Thanks Jill, I in no way take your comment as being snippy! Any feedback is good feedback.
The bigger picture is this: I do not have insurance and have basically begged 3 doctors to do the surgery, hoping someone would help. These two kind souls contacted me back right away (their representatives). Of course I have to send them records, both medical and financial. I am extremely greatful and all at once it appears I may atually HAVE A CHOICE, which is wonderful. Its basically a charity thing at either institution. I am over the pride and all that, cause living is more important to me than being too proud to accept charity. I just didn't want to sound ungreatful by quizing either of them on their experience. And the truth is that regardles of experience, one of them will be doing the surgery because that is what the good Lord has seen fit to put in my path. I am thankful to have the dilema of not knowing which one to choose.
To be truthful, I was also contacted by the third Dr. and have completely ruled him out as it appears he was not very experienced with the bypass surgery, although he had done a couple surgeries. That decision was also based on feedback from members of this group who said they would NOT recommend that particular Dr. even though someone else on here reported having their surgery done at that institution.
I just think someone on here may have some input that would be helpful. Several people on here have went to these doctors, and as far as the questions you would under normal circumstances ask your surgeon, someone may already have some of those answers. I hope that makes sense. I was able to chat yesterday with one of Dr. Meyer's patients and that was very informational. He doesn't seem to have alot of followup with his patients, from that ONE report. Also, I have heard from others they were advised not to take OTC medications, cough syrup, etc. He apparently does not make that recommendation, etc.
Just trying to get an idea about these two Drs. Would appreciate any feedback from patients of either doctor, beyond the usual "he's great." I really hope this all makes sense!
I asked my current nuero how many MM patients he has tx, and he said 75. He also DOES NOT believe in surgery. I guess I didn't ask him how many of his patients were sill alive. So, I don't believe it's as simple as making a phone call and asking the doctor. When I did talk to people at each office (Drs. Meyer and Nussbaum) I was told by both institution they have done "many" surgeries. Again, I was looking for something a little more concrete that that to base this most important decision. A 100% success rate may not mean much if they have only tx 3 people (just an example). I also am not expecting that they have the experience of those surgeons in Boston or at Stanford.
Patient reports on this board seem to indicate they are both (Drs. Meyer and Nussbaum) kind, caring people and great nuerosurgeons. Those qualities, in and of themselves, do not qualify someone to cut into my brain, or whats left of it. If I am to end up severly disabled or dead, I can let the MM do that on its own!
I hope those of your who have had surgeries done by Drs. other than the experts can understand where I am coming from. If I was going to Stanford, I don't believe I would have these concerns, or at least not to this extent. When someone on here is scheduled for Stanford, they get MANY others to reassure them that they are in the best hands, pictures of the scars, even information about where to eat while they are there, etc. Perhaps I am just looking for some of the same reassurances that everyone else desires!
Thanks to everyone, you guys are all great.
God Bless You ALL!
Michele