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Moyamoya picture page! (updated) (Read 29844 times)
DJ
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Moyamoya picture page! (updated)
Apr 18th, 2004 at 10:48pm
 
I was thinking about starting a picture page for those from the site who have Moyamoya and their family/supporters. Hopefully, it would be a good way to put faces with names for those of us in the "moyamoya family". I'd like to put up pictures of all of us before, or after our surgeries, not just the hospital type pictures... know what i mean?

What do you think?

DJ
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« Last Edit: May 5th, 2004 at 3:35pm by DJ »  

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janicetedd
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Re: Moyamoya picture page?
Reply #1 - Apr 19th, 2004 at 5:31am
 
Hi DJ,
Thnak is a great idea.  I have often thoiught of having a small profile on the side. eg. relationship to mm'er. age of mm'er, surgiers, strokes, severlity, etc. 

DJ this webiste is wonderful.  Your mom, and all 'in the family'   mm'ers and support are awesome.

I know if I had this webiste before my sisters stroke.  I would have pushed/demanded the surgeries.  After the diagnosis at Mayo Clinic in 12/97 they had a wait and see approach.   Knowing what I know now---waiting is not an option. 

But thank you.  We will see you in August.

Janice
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Sara
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I have pics in Re: Moyamoya picture page?
Reply #2 - Apr 19th, 2004 at 11:37am
 
Good idea DJ!!!

I have pics on my computer, but don't know how to attach it???   Undecided

Smiley Sara


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Nancy_N.
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Re: Moyamoya picture page?
Reply #3 - Apr 19th, 2004 at 1:09pm
 
Sounds great deej what will you come up with next, your something else.
                                 Me again
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DJ
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Re: Moyamoya picture page?
Reply #4 - May 5th, 2004 at 5:03am
 
I've started a picture page for our Moyamoya family members from the site so you can put faces with the names.  Pictures I have so far, which I've taken myself (who I don't think will mind are used on the page) are located at: http://www.moyamoya.com/mmfamily/index.html

If you have pictures of yourself (or your loved ones) you would like added to the page, there is info on that page for sending me pictures to add.  I haven't added the link to the menu bar at the top of the page yet, but if it goes over well, I will at it shortly.

Check out the link below and let me know what you think!

http://www.moyamoya.com/mmfamily/index.html

Smiley

DJ
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DJ
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Re: Moyamoya picture page?
Reply #5 - May 5th, 2004 at 3:05pm
 
Just added pictures of Rena & Tyler, Sandy and her family, Sara and her fiance Scott...

http://www.moyamoya.com/mmfamily/index.html

Send me those full sized pictures and I will do the rest!!!

;Grin
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DJ
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Re: Moyamoya picture page! (updated)
Reply #6 - May 6th, 2004 at 5:16am
 
Added pictures of Arianna and LisaH tonight...

http://www.moyamoya.com/mmfamily/index.html

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DJ
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Re: Moyamoya picture page! (updated)
Reply #7 - May 6th, 2004 at 2:42pm
 
I've updated all of the menu's on the site incorporating the new picture page. You can get there now by following the link under "Pictures" on the menu bar.

Keep sending them!

;Grin
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« Last Edit: May 6th, 2004 at 2:43pm by DJ »  

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DJ
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Re: Moyamoya picture page! (updated)
Reply #8 - May 11th, 2004 at 2:00pm
 
Added a picture of Angel Arianna today... Smiley

http://www.moyamoya.com/mmfamily/index.html
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DJ
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Re: Moyamoya picture page! (updated)
Reply #9 - May 12th, 2004 at 12:30pm
 
Joe has joined our moyamoya family album!

http://www.moyamoya.com/mmfamily/index.html
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DJ
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Re: Moyamoya picture page! (updated)
Reply #10 - May 14th, 2004 at 2:27pm
 
Just added a picture of Shari!

http://www.moyamoya.com/mmfamily/index.html
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Rena
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Hi, My son Tyler was diagnosed
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Re: Moyamoya picture page! (updated)
Reply #11 - May 14th, 2004 at 4:36pm
 
The picture page is Great! Smiley I have a terrieble time with names and get things so jumbled as to what goes with who. Having pictures just seems to put more in perspective for me.
Way To Go DJ! Smiley
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« Last Edit: May 14th, 2004 at 4:37pm by Rena »  

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DJ
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Re: Moyamoya picture page! (updated)
Reply #12 - May 14th, 2004 at 8:51pm
 
Rena, yeah it works pretty good and it's definately nice putting a face with a name!

