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Aphasia and strokes (Kelmo) (Read 2067 times)
Rena
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Hi, My son Tyler was diagnosed
with MM in 2003

Posts: 467
, Colorado, USA
Gender: female
Aphasia and strokes (Kelmo)
Mar 1st, 2005 at 8:44am
 
Aphasia is the inability to process words. It affect a lot of people after a stroke at different levels. Have the therapist and doctors done testing to make sure nothing physical is causing the speech problems? Does your daughter comunicate by any other method?

With Aphasia the worse thing is knowing the person has the thoughts and intelligence, just not able to process written or verbal language at the normal level. As you can see many people on here have suffered it to some degree after their stroke. My son still has mild problems with it, two years post stroke. By what I have learned about it, the best thing for people with more sever cases, is to talk in short sentences and start with yes and no questions to make sure they are understanding what is being said.

I am not a doctor or therapist, just a mom that has dealt with this. MM is bad enough to have to deal with but, when it effects the ability to communicate it makes everything even more scary. I will pray for your daughter and family. 

Rena
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I've learned to never underestimate the impossible. -Blake Sheldon-&&There are no failures, just options tried. -Thomas Edison-&&
http://www.facebook.com/wldrtst?v=wall&story_fbid= oneofakindco  
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janicetedd
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Sister - Patty w mm

Posts: 221
Waterford, MI
Gender: female
Re: Aphasia and strokes (Kelmo)
Reply #1 - Mar 1st, 2005 at 9:02am
 
Have you considered sign language.  It is fun and pretty easy to learn,  the whole familly can join in.  I believe Cara's mom uses sign language.  Three fingers up to the chin (forms a W) which means water. 

Worth a try

Janice
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mg12061
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Albany, USA, usa, 492, 84, NY, New_York
Gender: female
Re: Aphasia and strokes (Kelmo)
Reply #2 - Mar 1st, 2005 at 10:35am
 
Kathleen has a real hard time forming sentences.This is something we ahve been working on.After her stroeks she lost most of what speech she had.Her speech was quite delayed before the strokes because of the down Syndrome.We had to start back at square one.She worked on sounds then small words then by last year we worked on multi syllable word.She's come a long way and is putting a lot of words together,but still has a hard time making a sentence. We've had to feed her the words to go from one word to 3-6 word sentences.I use familiar pictures to get her to come up with a longer thought and put it together.She will say a snetence out of order and when I say it back she knows it's wrong.Reading is helping her speech a lot.It helps with the correct pronunciation(sp?) and with the language to put a whole thought together.I sometimes "cue her" by holding up my fingers to count the words,if she really is struggling I help her fill in the blanks, and make her repeat it back to me.Now she holds up her own fingers and counts her words, she's sooooo proud when she gets 4-5 .I think everyone chalks it up to the Down Syndrome(word retrieval is a common problem in down syndroem)  but I imagine it has a lot to do with the strokes.It seems like this is a very common problem.I read something that explained how this feels...Your brain is full of "baskets" with words and thoughts and memories.Typically you will have the same word in many baskets,like pumpkin, may be in a basket with holidays,halloween,pie,orange etc. but with Down Syndrome( and anyone with this speech problem) it may only be in one basket, say... halloween this makes it harder to "find" BUT if you can talk about it till you help them find the right basket it helps, also offering many different experiences and conversations around it it will help store it in other "baskets" for future recolection.Ihope this makes a little sense.... It helped me understand what she may be going through and help me to find the patience to help her through it. This also may be why reading helps her,it gives her a lot of"experiences" in language that she may otherwise not get.We also did some signing when she was little it helped her soooo much and was pretty easy to learn some basics.She loved it too. She actually used some right after the strokes.
Mary Grace
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kelmo
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Sicklerville, USA, usa, 494, 125, NJ, New_Jersey
Gender: female
Re: Aphasia and strokes (Kelmo)
Reply #3 - Mar 2nd, 2005 at 10:14am
 
Kelsey doesn't seem to have anything physical causing this inability to talk except the neurological damage caused by the stroke.   She does understand everything.  But has other neurological damage so can't use sign language yet/  we do hold up cards yes/ no, kind of pain, what do you want to do ect.    we are hopeful speech will come back one day?
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« Last Edit: Mar 2nd, 2005 at 12:12pm by kelmo »  
 
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Rena
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Hi, My son Tyler was diagnosed
with MM in 2003

Posts: 467
, Colorado, USA
Gender: female
Re: Aphasia and strokes (Kelmo)
Reply #4 - Mar 3rd, 2005 at 12:26am
 
That was what I thought. Sign language won't help with Aphasia because you still need to be able to recall the words to sign them. Just keep up what you're doing sounds like you have good doctors and therapist helping you. I will keep your family in my prayers.
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I've learned to never underestimate the impossible. -Blake Sheldon-&&There are no failures, just options tried. -Thomas Edison-&&
http://www.facebook.com/wldrtst?v=wall&story_fbid= oneofakindco  
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