Hi all. I have been reading a couple of pages of this forum but have not found anyone with the same story as mine. So my question is: do I have moyamoya!

I have the diagnosis, but I myself am in doubt. I had a stroke 7 years ago which partly paralysed my right side. I have recovered almost 100%, just some very minor weaknesses in my right arm and hand.

When I got the diagnosis I was told that surgery was certain, but since then they changed their mind, and say that my condition is stable, and I will probably not need surgery. I see a neurologist annually and also get a CT scan and ultrasound annually.

My thinking is that it might be something else, as almost everybody I hear about, the disease is progressive. If mine has been stable for 5-7years without surgery can it still be moyamoya? I haven't had any symptoms since the stroke 7years ago.

Any thoughts appreciated 

you can send your MRI reports to Dr. Smith at Children's hopsital or Dr. Gary Steinberg , at Stanford hospital.  and have them look at your MRI  (latest) .. they should be able to confirm if it is moyamoya or not..

Good luck..