Welcome, Guest. Please Login or Register
Moyamoya.com
 
NEW search box below... Search Moyamoya.com with Google!
  HomeHelpSearchLoginRegisterEvent CalendarBirthday ListDonate  
 





Page Index Toggle Pages: 1
Send Topic Print
how to deal with surgery (Read 2333 times)
Christa36
New Poster
*
Offline


nothing to small that
god cant handle

Posts: 2
Duck, USA, WV, West_Virginia
Gender: female
how to deal with surgery
Sep 29th, 2007 at 10:18pm
 
My daughter is 4 yrs and has been diagonsed with MoyaMoya, mitrochandrial disease and vonwillebrand disease.  She is scheduled for surgery on her right side on Oct. 25, 2007 at the Cleveland Clinic I am not sure what to expect or what to do need some help.  Talk to me about this.  Not sure of the name of the surgery but they are going to bypass the blood vessels in her brain.  If any one can tell me the name of the surgery because I dont understand what to call it her dr told me but dont sure about it

thanks christa from wv
Back to top
  
 
IP Logged
 
moyamoi
Ex Member


Re: how to deal with surgery
Reply #1 - Sep 30th, 2007 at 9:23pm
 
Hi Christa,
All the information you need will be under the "Medical Info" on the top tab. I would imagine that your daughter would be having an EDAS bypass - I am not too clued up on surgery for children but I think that they do the EDAS on children as their blood vessels are too small for a STA MCA Bypass. You can check all the information by perusing old posts or email Dr. Scott for further info
Moira
Back to top
  
 
IP Logged
 
Skay
Junior Poster
**
Offline


I love YaBB 1G - SP1!

Posts: 87
Evansdale, USA, usa, 323, 119, IA, Iowa
Gender: female
Re: how to deal with surgery
Reply #2 - Sep 30th, 2007 at 10:35pm
 
Hi Christa,
I had revascularization by-pass surgery in 2003. I don't know if to was EDAS or STA MCA Bypass. He said that he would flap good blood vessels to the side that is bad to try to grow new vessels. It must have helped because I have been stroke free for four years.  You and your daughter are in my prayers. I hope you will let us know how things are going.
Sharon
Back to top
  
hotdog  
IP Logged
 
Mar
Ex Member


Re: how to deal with surgery
Reply #3 - Oct 1st, 2007 at 1:05am
 
Hi Christa, Smiley Welcome to our MM family!

I’m sorry to hear your daughter has so much to deal with at such a young age, God love her! From what I've seen over the years, the kids are resilient and usually go through the surgery much better than the family members who are worrying and waiting. They usually bounce right back in no time. It's amazing.

It’s hard to say exactly what to expect though, without knowing the specifics, and also noting that every MM case is different because of each persons individual factors involved, but in general, IF you have an experienced MM neurosurgeon who has knowledge about this rare disease and also has experience with the different surgical techniques used to treat this condition, then I’d have to say the success rate and outlook is usually excellent.

As mentioned in the previous posts, kids usually have the “indirect” type surgery, like the EDAS (Encephalo-Duro-Arterio-Synangiosis). They take a scalp artery and make a small temporary opening in the skull directly beneath the artery, and then the artery is sutured to the surface of the brain, allowing connections (collaterals) to develop between the artery and the existing brain arteries, thus improving blood flow to the brain. It may take 6-12 months before new vessels (blood supply) can develop sufficiently, but basically all of the surgical procedures have the same concept, it’s like you said, to bypass the areas of blockage, with a new and more efficient means of bringing the much needed blood and oxygen to the brain, to avoid a stroke.

You’re right to ask questions. The more you know, the better you’ll feel. If you have any questions, please feel free to ask away; no question is too small. Many here have been in your shoes and understands. You're not alone.

You and your daughter will certainly be in our thoughts and prayers.

Please keep us posted.

Mar
Back to top
  
 
IP Logged
 
rmbielawa
New Poster
*
Offline


Kyle's Mom

Posts: 8
Hartland, USA, WI, Wisconsin
Gender: female
Re: how to deal with surgery
Reply #4 - Oct 4th, 2007 at 11:15am
 
Hi Christa!

My son had direct bypass on each side of his brain, May 2006. He was 8 years old.  He did absolutely great!  Dr. Steinberg did the surgeries at Stanford University. Even though he was only 8, they were able to directly bypass the "bad" moyamoya areas with a tiny vessel. Direct bypass is much better than indirect because Kyle had immediate blood flow versus waiting to see if the vessels "fuses" together.  After each gruelling 9 hour surgery (more me, than him), he was in ICU for 1-1/2 days, then into an intermediate room for a day, and then doing school work in the hospital's school!!!  It is truely remarkable how kids bounce back after this major surgery.  We flew home, (we live in Wisconsin) only three weeks from our date of arrival!  He had physical therapy for the summer, and voila!  He has not had any mini-strokes since!!!!  He is my miracle boy!  Dr. Steinberg said we don't have to go back...ever! (unless of course he has new symptoms...but unlikely!) 
There is much hope with this amazing surgery!
Take care, my prayers are with you and your family!
Renee
Back to top
  

Kyle's forever grateful, Mom.
 
IP Logged
 
Page Index Toggle Pages: 1
Send Topic Print



Moyamoya.com Forum » Powered by YaBB 2.4!
YaBB © 2000-2009. All Rights Reserved.


©2003-2018 Web Vision Enterprises LLC All Rights Reserved. All information on this site is protected by international copyright laws. You may not re-distribute any information from this site without written permission from Web Vision Enterprises LLC and the webmaster of this site. Violators will be prosecuted.

You may view our privacy policy and financial disclosure statement here





Valid RSS Valid XHTML Valid CSS Powered by Perl Source Forge