I'm wondering if anyone has experienced unexplained pain after a moyamoya-induced stroke.  My daughter Jessica has started having severe pain, after having been relatively pain free for several years.  Her stroke was in '95, then in 2000 she suddenly developed excruciating pain which could be in many different places.  Sometimes very small areas, such as the back of her hand or somewhere on her leg, or perhaps her head and face.  Sometimes it would be the whole length of an arm or a leg, but usually just on one side, probably following the path of a nerve.  There never was much of a pattern to when it would flare up that we could determine, and we couldn't identify anything that made it worse or better.  Eventually she went on very powerful narcotics to control the pain, and she took them for about 16 months.  Then suddenly the pain went away about three years ago, Feb of 2002.  She happily stopped the drugs, and has done pretty well.  Now the last week or so it seems like it's starting again, pretty much the same way as it did before.  She went through all kinds of tests the last time, and all the scan/angio results were the same -- scans showed severe moyamoya, multiple small infarcts, old very large stroke, status post craniotomy, etc.  But none showed any real change in her brain or vascular anatomy, and certainly nothing to explain the symptoms.  We were just so grateful when the pain left, and were hopeful that it wouldn't return.  Has anyone else experienced this, and if so, what have you done about it? 
Thanks, Jennette