Moyamoya.com
Internet support for those diagnosed with Moyamoya Disease

Moyamoya.com Privacy Policy and Financial Disclosure Statement

This policy last updated: June 26, 2011

 

What information do we collect?

We collect information from you when you register on our site or place an order through the online store.

When ordering or registering on our site, as appropriate, you may be asked to enter your: name, e-mail address, mailing address, phone number or credit card information. You may, however, visit our site anonymously.

Like most websites, we use cookies and/or web beacons to enhance your experience, gather general visitor information, and track visits to our website. Please refer to the 'do we use cookies?' section below for information about cookies and how we use them.

What do we use your information for?

Any of the information we collect from you may be used in one of the following ways:

• To process transactions

(we continually strive to improve our website offerings based on the information and feedback we receive from you)

• To process transactions

Your information, whether public or private, will not be sold, exchanged, transferred, or given to any other company for any reason whatsoever, without your consent, other than for the express purpose of delivering the purchased product or service requested.
• To send periodic emails

The email address you provide for order processing, may be used to send you information and updates pertaining to your order, in addition to receiving occasional website news, updates, related product or service information, etc.

Note: If at any time you would like to unsubscribe from receiving future emails, we include detailed unsubscribe instructions at the bottom of each email.

Log Files

As with most other websites, we collect and use the data contained in log files.  The information in the log files include  your IP (internet protocol) address, your ISP (internet service provider, such as AOL or Cox Cable), the browser you used to visit our site (such as Internet Explorer or Firefox), the time you visited our site and which pages you visited throughout our site. 

Cookies and Web Beacons

We do use cookies to store information, such as your personal preferences when you visit our site.  This could include only showing you a popup once in your visit, or the ability to login to some of our features, such as the message board.

You can chose to disable or selectively turn off our cookies in your browser settings, or by managing preferences in programs such as Norton Internet Security.  However, this can affect how you are able to interact with our site as well as other websites.  This could include the inability to login to services or programs, such as logging into forums or accounts.

How do we protect your information?

We implement a variety of security measures to maintain the safety of your personal information when you place an order or access your personal information.

We offer the use of a secure server. All supplied sensitive/credit information is transmitted via Secure Socket Layer (SSL) technology and then encrypted into our Payment gateway providers database only to be accessible by those authorized with special access rights to such systems, and are required to keep the information confidential.

After a transaction, your private information (credit cards, social security numbers, financials, etc.) will not be stored on our servers.

Do we use cookies?

Yes. Cookies are small files that a site or its service provider transfers to your computers hard drive through your Web browser (if you allow) that enables the sites or service providers systems to recognize your browser and capture and remember certain information.

We use cookies to help us remember and process the items in your shopping cart, understand and save your preferences for future visits and compile aggregate data about site traffic and site interaction so that we can offer better site experiences and tools in the future.

Do we disclose any information to outside parties?

We do not sell, trade, or otherwise transfer to outside parties your personally identifiable information. We may release your information when we believe release is appropriate to comply with the law, enforce our site policies, or protect ours or others rights, property, or safety.

Funding

This site receives its funding primarily from your donations.  Donations are voluntary payments to support our work on Moyamoya.com and are rarely received.  Additional revenue is accrued via the sale of merchandise on the Moyamoya.com web store.

Those funds go first and foremost into the hosting space and bandwidth of this site and secondly to the initial investment and replenishment of the merchandise in the Moyamoya.com store. Thirdly, they go towards the various hardware and software that keeps this site up and running.

Even though we use the word donation, like many other webmasters who offer their work basically for free, donations are NOT tax-deductible as we are NOT an IRS qualified 501(c)(3) organization.

All revenues, donations, and expenditures regarding this site are reported to the IRS and appropriate state agencies.

Sale of SPONSOR Merchandise

Moyamoya.com will donate a portion of the net profit from each sale for identified SPONSOR merchandise to various Moyamoya research foundations.  The percent of each sale that will be donated to research will be clearly identified on each individual item.

Third party links

Occasionally, at our discretion, we may include or offer third party products or services on our website. These third party sites have separate and independent privacy policies. We therefore have no responsibility or liability for the content and activities of these linked sites. Nonetheless, we seek to protect the integrity of our site and welcome any feedback about these sites.

California Online Privacy Protection Act Compliance

Because we value your privacy we have taken the necessary precautions to be in compliance with the California Online Privacy Protection Act. We therefore will not distribute your personal information to outside parties without your consent.

As part of the California Online Privacy Protection Act, all users of our site may make any changes to their information at anytime by clicking on their "User CP" tab, "Profile" tab, and clicking on the "Edit Profile" link.

Childrens Online Privacy Protection Act Compliance

We are in compliance with the requirements of COPPA (Childrens Online Privacy Protection Act), we do not collect any information from anyone under 13 years of age. Our website, products and services are all directed to people who are at least 13 years old or older.

Online Privacy Policy Only

This online privacy policy applies only to information collected through our website and not to information collected offline.

Your Consent

By using our site, you consent to our online privacy policy.

Changes to our Privacy Policy

If we decide to change our privacy policy, we will update the Privacy Policy modification date at the top of this page.

Contacting Us

If there are any questions regarding this privacy policy you may contact us using the information below.

http://www.moyamoya.com/feedback.html

Moyamoya.com
P.O. Box 9602
Wichita, Kansas 67277
USA
privacy@moyamoya.com



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DISCLAIMER: All information contained on this web site is for informational purposes only.  It is in no way intended to be used as a replacement for professional medical treatment. moyamoya.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site.  All information taken from the internet should be discussed with a medical professional!

 

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