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ntrlpwr

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have faith, the Lord is
my savior dx 2006

Posts: 62
Pearl City, USA, usa, HI, Hawaii
Gender: female

anyone experience muscle twitches after surgery??
Jan 2^nd, 2008 at 5:24pm

anyone experience muscle twitches after surgery?? it's not just one muscle it's the entire body or at least upper body then lower body twitches. y whole body would just jump, like if i'm lying down or sitting up...i'd hit someone if they'd be sitting close to me, hehe. it's been continuous for at least a couple times a days, it's just something i never experience for my first surgery but this one. anyone else experience this type of twitches?????

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tiomasai

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Arriba Arriba!

Posts: 246
Queens, NY,
Gender: female

Re: anyone experience muscle twitches after surger
Reply #1 - Jan 2^nd, 2008 at 11:25pm

I get them every once in awhile. I never really thought of them as connected to Moyamoya, but you never know. I didn't think the splotches on my arm were related to Moyamoya, but now I know others have it too (forgot the name of the syndrome).

Now you have me thinking. Mine are not the whole body but it'll be lower back or side and all of a sudden and in a very 'jerky' motion. I didn't have them before my diagnosis/surgeries.

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lotsofkids

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Moyamoya...Oh boya boya!

Posts: 333
Akron, USA, usa, 421, 123, OH, Ohio
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Re: anyone experience muscle twitches after surger
Reply #2 - Jan 3^rd, 2008 at 9:06am

ramdom all over, anywhere body twitches (muscle fasciculations) was one of the cronic symptoms I had with my Moyamoya the few years leading up to my diagnosis pre-surgery!

Oh...and they can be going concurrently at multiple parts of the body at the same time!

I still experience them now....post surgery, but they have subsided significantly. Before I was a human "mexican jumping bean" LOL.

I never received any medical explanation for them????

smiles and happy new years! Diane

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« Last Edit: Jan 3^rd, 2008 at 9:10am by lotsofkids »

Hmmm....seems I'm kinda "special" LOL

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Mar Ex Member	Re: anyone experience muscle twitches after surger Reply #3 - Jan 3^rd, 2008 at 9:28am I don’t know if this is what you’re referring to or not, but this thread discussed involuntary movement earlier this year. http://www.moyamoya.com/cgi-bin/yabb/YaBB.cgi?board=news;action=display;num=1171402942 I hope it helps. Mar
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ntrlpwr Junior Poster Offline have faith, the Lord is my savior dx 2006 Posts: 62 Pearl City, USA, usa, HI, Hawaii Gender:	Re: anyone experience muscle twitches after surger Reply #4 - Jan 3^rd, 2008 at 4:33pm yeah it's just something that's happened post surgery...thanks for all your input, and the drs. haven't said anything about it?? i forgot to ask when i had my follow up visit...i'll be sure to ask, if i can remember, hehe.
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tia120963

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I love YaBB 1G - SP1!

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Fall River, USA, usa, 521, 85, MA, Massachusetts
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Re: anyone experience muscle twitches after surger
Reply #5 - Jan 8^th, 2008 at 8:20am

Yep, I get them all the time, especially when my body is relaxed, its not as bad as yours though, it feels like a little jump, most of the time in my legs...sort of like when you dream you are falling....I've asked my doctors about it, neurologist said it is probably damage from the brain hemorrhage...just one of the things we have to deal with

Tia

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moyamoyamom New Poster Offline Posts: 1 Vista, USA, CA, California Gender:	Re: anyone experience muscle twitches after surger Reply #6 - Jan 8^th, 2008 at 4:04pm My daughter had double (right and left) surgery done 4 years ago in June. She had no muscle twitches after. Just migraines once in awhile after her incisions healed. She was very fortunate.
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ntrlpwr

Junior Poster

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have faith, the Lord is
my savior dx 2006

Posts: 62
Pearl City, USA, usa, HI, Hawaii
Gender: female

Re: anyone experience muscle twitches after surger
Reply #7 - Jan 9^th, 2008 at 5:21am

so basically most drs. just say deal with and it's just another thing to deal with, it guess that's minor....hmmm and some have taken seizure meds, do they help??? it's been happening everyday for me but it has decreased slightly. a couple a people have written back and said that they've been banging their head with drs. trying to find out....so what's the next thing??

