Hi, Patti.  My daughter, Daphne (2 1/2 years old) has been on Neurontin for about 5 months, and we have not noticed any side affects.  Daphne used to suffer migrains several times a week, and would scream unconsolably, flush, get watery eyes etc. 

By the time Neurontin was prescribed, the headaches had diminished some in frequency, so it could be cooincidental, but since Daphne has been on Neurontin, she has had only a handful of these episodes.  Her demeanor is very much improved.

Daphne had been on many different seizure medicines before, and we noticed side affects with every one of them, but not with Neurontin.  Several neurologists have told us that Neurontin is a very safe medicine, with very few side affects, in general. 

The only other question I had for you, though, is whether the headaches have gotten worse recently (besides just being attributable to heat).  If they are something new, or if there have been changes, you may want to look into studies of his moyamoya/surgery, to make sure nothing is going on.

Otherwise, if you know things are stable with the MM, and want to treat the headaches, I think Neurontin is a safe place to start.

Jenny

pattil647,
         Mandy has been taking Neurontin for 2 years or better but she takes it for the pain her brain tells her she's feeling in her arm that was affected by her strokes even when its just being touched. She went off of it shortly and we realized how much it was helping her and she went back on it. I wonder if pain from headaches and that pain are the same pain after all pain is pain, it works well for her, however Mandy has never had headaches or if she did after her strokes she wasn't in good enough shape to tell us but since she has recovered and its been over 3 yrs she hasn't had any, but has been on the Neurotin the better part of that time. I think this drug is one of the milder seizure drugs because Mandy had her one and only seizure while taking Neurontin and was given an additional seizure drug for that. I hope it works, and I hope this helps....by the way she has had no side effects ever from this drug. Take Care.
                   Nancy

Sara and Nancy, thank you both very much for responding!  I feel so much better when I hear your success stories!  I appreciate your help.

Hi my son was not able to tolerate Neurontin.  It made him so sleepy that he could not function.  He is currently taking Topamax and it works great.  I'm at work now so I can't check the dosage - I just know that he takes one tablet in the morning and one at night.  Let me know if you want me to check the number of mg in each tablet.  I hope your son feels better soon!

Is neurontin a headache med or a siezure med? The dr,s want to put my molly on topamax. After reading about neurontin i am wondering if it is a better choice? Molly just turned 13 and also has headaches every day an was taking tylenol. we just went to a neuroligist any info on the comparison of the 2 drugs would be helpful.
Thanks,
Amiee molly's mom