KTiller
Senior Poster
  
Offline
Posts: 355
Freeland, USA, usa, 51, 28, WA, Washington
Gender:
|
I had surgeries with Dr. Gary Steinberg on Oct 31 and Nov 7 this year and am worried about the hereditary link as well. My son, David (who is 36), had a few dizzy spells; because of moyamoya his doctor sent him in for a MRI/MRA last Wednesday. He got the results today - the good news is he DOES NOT have moyamoya, but he does have a developmental venous anomaly (a venous angioma). His doctor has made an appointment with Dr. David Newell here in Seattle at the Seattle Neuroscience Institute at Swedish Medical Center on Jan 7th (Dr. Newell is a neurosurgeon who has performed about 200 by-pass surgeries for moyamoya). I also faxed his MRI/MRA report to Dr. Steinberg's office this morning. Now we wait - seems I've been here before. From what we've read on the internet, I don't think we have anything to worry about, but I do wonder how many of us with moyamoya disease have family members who have either moyamoya or some other brain abnormality. My maternal grandmother was diagnosed with Altzheimer's, before the time of MRI/MRA diagnostics, many of my family believe she may have had many small, silent strokes, who knows maybe she had moyamoya. I know that I have at least two normal but rare developmental variants in other veins and arteries in my body - is this a common theme among those with moyamoya disease? Kim
|