Posted by Ernest Catino on October 18, 2003 at 00:30:35:
Hello, we are a family in Eastern Pa and my adopted Korean daughter was diagnosed with MoyaMoya last summer. She was 19 at the time and started with numbness in her left hand and some minor speech problems. Our GP was clueless and through my wife's insistence we met with a local neurologist. He was old school but was very thorough and would not accept any diagnosis unless he was completely satisfied. He diagnosed her with MoyaMoya. She has had surgery with Dr Scott(Boston) in January and has had persistent headaches since then. Her new nuerologist in Hershey,PA(the original DR has since retired)is very caring but unsure on how to proceed. Earlier this week, he has not given my daughter a very positive view of her future. So this is why I am on the net looking for some info and encouragement. Thank you