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Moyamoya.com Forum › NON Moyamoya Related Topics › Daily Jibber Jabber › Stanford Info. Booklet/DVD

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Stanford Info. Booklet/DVD (Read 3615 times)

sharlee_gyrl

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Cheney, USA, usa, 447, 392, WA, Washington
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Stanford Info. Booklet/DVD
Nov 12^th, 2005 at 3:36pm

Hi everyone!

I know I don't post much at all, but I do read our boards on a regular basis. ; Grin

Just wanted to drop in really quick to let you all know that I received the Stanford Moyamoya information booklet and DVD today and I was so happy. The topics that are touched in the pamphlet are some of the very first questions I ever had about this disease and it makes me so happy to know that future patients will have this as a resource. The pictures are awesome and just looking at all of the different faces who live with Moyamoya make me feel "normal" in a sense. I told my parents and my boyrfriend that it makes me PROUD to be a Moyamoya patient, hehe. Roll Eyes

I hope everyone is having a good weekend. Take care and God bless!

*life is not measured by the number of breaths you take, but by the number of moments that take your breath away*

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Seachelles Old-Time Poster Offline God never gives us more than we can handle. Posts: 681 Fredericksburg, USA, usa, 474, 157, VA, Virginia Gender:	Re: Stanford Info. Booklet/DVD Reply #1 - Nov 12^th, 2005 at 4:22pm I've got the booklet as well and immediately went up and gave my brother one. It gave him something to read and look at while he's in the hospital recovering from surgery. They did a great job on the pamphlet.
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Lore

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My brother Kevin (Cubbie)
has Moyamoya

Posts: 819
Delaware, USA, usa, 419, 133, OH, Ohio
Gender: female

Re: Stanford Info. Booklet/DVD
Reply #2 - Nov 14^th, 2005 at 4:00pm

We received the Stanford MoyaMoya Booklet and DVD as well and they are awesome! Smiley

The pictures, as Jan stated, show you are not alone with having MM and remind us that it could be not only a MM patient but someone else you know - a child, parent, brother, sister or simply the person next door.

What a terrific tool to not only educate oneself about MM but to educate the medical community and others.

Stanford did and excellent job with the Booklet and we are so glad to see something of this magnitude published about MM and the topics of concern regarding MM addressed.

Go Stanford! Smiley

Lore and Kevin (Cubbie)

"What lies behind us and what lies before us are tiny matters compared to what lies within us." - Ralph Waldo Emerson

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Greg-NJ1 Experienced Poster Offline Mis-diagnosed with MM in 2005, arterial restricion Posts: 248 Teaneck, NJ Gender:	Re: Stanford Info. Booklet/DVD Reply #3 - Nov 14^th, 2005 at 4:13pm Sounds like a great information tool....how can we get a copy? Thanks, Greg
Back to top	I was misdiagnosed with MM in March of 2005. In January 2006, I was told it is not MM, but rather a massive restriction in the MC1 segment of my left carotid artery. IP Logged

MichelleB New Poster Offline I love YaBB 1G - SP1! Posts: 27 Redlands, USA, usa, 51, 202, CA, California Gender:	Re: Stanford Info. Booklet/DVD Reply #4 - Nov 14^th, 2005 at 11:41pm We received this info also. What great info to keep with us at all times. We watched the DVD today. It was fun to see all the familiar faces. Dr. Albers was the one who took care of Eddie first and diagnosed the MM. Thanks to him! Hope everyone else receives this great gift. MichelleB
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Annica Experienced Poster Offline My daughter lives with mm Posts: 173 Stockholm, Sweden, europe, 317, 154 Gender:	Re: Stanford Info. Booklet/DVD Reply #5 - Nov 16^th, 2005 at 4:30pm Hi! I am not sure how big this informationbooklet is in weight or size. How do I get a copy? I feel I have to get the word out to SOMEONE in this (when it comes to moyamoya) uneducated part of the world and maybe this could help? Annica
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