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aloha,&&Brandie

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Janko

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Take baby steps...one
step in front of the
other!!

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Kekaha, USA, usa, 326, 333, HI, Hawaii
Gender: female

Re: anyone experience muscle twitches after surger
Reply #8 - Jan 11^th, 2008 at 1:39pm

Hey Girlfriend...

I get them in my calves every once in a while especially when I'm relaxed or really tired and just kicking back. It looks so weird, especially when you see the muscle start to twitch. I've learned to just deal with it since it doesn't really bother me.

Hope you are feeling better. Will call you soon!! Smiley

Me kealoha pumehana,
Jan

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Everything is not just black and white. Open your eyes, see what the world has to offer....

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moody Experienced Poster Offline In all the thing I lost I miss my mind the most. Posts: 207 richmond, USA, VA, Virginia Gender:	Re: anyone experience muscle twitches after surger Reply #9 - Jan 15^th, 2008 at 9:18pm Sometime I had muscle twitching but I have alot of muscle crams, it happen every where in the body and it hurt bad. My doctor don't know why it happen but he gave me muscle relax pill, I have to take it everyday
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kimba New Poster Offline Diagnosed 11/06 Posts: 9 Aliso Viejo, USA, usa, 44, 206, CA, California Gender:	Re: anyone experience muscle twitches after surger Reply #10 - Jan 18^th, 2008 at 2:28am I had twitching in my arms and legs after my surgeries, but it cleared up within a couple weeks. It's interesting to learn that it can be a long term problem for some MM patients.
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ntrlpwr

Junior Poster

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have faith, the Lord is
my savior dx 2006

Posts: 62
Pearl City, USA, usa, HI, Hawaii
Gender: female

Re: anyone experience muscle twitches after surger
Reply #11 - Jan 19^th, 2008 at 7:42pm

i'm wondering if it's more a nerve impingement than with the actual brain, as a side effect when surgery is done. because i majorily kick out or my total ankle twitchesand yes just recently i've been having cramping in my lower body..as i read, some of you have small muscles twitches to larger twitches...hmm i just gets my wondering if it is just a nerve thing...any thoughts??

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aloha,&&Brandie

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moody Experienced Poster Offline In all the thing I lost I miss my mind the most. Posts: 207 richmond, USA, VA, Virginia Gender:	Re: anyone experience muscle twitches after surger Reply #12 - Jan 21^st, 2008 at 10:10am My neuro send me to EMG test( nerve conduction study) to see if any damage of nerve or muscle but he said every thing is look fine. So, I still suffer and he doen't know what cause it.
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ntrlpwr

Junior Poster

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have faith, the Lord is
my savior dx 2006

Posts: 62
Pearl City, USA, usa, HI, Hawaii
Gender: female

Re: anyone experience muscle twitches after surger
Reply #13 - Mar 24^th, 2008 at 8:57pm

just had a eeg done last week, i'll know the results in may when i follow up with my neurologist....i did notice that when i did the testing after they did the light stimulation my body was just twitching like crazy all over again...so i'm not sure at what waves are keying in if that at all......i'm still having the twitches but at least a lot less than before on normal basis...just have to hold on and wait...

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aloha,&&Brandie

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Emily

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Diagnosed Oct 2005. Direct
bypasses: Nov 05 Apr
06

Posts: 259
Brisbane, Australia
Gender: female

Re: anyone experience muscle twitches after surger
Reply #14 - Mar 25^th, 2008 at 12:51am

i'm nearly at my two year anniversary for my second surgery (woo) but i did have heaps of twitches and stuff way long ago, sometimes big ones but more often not.... i was on dilantin for a while - anitconvulsant medication - but the effects of that stuff longterm is not good, particularly on the liver... but yeah it did just stop at some point. how long ago was your surgery?

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ntrlpwr Junior Poster Offline have faith, the Lord is my savior dx 2006 Posts: 62 Pearl City, USA, usa, HI, Hawaii Gender:	Re: anyone experience muscle twitches after surger Reply #15 - Apr 7^th, 2008 at 3:11am hey emily, i had my surgery in dec 2007, my twitching is less right now, but still comes on every now and then
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