Hi Christa,

Welcome to our MM family!
I’m sorry to hear your daughter has so much to deal with at such a young age, God love her! From what I've seen over the years, the kids are resilient and usually go through the surgery much better than the family members who are worrying and waiting. They usually bounce right back in no time. It's amazing.
It’s hard to say exactly what to expect though, without knowing the specifics, and also noting that every MM case is different because of each persons individual factors involved, but in general, IF you have an experienced MM neurosurgeon who has knowledge about this rare disease and also has experience with the different surgical techniques used to treat this condition, then I’d have to say the success rate and outlook is usually excellent.
As mentioned in the previous posts, kids usually have the
“indirect” type surgery, like the
EDAS (
Encephalo-
Duro-
Arterio-
Synangiosis). They take a scalp artery and make a small temporary opening in the skull directly beneath the artery, and then the artery is sutured to the surface of the brain, allowing connections (collaterals) to develop between the artery and the existing brain arteries, thus improving blood flow to the brain. It may take 6-12 months before new vessels (blood supply) can develop sufficiently, but basically all of the surgical procedures have the same concept, it’s like you said, to bypass the areas of blockage, with a new and more efficient means of bringing the much needed blood and oxygen to the brain, to avoid a stroke.
You’re right to ask questions. The more you know, the better you’ll feel. If you have any questions, please feel free to ask away; no question is too small. Many here have been in your shoes and understands. You're not alone.
You and your daughter will certainly be in our thoughts and prayers.
Please keep us posted.
Mar