Dear DJ and everyone,

As I have already posted a question in the previous topic, I think I should have said thank you to DJ for providing such a helpful site.  My son was diagnosed as MM last October and went through two surgeries in November at Stanford by Dr. Steinberg's great hands.  We were able to find Dr. S very quickly because of this site.  Also, it was so lucky that we live nearby Stanford. 

As you know, MM is more common in Asian countries, especially in Japan.  So it's no wonder that there is a number of web sites regarding MM in Japan.  Unfortunately few are available in English, but I'd like to introduce one written by a dedicated expert of MM.

http://www003.upp.so-net.ne.jp/moya-moya/

I believe this would be helpful to many people and you can find a lot of  info from here.  As you may guess, we are Japanese.  I have my own site describing my son's case in detail but in Japanese (http://www.a-pot.com/Moya/moya_top.htm).  I hope it could be translated into English in the future.  Also, If this site could be translated into other languages, it would be of much greater help to much more people. 

Best wishes and good luck to Mark and Connie's mom.  Thank you.  Cotadad

Dear Jill,

Thank you very much for your comment.
Yes!!!  That's about us!
We visited Dr. Kaukkari last October following the referral from our primary pediatritian.

We live in Sunnyvale.  As I am a new comer here, I have read a little yet.  But I thought you guys are doing what we wish we could.  We have been in the US for 3.5 yrs.  Since we still have a language barrier, we would like to support those who have the same problem.

Best

Cotadad

PS: Does this board have spell check function?

Dear Cotadad,

Welcome to the MM family here.  I'm not sure if there is a spell check here but rest assured....alot of us have misspelled words especially the medical ones but we all know what each other is talking about.  And also those MM adults who have had a stroke or two have trouble typing, too...or get letters jumbled.   So glad your son is doing well.   And I enjoyed reading through the website you put in your post...it was well done, too.  Looking forward to seeing you post regularly.    CarasMOM

Dear CarasMOM,

Thank you for your comment.  OK, I won't worry about typo, which makes me feel easy!

Dear Roni,

I took a look at the paper.  As a scientist in pharmaceutical industry, I would say it is too early to expect immidiate benefit from this kind of research.  Yes, it is exciting and suggesting the good effect of indomethacin to MM.  However, it happened in a test tube (so called in vitro), and we never know if the same thing happens in our body until more date are accumulated.  I am sorry that you did not get a reply from the author.  If you still have specific questions, I could try to contact him.  Please let me know.  Thank you!

Cotadad

Roni,

I sent an e-mail to Dr. Yamamoto in Japanese several weeks ago, asking if there was any update after their publication.  Unfortunately, I have not received a reply.  Sorry for the late response and not being able to address your questions.  Just let you know...  Hope everything is going well with you.  My son is having angiogram and SPECT as following-up exams this week at Stanford.  Cotadad