Just added Louise, Annica's daughter from Sweden!

http://www.moyamoya.com/mmfamily/index.html
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Sara
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Re: Moyamoya picture page! (updated)
Reply #13 - May 14th, 2004 at 9:21pm
 
Oh my goodness!

Annica, your daughter is beautifull!

Sara
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Mar
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Re: Moyamoya picture page! (updated)
Reply #14 - May 14th, 2004 at 10:18pm
 
Ditto what Sara said... absolutely beautiful Annica! You are truly blessed!
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Annica
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Re: Moyamoya picture page! (updated)
Reply #15 - May 15th, 2004 at 4:49am
 
Hi Sara and Mar and others!

As a mother I do think my daughter is beautiful of course and I feel very blessed to have her and thank you so much for your kind notes on the board.
Louise is very thrilled to see all the pictures on the familypage and I beleive it is good for her to have proof there are other kids just like her out there in the "big world". Makes her feel less alone with this strange and unusual disease.
It is so good to see all the "mm-heroes" on this board and also have faces to all the names, you truly are a fantastic bunch of people, do you know that?

Love you.

Annica (Louise says hello to everybody)
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DJ
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Re: Moyamoya picture page! (updated)
Reply #16 - May 21st, 2004 at 4:16am
 
Added pictures of Little Sandy and Savannah (Sandy's beautiful children).

http://www.moyamoya.com/mmfamily/index.html
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DJ
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Re: Moyamoya picture page! (updated)
Reply #17 - May 27th, 2004 at 3:13am
 
Added post op pictures of Christy (babyblue), Rena and Tyler tonight.

Added a couple of pics of Timothy (tommyb) the other day I forgot to tell you about...

Just to make sure everyone knows... you can
click the "little" picture
on the page and get the "full sized" picture!


http://www.moyamoya.com/mmfamily/index.html
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DJ
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Re: Moyamoya picture page! (updated)
Reply #18 - Jun 8th, 2004 at 3:55am
 
Added more pictures of Joe (joesmom) and his family, along with one of your new members, David.

http://www.moyamoya.com/mmfamily/index.html

Smiley
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DJ
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Re: Moyamoya picture page! (updated)
Reply #19 - Jun 9th, 2004 at 3:27am
 
Added another pic of the gang that was able to hook up at Stanford a couple of weeks ago...  Hillary & Holly, LA & Jack, Connie.  Check it out!
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Mar
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Re: Moyamoya picture page! (updated)
Reply #20 - Jun 9th, 2004 at 10:03pm
 
Thanks!! I love that picture Deej! It made me cry for some reason. I think because this was the first time I ever saw that many of our mm family together in one picture, it just touched me so. How far you've come Deej... you gotta feel proud. Smiley
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DJ
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Re: Moyamoya picture page! (updated)
Reply #21 - Jun 14th, 2004 at 1:40pm
 
Added new pictures of Kyle & Chloe!

http://www.moyamoya.com/mmfamily/index.html
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Nancy_N.
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Re: Moyamoya picture page! (updated)
Reply #22 - Jun 14th, 2004 at 5:23pm
 
How gorgeous is that Cloe she is adorable, look out mom and dad when she gets older. What a cutie.
                        Nancy
                             
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DianeMain
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My sister, PatM, has moyamoya.

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Re: Moyamoya picture page! (updated)
Reply #23 - Jun 17th, 2004 at 1:04am
 
Okay, I just HAVE to ask.  Are those the real members of KISS there with Timothy in his picture?!?!?!

Diane
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CarasMOM
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Re: Moyamoya picture page! (updated)
Reply #24 - Jun 23rd, 2004 at 12:55am
 
DJ

How can I send you a picture of Cara ?  I don't have a scanner or digital camera...but have TONS of photos...Smiley

Thanks,

Carol
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Warm Hugs and Prayers, CarasMOM (Carol)
 
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