Wayne,

My daughter Tara, 17,  had her surgeries in June of this year.  She was told that she'd be on a regular aspirin (not baby aspirin) every day for the rest of her life.

Hope that helps!

Jill

Hi Wayne....Cara was on 81mg baby aspirin since she was 2.5...possible DX of MM....and continues to take them still now.  Her doctor said maybe in a year she'll go off of them if all goes well ...but from what I see everyone is taking them for rest of their life. 

, CarasMOM

Hi Wayne,

I hate to be the exception to the rule but I was on aspirin until I was 21. When I was first put on it, I thought that I too would be on it for the rest of my life but my doctors told me that as an adult, there is an increased risk of bleeding into the brain and so they took me off it. I had my surgeries done at age 14 and 15. I noticed that Annica's daughter, Louise, is on Fragmin - I was given that (if it's the same thing) in the weeks that I had my surgery - only while I was in hospital. I'm really sorry if this confuses people but I thought I'd add it to share what I've been told.

Best Wishes to you all,

Roselyn

Hi all:

     Just wanted to add my two cents.  I have not had my surgery, but I bombarded my neurosurgeon with questions.  He told me to expect to be on my daily aspirin regiment for at least a year after surgery.  He also stated that adults tend to have 'bleeds' in the brain from too much aspirin, so he administers it carefully, depending on each patient's case.  Just my two cents.  Of course, who knows what will be decided after the surgery? 

Lee

Shari...you mentioning "TIA's almost every hour" before your second surgery....I am wondering if you remember what they were like.  If you see my post of today on "TIA's vs Seizures" I explained further why I'd like to know.  Theres a stroke, theres a TIA, and theres a seizure (so many kinds I have read)...and I wonder if there is an even smaller "TIA" that is not really a seizure and not really a TIA....but we or our children are put on "stronger blood thinners"(Cara not yet) or "anti-seizure medication" (which is obviously helping Cara...clock is ticking to fourth day without a spell).  A line keeps coming back to my head of what Dr. Stienberg said (he would have been my 3rd choice) when he told Nancy N. that her daughters "spells" previously labeled as "seizures" were actually "spells" caused from MM.  (Nancy - correct me if this isn't right) but I feel all this is a worthwhile thing especially my wondering why some doctors put their patients on anti-seizure medication as a pre-cautionary measure.

CarasMOM

Wayne,

I'm on 325mg of aspirin a day for the rest of my life too.

-Deej

Tyler takes baby asprin also. He even had to keep taking it right thru the surgery times.

CarasMOM wrote on Sep 24^th, 2004 at 2:37pm:


My TIAs felt like my hand fell asleep (if it was in my hand).  There was "tingling" and it lasted anywhere from 2 minutes to a half hour....no pain though.  Sometimes the tingling traveled...for example...it would start in my hand and then move to my arm.

-Shari

Trey (15 months old today) is on Lovenox 2 injections a day until around December and then will be put back on either a half baby asprin (he had been taking half before the second stroke) or I guess, maybe (he has never been on a whole one) a whole one.  He is also on Tegratol for seizure precaution until one year from the last seizure.  He only had seizures when he had a stroke.  I have been led to believe he will be on ASA for the rest of his life.  He will have a repeat Angiogram sometime between December 2004 and June 2005.  December will be 6 months post op both sides and June will be one year.

Michell

Thank you all for your responses.  You all have given me an idea on what to expect.   You are all wonderful and thank you from the bottom of my heart. 

Wayne

Well, here's more to add to your "wealth" of knowledge:
My son, Kyle, at age 3 1/2, was put on Dilantin from the time they realized he'd had a stroke due to MM until he went home frm the hosp. after the 2nd surgery (about one month total).  After that, he took 1/2 baby aspirin (40.5mg)/day for two years.  Then, the neurosurg said we could probably stop the aspirin if we were concerned (Reyes Syndrom, etc.)  But about 2 1/2 yrs later (3 yrs ago), Kyle started having garbled speech episodes and the neurologists & neurosurg both agreed he should go back to taking 1/2 baby aspirin/day.  An MRI showed no problem with blood flow or other reasons for the speech difficulty.  We just plan to keep him on the aspirin for now until someone comes up with a better solution. 
Good luck, Wayne.  Fortunately, you can get good benefit from a low dosage of aspirin apparently, so if you and your Dr. decide that is the best route for you, just stay aware of trouble symptoms and don't hesitate to contact your Dr. if you're suspicious that it's causing more problem than benifit.  I think aspirin has pretty low side effects compared to some of the alternatives.

sue