"Maui Maui? What
the hell is that!!??"
Those were my exact words when I first heard of MoyaMoya in June 2001. I spent the next
two months searching the internet for everything I could find on MoyaMoya Disease. My name
is DJ and I've been "blessed" with MoyaMoya.If
you're here, it's probably because you're like me and came to the internet to find out
more about this rare disorder. If you're like me, you also didn't have much success
looking through the search engines. There's not a huge amount of information out there
huh?
Well, that's all about to change!
Probably the worst part about being diagnosed with a rare disease
(especially an estimated 1 in 2,000,000 disease in the USA) is thinking you are the only
one in the world who is dealing with the problems associated with the disease. I hope to
change all that! |
