Click this link to read a post I like on the moyamoya.com message board...

Dec 8^th, 2025 at 9:05pm

	Welcome, Guest. Please Login or Register
	NEW search box below... Search Moyamoya.com with Google!

Moyamoya.com Forum › Moyamoya Related Topics › Moyamoya Related Information and Support › Heading to Boston on 11/5

(Moderators: DJ, MrsDeej)

‹ Previous Topic | Next Topic ›

Pages: 1

Heading to Boston on 11/5 (Read 2992 times)

sally

New Poster

Offline

I love YaBB 1G - SP1!

Posts: 10
north wales, USA, PA, Pennsylvania
Gender: female

Heading to Boston on 11/5
Nov 1^st, 2007 at 9:53am

Hi, I had posted back in July/August about my 23 year old daughter who had a stroke and during that hospitalization was diagnosed with MM. After 72 days in the hospital/rehab, she came home with an during the day and even more outpatient rehab. During this time I had been talking to Drs. Scott and Smith at Children's in Boston. Katie is scheduled for surgery on 11/6, we are flying up from Philly on the the 5th. If all goes well, we'll be back on the 13th.

Katie is a small person and it is difficult to find veins. Because everything is small, the doctors are doing the EMS procedure as they felt she is too small for any other procedure. We're not really thrilled with this but they know what they are doing.
Also they are only doing the right side at this timel as the left appears to be in decent shape and they would prefer and wait and see approach. Has anyone had two sides done at the same time?

So wish us luck on our journey!

Sally & Katie

IP Logged

Click Here to visit the Moyamoya.com Facebook page!

MMnewtUt

Junior Poster

Offline

Moyamoya survivor!

Posts: 62
Salt Lake, USA, usa, 129, 143, UT, Utah
Gender: female

Re: Heading to Boston on 11/5
Reply #1 - Nov 1^st, 2007 at 12:32pm

Sally and Katie,
I wish you good luck and prayers. I had STA-MCA bypasses done at Stanford 19 months ago. My surgeries were done a week apart. Please let us all know how things go. I am 30 years old but I also have a terrible time with needle sticks. I have to ask for the butterflies and the smallest needles used for pediatric patients. I have to wear long sleeves to keep my arms warm enough to get a good stick. Again, good luck! Kiss

Newt

IP Logged

STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: Heading to Boston on 11/5 Reply #2 - Nov 5^th, 2007 at 10:46am Sally - You are definitely in good hands with Dr's. Scott and Smith! You will feel very comfortable at Children's of Boston...they are absolultely fabulous there! Good luck to your daughter! Say hello to Dr. Scott for me! -Shari
Back to top	A smile is contagious...start an epidemic! Dr. Scott did my surgeries - 12/29/03 and 1/5/04 IP Logged

sally

New Poster

Offline

I love YaBB 1G - SP1!

Posts: 10
north wales, USA, PA, Pennsylvania
Gender: female

Re: Heading to Boston on 11/5
Reply #3 - Nov 26^th, 2007 at 3:34pm

I am finally getting a chance to put together an update on our Boston experience. Not that the surgery and travel were tough, but i had three weeks off of work and just got plain lazy!

Dr. Smith and Childrens Hospital was just amazing. From our arrival on Monday until we left they took such good care of us. Katie's surgery was Tuesday and by Thursday they said we could go home. Dr. Smith referred to the surgery as routine and boring. wow. We hung around the hospital until Saturday after the surgery just watching TV and finally said we're going. Katie just needs follow up in about 6 months to see how the blood flow is growing. All-in-all, Boston is the place to go.

Sally & Katie

IP Logged

MMnewtUt Junior Poster Offline Moyamoya survivor! Posts: 62 Salt Lake, USA, usa, 129, 143, UT, Utah Gender:	Re: Heading to Boston on 11/5 Reply #4 - Nov 27^th, 2007 at 11:10pm Sally and Katie, Wow, I have never heard of a boring surgery. It is great to hear that your experience went so well. I hope that you have good luck from now on. ; Newt( Natalie)
Back to top	IP Logged

STrantas

MM.com Benefactor

Offline

MoyaMoya Survivor Since
2003

Posts: 1154
Philadelphia, USA, usa, 490, 122, PA, Pennsylvania
Gender: female

Re: Heading to Boston on 11/5
Reply #5 - Nov 30^th, 2007 at 9:22am

Sally and Katie - besides the brain surgery part (!) I'm glad you had a good experience at Children's of Boston. The thing I loved about Children's is that when you say "Moyamoya" they don't look at you with a raised eyebrow and say "HUH???" In my opinion, that, in itself, is very comforting!

Anyway - guess boring and routine, in this case, is the best news you could ask for!

Glad to hear that Katie is doing well!

-Shari

A smile is contagious...start an epidemic!
Dr. Scott did my surgeries - 12/29/03 and 1/5/04

IP Logged

Pages: 1

‹ Previous Topic | Next Topic ›

« Home

‹ Board

Top of this page

There are user(s) in the live chat room. Go there now...

DISCLAIMER: All information contained on this web site is for informational purposes only. It is in no way intended to be used as a replacement for professional medical treatment. moyamoya.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site. All information taken from the internet should be discussed with a medical professional!

Moyamoya.com Forum » Powered by YaBB 2.4!
YaBB © 2000-2009. All Rights Reserved.

©2003-2018 Web Vision Enterprises LLC All Rights Reserved. All information on this site is protected by international copyright laws. You may not re-distribute any information from this site without written permission from Web Vision Enterprises LLC and the webmaster of this site. Violators will be prosecuted.

You may view our privacy policy and financial disclosure statement here