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Moyamoya.com Forum › Moyamoya Related Topics › Moyamoya Related Information and Support › The Moyamoya Foundation-a charitable organization

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The Moyamoya Foundation-a charitable organization (Read 54816 times)

PatM Experienced Poster Offline Posts: 229 Woodcliff Lake, USA, usa, 498, 109, NJ, New_Jersey Gender:	Re: The Moyamoya Foundation-a charitable organizat Reply #25 - May 15^th, 2004 at 4:40pm Thank you, Tommyb, for your support-------I do need a midwest rep so I will be in touch---first , I have to finish this darn questionnaire this weekend....Love to all and God Bless.....P
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DianeMain

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My sister, PatM, has moyamoya.

Posts: 126
San Jose, USA, usa, 23, 160, CA, California
Gender: female

Re: The Moyamoya Foundation-a charitable organizat
Reply #26 - May 16^th, 2004 at 12:21am

PatM wrote on May 15^th, 2004 at 4:18pm:

It is VERY IMPORTANT for me to not only honor Jerry in this way, but also to keep his memory alive in my heart, my childrens' hearts, my family's and my friends' hearts.....and to make sure that anyone who cares enough to ask, will know that Jerry planted the seed of this foundation, even before his death on June 2, 2001, at the age of 89.

I have a couple of pictures of Jerry I'd like to put here. DJ, can I send them to you?

Diane

"Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us." -- Bill Watterson (1958 - ), cartoonist, "Calvin and Hobbes"

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PatM Experienced Poster Offline Posts: 229 Woodcliff Lake, USA, usa, 498, 109, NJ, New_Jersey Gender:	Re: The Moyamoya Foundation-a charitable organizat Reply #27 - May 16^th, 2004 at 12:42am I love you, Peak....thanks.......
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DJ YaBB Administrator Offline Been there, done that... Posts: 721 Wichita, KS Gender:	Re: The Moyamoya Foundation-a charitable organizat Reply #28 - May 16^th, 2004 at 12:42am Jerry had moyamoya?
Back to top	Adversity does not build character... it reveals it... I help my neighbor and my neighbor helps someone else. Life is a wonderful circle! IP Logged

PatM

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Woodcliff Lake, USA, usa, 498, 109, NJ, New_Jersey
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Re: The Moyamoya Foundation-a charitable organizat
Reply #29 - May 16^th, 2004 at 9:02am

No, Jerry did not have moyamoya........he just planted the seed in me to start this foundation.....his wife did have a massive stroke in the early !990's, and basically became incompetent., and she had refused to execute an Advanced Health Care Directive and Medical Decision Power of Attorney while she was still well....the laws were a little different then....Jerry had to be appointed Guardian of her estate......and, then, when they surgically inserted a stomach feeding tube and gave her intravenous fluids which kept her alive for another 18 months, Jerry went to the nursing home EVERY SINGLE DAY to visit her, even though she was basically non-responsive....he even made sure that she was bathed properly and had her hair done once a week.......like she used to do when she was competent.......So, no, Jerry did not have moyamoya, he was simply an inspirational human being who profoundly influenced my life and the lives of my family and friends with his warm-hearted kindness, caring and generous nature.....And every day, I still miss his presence in my life.. Cry

"A life is not important except in the impact it has on other lives."...Jackie Robinson&&Worry looks around....Faith looks up......

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PatM

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Re: The Moyamoya Foundation-a charitable organizat
Reply #30 - May 23^rd, 2004 at 12:04am

Just wanted to post an update on the Moyamoya Foundation......just faxed 20 pages, including the questionnaire to our attorney, T. Wrobel, in San Francisco tonight at about 10:45 EST.......wanted to get it in so that we can get our tax ID # quickly and so that Tom can work on this while I am recuperating.......at first, will be operating out of my law office at 77 Hudson Street, 2nd floor, Hackensack, New Jersey, 07601 (201) 996-1555; fax (201) 996-1503 (so we can cut costs by not paying any rent as my law office will just pay the rent that I have always been paying.......I am the initial agent for service of process and I have a blank place on my sign for The Moyamoya Foundation......if anyone would like me to fax the same 20 pages to them, please e-mail me directly or post a reply on this thread----is that the right word?----and I will be happy to fax it to you.......please be sure to include your phone number and FAX NUMBER, ok?

Also interviewed a potential full - time employee and one part-timer today. Interviewing another on Monday at lunch time and another on Tuesday evening....... That's all for now........PatM

"A life is not important except in the impact it has on other lives."...Jackie Robinson&&Worry looks around....Faith looks up......

