Hi Lee,

Am really glad and happy for you that things are moving forward and you now have the support that you need. Good Luck with your angiogram and surgeries.

I didn't know there are 'primary' and 'secondary' Moya Moyas. Have just read Wayne's response on it. I'm learning quite a bit on this site!

Best wishes to you and your family,

Roselyn

Daisy...hang in there.  My little Cara had her second surgery a week ago.  But after her first one she lost her "personality".."spark of life"...was expressionless and when doing occupational therapy had no patience and wanted to get one task over with and onto the next so fast...very complusive !!!!  so unlike her.   That was after the first surgery on the right and the left had a stroke (possibly two of them)...but after her second surgery on the left....the additional blood flow (and oxygen to her brain) probably helped bring her personality back...shes so with it that has been overdoing things and getting a little TIA here and there for few seconds...lost of right hand for few minutes but she somehow massages it and plays with her hands and it comes back.   I would have to say...your condition is affecting your emotions most definitely...even Cara's Dr. Meyer said that the disease is progressive and there are going to be moments that may not seem right especially after surgery when it takes a while for the arteries to grow and give able blood supply even though you get additional blood supply  (depends on which surgeries you get)...Cara had both the EMS and STA-MCA surgeries on both sides.   Before I was diagnosed with the B12 defiency (which is when your body lacks to absorb vitamin B12 from the food in the stomach...slowly your red blood cells lose the oxgyen it carries throughout your body including the brain)...in my case...I went through so many emotional outbursts but out of my control.  So feel free to vent, get it all out right here....I know how it is (I even have 3 teenage boys to raise along with Cara)...every little thing that was wrong drove me insane....but am much better now..so hang in there, sweetie.

BIG, BIG Hugs to you Daisy,

CarasMOM

Hey Lee,

Was on vacation with my family for a spell and returned and read your message. 

As far as changes in your personallity, there was a post called personallity changes that I commented on so the message could be listed on the top of the board.  Please read it, because you are not alone.  As far as your family goes, I am sure they will be there and understand that this is part of the illness.  It is tough for family members from the point of wanting their love one to be happy and back to normal.  They want to hug and hold you so bad, in hopes it will go away soon.  It will go away, and you will be back to normal again.  It hurts, but they are all focused on you and will always be there.  It is an adjustment that very few people in the world have to deal with, so there is no standard as far as love goes.  They also want to help you so much and it hurts them that they can not fix it themselves and must rely on someone (doctor) to do the right thing.  ( I sound like a control freak).

I am happy that you are getting more attention from the doctors and a sense of urgency is being placed on you.  I most add it is key you get in there and have the surgery done now.  It sounds like you are going to get the angiogram, so the doctors know how to perform the proceedure and it only takes a few minutes for them to understand what to do.  That is why they may do the surgery right after the angiogram, along with the urgency of the surgery. 

Just get it done and this will all be a blast from the past. Take it easy and stop worrying, that is your families job.  Just get ready for the surgery and you will be able to click your hills three times and you will be back home.  Sounds like a fairytail, but there is a lot of truth to it.

Take care

Wayne

Hey,,, I get what you are saying. My sister, who is 55 yrs, has Downs Syndrome and Mental Retardation, has MM. Found out this past April. She is not a canditate for surgery, and they are astonded she is alive today. Let alone still moving and talking. She had alot of problems with her "leg and hand being asleep" as she puts it. But, she too has had some major mood swings. This is something she never had before. They are steadly getting worse. SHe will be on top of the world one second and shaking, crying and terrified the next. And she doesn't even understand what her broken foot means! She is a VERY great person, just different. This has been very hard on her, as me too. I stay with her 24-7. My husband has been great about it(as we haven't even slept in the same bed since all this happened. We don't go anywhere, or do anything. But,, we don't even mind it! Love will go to extremes, without any problems. It will endure.  We put her on a anti seizure med. Someone on this board told me it sounded like she was having "comples partial sezures". Not ONE of all the docs even considered it, until I asked. The med has helped her alot. Not neat as much "spacey" times,, or "tuning out" for a few. She even felt more her old self after a few weeks on it. We saw a major change, all for the better, in her. I am thankful for whoever told me of that. So,, look it up, and see if the info will help you also.  I don't have this, but I have cared for my sister all her life. SHe is so much a part of me, that it is like I have it also. The difference is, she will leave me because of this. And I will stay. SHe is determined terminal. And it is coming soon. But, because of this site, I am now as OK with it as I could ever be. I will write her story soon. And I hope it will open a door for everyone who has it. I actually have a person wanting to publish it. I WANT this MM known. I WANT it out there!!!!!!!!! And I will make sure it is. It will take me some time, as she is my main "project" for now. But I WILL get it out there. For all of the children, mothers, fathers, etc. who are living with it. The world needs to know about this. I will let you all know when and where it will come out. Then,, they will be looking for all you, to hear your stories also. As the main thing I will put out there is this site. Hang in there all. Life is a WONDERFUL thing, no matter how we have to live it. Sincerely and Lovingly    MJS

MJS,

     thank you for sharing your sister's story.  Tonite, i'll cry for her instead of me.  Your love is amazing.  I'll say a prayer tonite especially for her and peace for you.  Thanks so much.  Look forward to seeing more posts from you. 

Many hugs,

Lee