gotchlorine
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Our daughter, Tara, lives with MM
Posts: 776
San Jose, USA, usa, 24, 158, CA, California
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I also have never read or heard of a stated life expectancy for moyamoya patients. What I have heard is that treatment (surgery) puts patients on an even playing field with non-moyamoya patients. In other words, once treated, the risk for stroke is the same as for anyone else. Other things contribute to risk factors (weight, smoking, etc.), but the chance of stroke from moyamoya is minimized following treatment.
That said, I know a whole bunch of moyamoya patients, who have had surgery(ies), are well past their 40's (some into their 70's), and are very alive and doing well. I, too, am curious where you read this. Could what you read possibly have been referring to untreated moyamoya? Given the progressive nature of MMD, that would make more sense to me, although no one knows what the rate of progression from patient to patient will be. The variance can be huge.
Would like to hear more discussion!
Jill
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