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PatM

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Re: The Moyamoya Foundation-a charitable organizat
Reply #31 - May 24^th, 2004 at 10:22pm

Just another update----interviewed another potential full time employee of the Foundation today....we spent almost 3 hours over lunch....he is GOING TO BE FABULOUS........have another interview tomorrow evening for full timer and then one at 1:00pm tomorrow for part-timer......things are really coming together.....since I will not be posting any info about the additional contacts I've made since I first thought about forming this organization, anyone who wishes to can e-mail me privately, or better yet, phone my office at 201-996-1555, and I will be happy to return your call at my very earliest convenience......or perhaps, DJ can set up some kind of backroom topic about the Foundation, that I can post on.....Let me know, DJ.......it's late...Bedtime for Bonzo...Love to all, Pat M Smiley

"A life is not important except in the impact it has on other lives."...Jackie Robinson&&Worry looks around....Faith looks up......

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DianeMain Experienced Poster Offline My sister, PatM, has moyamoya. Posts: 126 San Jose, USA, usa, 23, 160, CA, California Gender:	Re: The Moyamoya Foundation-a charitable organizat Reply #32 - May 27^th, 2004 at 12:49am DJ wrote on May 2^nd, 2004 at 11:36pm: bump Okay, DJ, I've seen you and (I think) LisaH do this. What's it mean? (Am I missing something obvious?) Diane
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DianeMain

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My sister, PatM, has moyamoya.

Posts: 126
San Jose, USA, usa, 23, 160, CA, California
Gender: female

Re: The Moyamoya Foundation-a charitable organizat
Reply #33 - May 27^th, 2004 at 12:53am

I am curious. What would these part- or full-time employees of the foundation be doing? What kind of background do they bring to the organization, and what would their/his/her job description include?

Diane
P.S. Even though I work for a not-for-profit organization, I don't know anything about how one gets started and then how it pays employees.

"Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us." -- Bill Watterson (1958 - ), cartoonist, "Calvin and Hobbes"

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LisaH

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Be thankful in all circumstances

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ArlingtonHts, USA, usa, 358, 120, IL, Illinois
Gender: female

Re: The Moyamoya Foundation-a charitable organizat
Reply #34 - May 27^th, 2004 at 12:58am

Diane,

"Bump" posting just brings a topic back up towards the top of the board. So basically, when you want a subject to be read again (for whatever reasons) you "bump" it back up. For instance, I keep bumping the "Member Map" message so that new members will know to place their pin on the map. Otherwise, that post would just kind of get lost.

Hope I explained that reasonably? Smiley

I gotta stop posting when I'm so tired and make no sense! Smiley

Lisa

"Two roads diverged in a wood, and I--I took the one less traveled by, and that has made all the difference." - Robert Frost

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LisaH Senior Poster Offline Be thankful in all circumstances Posts: 261 ArlingtonHts, USA, usa, 358, 120, IL, Illinois Gender:	Re: The Moyamoya Foundation-a charitable organizat Reply #35 - May 27^th, 2004 at 1:02am I was just going to post the exact same question, just out of curiosity, about the employees Diane! Lisa
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DianeMain Experienced Poster Offline My sister, PatM, has moyamoya. Posts: 126 San Jose, USA, usa, 23, 160, CA, California Gender:	Re: The Moyamoya Foundation-a charitable organizat Reply #36 - May 27^th, 2004 at 1:13am Lisa, thanks for the explanation. I thought it might have to do with keeping the message active, but -- not being really familiar with this particular software -- I wasn't exactly sure. Diane
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PatM

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Re: The Moyamoya Foundation-a charitable organizat
Reply #37 - May 27^th, 2004 at 9:09am

I have no problem answering your questions about the full and part time employees, but do not want to post something so detailed and long without first having permission from the webmaster--------Obviously, I cannot do all of this work by myself......I already have several events plannes for fundraising in September and October and I need some help from the employees (and, of course, the many volunteers from this website and my personal friends).............also, I do not wish to create a problem because some of the people involved are semi-famous and you will recognize either their names or their good works,,,,,,,,I do believe that it is important that you all are informed,however, so when DJ gives me the "go ahead", I will post this information....I await response from the webmaster....PatM

"A life is not important except in the impact it has on other lives."...Jackie Robinson&&Worry looks around....Faith looks up......

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STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: The Moyamoya Foundation-a charitable organizat Reply #38 - May 27^th, 2004 at 12:55pm Pat - You can always send a private message. If you do so, I would like info on what kinds of events you have started planning, or were contemplating. Thanks! -Shari
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Been there, done that...

