John,
Please understand, I don't think anyone wants to be nasty. It’s just that we’re like family here and we’re all very protective of each other like most families are. Together, we’ve gone through the worst this disease has to offer. So we're careful. We have to insist on reputable and accurate facts or people could die. So we question when we have to, to protect our family and their future.
Speaking of questions, I’d like to ask you a few myself, if you don’t mind; I’m a little confused here. I see you posted again and said…
“I dont intend to make any claims or promise any cures.” And again you repeat that at the end of your last post, you say…
“Again---I make no claims.....Just sharing my story” BUT, didn’t you state in your story, and I quote:
“Best of all......It fixes the problem for good!! It is not just treating the symptoms. I can make no claims for anyone else.” So then, are you speaking strictly for yourself?? In sharing your story, are you saying that YOU are now cured, that it fixed your problem for good????? Are you cured or not John????? See, I’m confused, because IF the story you shared with us is true and your MM is fixed for good, then you ARE in fact making HUGE CLAIM, one for the record books! Yet, you keep saying…
"I make no claims." I don’t get it (??) You would think something as big as “fixing your MM for good” has to be documented and easily proven; yet you posted again and still not even one single reference to prove such a big claim of a “cure” for MMD.
You also said,
“I just want people to be aware that there are effective alternatives out there” (Effective being the key word) That is not simply sharing your story, it's another HUGE claim without any facts or references. Unless you have proof that it IS EFFECTIVE, arn't you making another claim??? Why do you refuse to back up your words?? I don't get your purpose??
In your second post, you didn’t even attempt to answer any of Jill’s valid questions, like…
Do you still have moyamoya vessels present?
You instead, danced around ALL of our questions and implied that doctors only do surgery for the money. Surely you have to see why our MM family has lost trust in your words and have so many questions???!!
In all honesty John, IF I saw your post when I was new here, not knowing about MM yet, my family may have delayed taking action with her treatment, thinking there was a possible cure or an effective alternative out there somewhere, and frankly, she could have died because of your unsubstantiated claims, or simply from the delay. Although that was a theoretical situation, the influence of your "claims" on new members is still there.
All that we ask is that you please choose your statements carefully and present references/sources to back up your cliams. That is vital on a medical website.
Mar