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New news board (Read 25530 times)
DJ
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Been there, done that...

Posts: 721
Wichita, KS
Gender: male
New news board
Feb 18th, 2007 at 2:41am
 
I wanted to add a new board so people could add links to news and media articles they ran across on the internet.

I hope you'll help me add to this board as you find information inthe news!

DJ
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Adversity does not build character... it reveals it...  I help my neighbor and my neighbor helps someone else. Life is a wonderful circle!
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kenven99
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Merrimack, USA, NH, New_Hampshire
Re: New news board
Reply #1 - Dec 3rd, 2007 at 4:12pm
 
Hey DJ. I wanted to thank you for your website. My best friend ED just had an event ( stroke ) last week which landed him in ICU and diagnoses with MM. We are all really scared but thanks to your site we have a little more information. Im sure he will be having the surgery on at least one side sometime soon. I was wondering if anyone had multiple spinal taps and/or a perminant drain placed for spinal fluid. My info is coming from my friend and hes pretty drugged up and tired so Im not sure Im understanding what hes telling me. Thanks again. Ken
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heather
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Posts: 16
halifax, Canada, usa, 550, 49, NS, Nova_Scotia
Gender: female
Re: New news board
Reply #2 - Aug 24th, 2008 at 7:10am
 
i am so happy to have found this site ,, way up here in canada .. my neurologist here in Nova Scotia Canda suggested your site to me...i will have to thank him with cookies..i am enjoying  reading all the stories articles information etc etc here... i sit down with my coffee and read read read
     thank everyone for being here

             Heather ( mom of emily 18 with moya moya )..


     
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mjmom
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My son was diagnosed with
MM ten yrs. ago

Posts: 27
Vermont
Gender: female
Re: New news board
Reply #3 - Jan 28th, 2009 at 9:53pm
 
I too, am so happy to find this message board!  Our son was diagnosed 10 years ago and is doing great with the exception of chronic headaches.  I only wish that I had gotten familiar with this site awhile ago.  It is always so nice to know that there are other people out there who know what it is all about.  Thanks so much for this opportunity to reach out to others!
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Michele
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Posts: 169
Yankton, USA, SD, South_Dakota
Gender: female
Re: New news board
Reply #4 - Feb 7th, 2009 at 12:24am
 
http://www.patient.co.uk/showdoc/40001992/

http://www.cumc.columbia.edu/dept/nsg/ct/moyamoya_disease.html

http://www.wrongdiagnosis.com/m/moyamoya_disease/doctors.htm

http://www.hmc.psu.edu/childrens/healthinfo/m/moyamoya.htm

http://stroke.ahajournals.org/cgi/content/abstract/39/12/3193

http://content.karger.com/produktedb/produkte.asp?doi=147451

If nothing else, I hope these articles could be used to track down doctors with experience with mmd!
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« Last Edit: Feb 7th, 2009 at 1:31am by Michele »  
 
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