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Wichita, KS
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Re: The Moyamoya Foundation-a charitable organizat
Reply #39 - May 27^th, 2004 at 1:01pm

Thanks Pat,

Obviously, the overall progress of The Foundation is of great interest to people and updates are more than welcome!

Perhaps the detailed info on how it is being created would serve it's purpose better via email, PM's, or a thread in the "back room"?

I would hate to see the really important information (the progress) intermingled, overshadowed or burried in the technical details of the process.

Does that make sense?

« Last Edit: May 27^th, 2004 at 3:11pm by DJ »

Adversity does not build character... it reveals it... I help my neighbor and my neighbor helps someone else. Life is a wonderful circle!

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PatM Experienced Poster Offline Posts: 229 Woodcliff Lake, USA, usa, 498, 109, NJ, New_Jersey Gender:	Re: The Moyamoya Foundation-a charitable organizat Reply #40 - May 27^th, 2004 at 7:15pm Dj----that makes sense--but, I unfortunately don't want to type the same thing over and over----and I am not computer savy enough to know how to copy or paste it....so, if you and/or my sister can explain to me how to do that and send private messages, I would be happy to do so.....Pat
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STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: The Moyamoya Foundation-a charitable organizat Reply #41 - May 27^th, 2004 at 9:07pm Hey Pat - You can send it to everyone that requests the info all at once. Type up your PM, and in the "To username" field, type each username separated by a comma. For example: DianeMain, STrantas, PatM, DJ -Shari
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dbohot New Poster Offline Posts: 22 Austin, USA, usa, 287, 269, TX, Texas Gender:	Re: The Moyamoya Foundation-a charitable organizat Reply #42 - May 28^th, 2004 at 11:56am Add me to the list of people wanting more info.
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connie1 New Poster Offline Posts: 45 Union City, USA, usa, 24, 155, CA, California Gender:	Re: The Moyamoya Foundation-a charitable organizat Reply #43 - May 28^th, 2004 at 1:15pm can i also get some info, pat? thanks.
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janicetedd Experienced Poster Offline Sister - Patty w mm Posts: 221 Waterford, MI Gender:	Re: The Moyamoya Foundation-a charitable organizat Reply #44 - May 28^th, 2004 at 1:35pm patM I would like to be added to the list of information. Maybe there is something that I can help with. Thanks Janice
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PatM

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Woodcliff Lake, USA, usa, 498, 109, NJ, New_Jersey
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Re: The Moyamoya Foundation-a charitable organizat
Reply #45 - May 31^st, 2004 at 5:50pm

Hi everyone---my 2nd EDAS surgery has now been moved up to JUne 3rd, I have pre-admission tests tomorrow, and more cognitive functioning tests on Wed., June 2nd........so I will try to do the private e-mailing thing after I am out of the hospital regarding the employees......and also the Board of Directors......for now, I am just too tired, and it's too complicated for me to follow...but, I promise that I will do it just as soon as the headaches from the 2nd surgery subside......Love and best wishes to you all.....for those of you who are praying people, I simply ask for your prayers for me and my family--that the 2nd surgery goes as well as the first........thanks...PatM

"A life is not important except in the impact it has on other lives."...Jackie Robinson&&Worry looks around....Faith looks up......

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STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: The Moyamoya Foundation-a charitable organizat Reply #46 - May 31^st, 2004 at 6:02pm Good luck Pat, we will be thinking of and praying for you! -Shari
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janicetedd Experienced Poster Offline Sister - Patty w mm Posts: 221 Waterford, MI Gender:	Re: The Moyamoya Foundation-a charitable organizat Reply #47 - May 31^st, 2004 at 7:48pm Hi Pat Absolutely we will be praying for you -- good luck and we will be waiting for an update. Janice
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hillary Senior Poster Offline My daughter Holly has MM Posts: 340 new braunfels, USA, usa, 279, 285, TX, Texas Gender:	Re: The Moyamoya Foundation-a charitable organizat Reply #48 - Jun 1^st, 2004 at 3:49pm me to...me to..please...i have been talking to my employer about a donation since i work here and my daughter has it i think i can get one from him. Hillary
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PatM Experienced Poster Offline Posts: 229 Woodcliff Lake, USA, usa, 498, 109, NJ, New_Jersey Gender:	Re: The Moyamoya Foundation-a charitable organizat Reply #49 - Jun 16^th, 2004 at 8:01am bump
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