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moyamoya awareness month (Read 2920 times)
teetee
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My 5 year old daughter,
Breanna

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Humboldt, USA, usa, 285, 148, NE, Nebraska
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moyamoya awareness month
Mar 3rd, 2005 at 3:14am
 
What do you think of pin-pointing a month and making it moya moya awareness month, and everyone can go to their local newspapers and put a catching title to grab viewers attention to read about mm???  Maybe someone could write the article and we all can use the same article?  I was noticing how everyone in the mm family lives in different parts of the states.  This could be a start to something.....Any ideas?     Undecided
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Seachelles
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Fredericksburg, USA, usa, 474, 157, VA, Virginia
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Re: moyamoya awareness month
Reply #1 - Mar 3rd, 2005 at 5:11am
 
I certainly would volunteer to write the article.  But if someone else would like to do it, then that is fine, too. 

Michelle
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Michelle
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Rena
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Hi, My son Tyler was diagnosed
with MM in 2003

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Re: moyamoya awareness month
Reply #2 - Mar 3rd, 2005 at 8:35am
 
Great idea! How would we pick the month? I could help with editing.
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teetee
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My 5 year old daughter,
Breanna

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Humboldt, USA, usa, 285, 148, NE, Nebraska
Gender: female
Re: moyamoya awareness month
Reply #3 - Mar 3rd, 2005 at 9:14am
 
I don't know but perhaps a SPRING month.  Like April or May.  Spring time reminds me of new beginnings.  What a beautiful season!  May would give us more time to prepare and be ready?  I just know people need to know about mm.
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mg12061
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Albany, USA, usa, 492, 84, NY, New_York
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Re: moyamoya awareness month
Reply #4 - Mar 3rd, 2005 at 9:33am
 
   Sounds great.I believe May is pediatric stroke awareness month. At least I know of a group who has been trying to get this passed. We would need to write to local and federal govenment officials I believe.
Mary Grace
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Seachelles
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Re: moyamoya awareness month
Reply #5 - Mar 3rd, 2005 at 9:36am
 
Oh that is good Mary Grace.  I believe you are right in the fact that we would have to go to the government for this.  I'm glad you thought of that. 

Michelle
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Michelle
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emma
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2004

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melbourne, Australia, VIC, Victoria
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Re: moyamoya awareness month
Reply #6 - Mar 3rd, 2005 at 4:44pm
 
I;m from Melbourne Australia and I would love to something over here as it is very rare for someone to have MM over this side of the world.

Emma
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ariannasmommy
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^i^Angel Arianna^i^

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Re: moyamoya awareness month
Reply #7 - Mar 8th, 2005 at 8:40pm
 
This is such a wonderful idea.  I wouldn't know where or who to write to.  If anyone finds this information, lemme know and I'll jump on this as well.
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Tammy Carter
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