This is from the sister WITH the sister who has Downs and MM. Had to put in a smiley face, because we have been blessed. We know she is terminal,, but we have been fortunate so far. She hasn't had a major attacks. A lot of small ones, and a few bleeds. But, since there is nothing they will do for her, we haven't had to take her to the hospital. Except for when she fell and broke a bone in her foot. OUCHY! Anyway, we will only take her if there is any major discomfort or distress on her. SO far we have managed her well at home. She is getting spells more frequently, and I feel she may have only a few weeks left. But, as to date, there has been no physical signs of disabilitys from them. She is very fortanute!!!!! As am I. She is living in the past more and more. Having mood swings, which she NEVER had all her life. And since she is now 55 that is GREAT.(never having any before that is).  Hospitice will start tomorrow, a counselor. As she is getting scared alot. She understands Heaven and God, but for some reason she is terrified, poor thing. So this person works with children, they say she is great. We will see. She is starting to choke and cough more, and her eye rolls. They say that is the blood flow being interrupted. But, overall, she has done well. She still enjoys my grandkids, laughs with them sometimes. Loves watching the birds eat, small things like that. She has no desire to go out of the house any more. Though I do take her out anyway. She has lost joy in many things, but it doesn't seem to register with her either. Which is good. I have been sick myself. Fell and ripped a muscle and cartliage around my ribs. That was three wks ago. Still in alot of pain. So I have finally gotten help in here with her. She is adjusting to it. Seems I can't leave her site though. So I just stay put mostly.   Just wanted to put a little light into this terrible thing. It will take her. But she will go at home and happy. I love her with all my heart. I will survive also.  All take care and God Bless.       MJS

Dear MJS!

Just want to tell you how much I and certainly everybody else admire what you´re doing for your sister. It all seems so calm and peaceful!
I work as a councelor in an "Advanced Healthcareteam" (probably didn´t translate it correctly but I hope you anderstand anyway) and I think what you´re doing for your sister is very beautiful and caring.
We´re all so concerned about how to be born and the situation around that but this "journey" I believe is just as important; how you die. And you are preparing the best death your sister could possibly have; so full of love. I pray you have the strength to stay by her side allthe way and hope you get all the support you need from friends, family and perhaps proffessionals . My thoughts will be with you !

Annica

Thank you for the words!!!!!!!!!!!!!!! to Carasmom,,,,,,,,I just love the words you used. Makes us who we are in a positive way. WOW!!!!!!!! I sure wish I could have thought to say that. SO many people say I am a "saint". This is not true. But your words put it just right! How amazed I am that words can mean so much. Thank you to the others also. Your words, I not only read thim, but I could FEEL them. I haven't felt that warmth inside for so long, that I didn't even miss it. Guess you gave me the best hug,, and just when I needed it the most. My sister is the one who is the saint. They said she should have passed on 6 months ago. She has such  conviction in her soul, it encourages me. She keeps me going. How strange and wonderful life is.  Again, thank you from the bottom of my heart!   MJS

Dear Steve,,,,,,,,,,, I sit here now with tears in my eyes. It is hard for me to allow my true feelings to come out. Seems there is either not enough time, or the wrong time. Plus, in my life I was taught that emotions were stupid. Everything was either "black or white, no in-between." I will never forget my father pounding that into my head. This is only the second time I have felt the emotion. But I know that is what will help me, and help me to help her.  Release sometimes is a hard thing, but very necessary,, as I have learned.  So<<<, I have to thank you for your words. You gave me a release, which in turn, lets me feel the love more. With all of you out there,, I now know that we (I) will survive. With hardship, but I will go on. Thank you from the bottom of my heart. You have also given me a thought to help her release also. AGAIN>>> Thank you         Sincerely MJS!!!!!!!!!!!!!