jeanineamanda
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I love YaBB 1G - SP1!
Posts: 1
las vegas, USA, NV, Nevada
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Hi,
My name is Jeanine and my daughters name is Amanda. About 4 years ago my daughter was diagnosed with moyamoya. It was by sheer accident that she was diagnosed. I just felt that she needed to go to the neurologist because she was having headaches and since she was born premature and has a heart condition, years of physical therapy and occupational therapy I always use precaution with her. I live in Las Vegas Nevada, We are originally from Brooklyn, NY. the doctors in Las Vegas are not the best, to put it mildly. We went for a checkup and an MRI in November of 2000, I didnt here anything back from the doctor, I went for her follow up appointment in December. Before we knew it we were in the hospital getting a cerebralangiogram. After the procedure the doctor said there was no hope and that she would just have stroke after stroke and that would be that. I just could not let that happen, She never had a stroke before. So I went to her school and spoke to her therapist and principal . they went on the internet and found Dr. Michael Scott, a saint, we were provided with miracle flight for children to get there. I was devastated and plus I just lost my mother to brain cancer 2 years prior to this news. I had no money whatsoever besides that I just knew that my baby had to get help no matter what. so we went to Boston childrens hospital and stayed in hospital hospitality. It was like God himself was guiding us. Amanda came through the surgery so well and after the surgery she was able to read and differentiate letters from numbers something that she could never do before with all the therapy she was receiving. Now she is a healthy 12 year old and thank God and Jesus that she has never had a major stroke. I thank Him everyday that goes by. She is a child that is full of energy and beautiful. Dr. Scott was a saint. Sent straight from above. Amanda is now a 6th grader. Unbelievable what happend next, The doctor that I took amanda to that diagnosed her was the only pediatric neurologist in town and I really did not want to go back to him even amanda was afraid to go back to him. But as luck will have it, a new doctor moved into town Dr. Linda Brown, who used to work with Dr. Scott in Boston. I could not believe that!! So she knew everything about moyamoya and she is still Amanda's doctor. Amanda is doing very well some days are better than others because her immune system is very weak so she gets sick alot but besides that she is doing very well. I now work for the police department now and her older brother is doing well too.
Thank you for letting me share my story. Please write back. I am writing to you at work. But you can email me at home at edmandi@cox.net and you can email me at work at j7242s@lvmpd.com
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