dw1 wrote on Apr 1^st, 2004 at 9:24am:


Hi dw1 - I'm sorry you are going through a difficult time right now.  I was wondering what you meant by "cataract-like effects?"  I had 2 surgeries at the beginning of the year and 2 days after I came back from the hospital I was treated for pink-eye.  But it came back - when I wake up in the morning my vision is very blurry - like there's a film over my eye.  Is this like what you were experiencing?  I e-mailed Dr. Scott to see if this has anything to do with the surgery - if this is an indication of anything wrong???? - Shari

Doug,
        If theres a risk of bleeding in the brain I don't understand why your on blood thinners unless I'm understanding it or read it wrong. My daughter took lovenox injection until her surgery but like most just takes an ecotrin a day for life after.                  Nancy

Sorry Doug,
                      My mistake I read your post wrong your prabably saying she's a nut whats she talking about. Sorry my mistake!!
                         Nancy

Hi Shari,

My left eye seems like it has a film over it. When I close one eye, I definitely noticed the difference. Up until a month ago when this problem started, I had better than 20/20 vision. Now it's just difficult for my left eye to focus. UI can still see but everything just looks slightly unfocused.

I thought it might be a TIA as well but they ran an mri and found nothing different when compared to the angiogram I took last December.

Another problem: I just noticed I;m more weak and fatigue, maybe I'm one of the rare  ones to have BOTH MS and mm.

doug

Hi All,

Re blood thinners, I was taken off aspirin nearly a couple of years ago. Until then I was on it since I was diagnosed back in 1990. Again, just as it was suggested to you, Doug, it was because of the increased risk of bleeding into the brain as an adult. My doctors had told me that I would be coming off my aspirin at some point but had not been sure when was the right time. When I was 17, I developed stomach ulcers as a direct effect of 8 continuous years of aspirin (the other reasons for stomach ulcers had been ruled out) so I was put on medication for that and started taking enteric coated aspirin. It settled down but started flaring up again a couple of years ago - I had severe anaemia and the doctors suspected that it was because of the ulcers again so that was the time my aspirin-taking was reconsidered. After my next annual appointment, I was taken off aspirin.

As for the strange vision probs, I get the occaisonal problems with my vision too. There are two different probs I get - one rare and one that sometime occurs daily. The rare one has only ever happend about six times since being diagnosed whereby I get a bad headache (on one side) that is accompanied by these weird (what I can only describe as) psychadelic black and white patterns (that's how I described it to my doctors) going on in a bit of one eye. Sometimes my arm(s) and leg(s) are affected too. This can last upto an hour. My doctors told me that it was probably something going on with the blood supply to the brain - may be some form of TIA.

The other thing I get is what I call, 'grey outs.' Sometimes when I stand up from sitting or lying down, my vision goes all grey - if it's a bad one then my arm(s) and leg(s) are affected and/or my vision starts going black and my hearing starts fading out - like I'm just about to have a black out. Again, my doctors think that it is some form of TIA - they checked out my blood pressure which seems normal. Does anyone else experience this? They only last a few seconds but can be a bit scary esp if it's a bad one and I think I might black out - though (touch wood) I never have.

Oh yes, Sara, you know those patches of numbness you get in your fingers and face? I get them too. Before I read your post I thought it was just me! In my fingers, I get a patch that sort of spreads to the next finger. With my face it's usually a patch to one side above the top of my top lip. It only lasts a minute or so.

Oh yes, and one more thing, was wondering if anyone knows if Moya Moya is related to the higher probabilty of having short/long sightedness. My field of vision is fine and so is my optic nerve but just wondered about my short sightedness being linked to Moya Moya coz of the fact that my Parents didn't need glasses until they were well into their forties whereas I've needed glasses since I was 11.

By the time you get this reply, I hope you are feeling much better Doug.

Best Wishes to you all,

Roselyn

I was placed on plavix when I was diagnosed with MM because of the risk of rupturing the callateral vessels created by the body with MM.  My nuerologist felt we needed to balance the risk thinning my blood enough to get better flow and thinning so much that I himmerage.  It worked pretty good for 4 years until I started having problems and went to Stanford for a second opinion and surgery.  As far as the fuzzy vision I had that in both eyes for a little while.  I was actually my first symptom.  My eye doctor said it was a painless migrain causing it.  I asked my neurologist and he agreed that some migrains are painless and affect your vision.  I dont know if that is what you have.  That is just my experience.   Best of luck and God bless.

David Farthing

Just been onto the NHS Direct website, looking at migraine and yes, it says something about chequerboard patterns (my psychadelic patterns do appear to be like that) with visual problems and speculation that it's something to do with blood supply of the skull. Now that I come to think of it, migraine has been mentioned to me before. Can't remember if the the furry eye feeling went with these episodes but I've had the furry eye feeling more recently - perhaps it's a milder version of what I used to get. I don't think it's an allergy thing coz I know what to have an allergy feels like (I have hayfever) plus my eye isn't red or itchy when it happens. Glad it turns out the film over your eye feeling wasn't anything serious or connected with Moya Moya, Shari and thanks for the migraine suggestion, David - I think that's what it is. Thanks for both your responses. Best wishes,

Roselyn