with MM Posts: 16 Boynton beach, USA, usa, 480, 299, FL, Florida Gender:	Re: Wristbands Reply #43 - Feb 10^th, 2005 at 9:22am Do you have any bands still left please let me know Ok!!! Thanks Lynne
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Tommyb New Poster Offline i am Timothys father. He is the one with MoyaMoya Posts: 49 Galena, USA, usa, 342, 118, IL, Illinois Gender:	Re: Wristbands Reply #44 - Feb 10^th, 2005 at 9:27am Me too if you have any left
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CarasMOM Old-Time Poster Offline My 11 year old Cara has MM. Posts: 525 Sedalia, Missouri Gender:	Re: Wristbands Reply #45 - Feb 10^th, 2005 at 1:09pm Shari...my check went out today...sorry for the delay but thanks for doing this !!! Can't wait to see mine. xoxo CarasMOM
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STrantas

MM.com Benefactor

Offline

MoyaMoya Survivor Since
2003

Posts: 1154
Philadelphia, USA, usa, 490, 122, PA, Pennsylvania
Gender: female

Re: Wristbands
Reply #46 - Feb 12^th, 2005 at 11:38am

Ok, I've set aside the wristbands that people have ordered. After that, I have 25 adult and 15 youth sizes left (they are $2.00 each plus $4.00 for shipping). I guess the way to handle this is first come first serve. Just let me know if you want any by posting here or sending me a PM. If you want a large quantity I'm going to suggest going to www.reminderband.com to order them yourself. Minimum order there is 20 bands - no setup fee. Thanks!

-Shari

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A smile is contagious...start an epidemic!
Dr. Scott did my surgeries - 12/29/03 and 1/5/04

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triciab New Poster Offline My daughter, Amanda, has moyamoya. Posts: 28 Hanmer, Canada, canada, 381, 398, ON, Ontario Gender:	Re: Wristbands Reply #47 - Feb 12^th, 2005 at 12:46pm I like the idea of wristbands and would definitely purchase some for myself and family and friends. I like the idea of silver but wouldn't object to blue either. Tricia
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4evermine

New Poster

Offline

Dx.with MM 2005

Posts: 13
Bessemer, USA, usa, 388, 226, AL, Alabama
Gender: female

Re: Wristbands
Reply #48 - Feb 13^th, 2005 at 2:35am

8)Shari & others
I love the idea of the wristbands, color whatever you choose is fine with me.. I feel the world needs to be made aware of our rare disease... I was just recently diag. in Dec. 2004 & waiting to see the Neuro-surg. here in Alabama.. Keep me informed of the bands & I'll purchase one for sure..
Thanks
Dana Elmore
new to this website

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STrantas

MM.com Benefactor

Offline

MoyaMoya Survivor Since
2003

Posts: 1154
Philadelphia, USA, usa, 490, 122, PA, Pennsylvania
Gender: female

Re: Wristbands
Reply #49 - Feb 13^th, 2005 at 11:12am

triciab & 4evermine -

They've already been ordered and many people have already received theirs. We ended up ordering them in light blue - with MOYAMOYA AWARENESS debossed on them. I have some extras if you want to buy them off of me...they are $2.00 each plus $4.00 shipping. Tommyb has asked for 5 of them. I have 22 adult and 13 youth sizes left. Please PM me if you want any. Thanks!

-Shari

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A smile is contagious...start an epidemic!
Dr. Scott did my surgeries - 12/29/03 and 1/5/04

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