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Moyamoya.com Forum › Moyamoya Related Topics › Moyamoya Related Information and Support › MM and Sex

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MM and Sex (Read 6096 times)

Shanna

New Poster

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Happy to find this place.

Posts: 14
Culver City, USA, CA, California
Gender: female

MM and Sex
Mar 9^th, 2005 at 5:07pm

Hi everyone

I'm looking to see if anyone has had the same experience as me- Smiley

Sometimes during sex i will experience my leg shaking or weakness on one side...accompanied by a fuzziness in my head. Still, it passes after a couple minutes.

Sometimes after sex- i will experience a severe visual aura...and i cannot see all the way- almost like i am looking through a cracked mirror. It lasts for hours...recently this is a symptom i am experiencing around 20 minutes after i have had sex. I have trouble walking because i seem to have no depth perception. My vision and orientation are messed up, but i experience no pain. I usually get this same type of visual aura with my migrane headaches- but this feels a little different.

is this moyamoya related, or just a migrane?
Has anyone (particularly any women) had this too???

Thanks

Shanna

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nikki Experienced Poster Offline My Mom has MM Posts: 195 southside, USA, usa, 396, 219, AL, Alabama Gender:	Re: MM and Sex Reply #1 - Mar 11^th, 2005 at 3:09am Hey, you may have already answered this question, but I haven't been on in a while. Have you already had surgery? Have you consulted your doctor about any of this? In my opinion, I would think that it could be mm related since sex raises heart rate and so forth. I would definately talk to your doc about it.
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Shanna

New Poster

Offline

Happy to find this place.

Posts: 14
Culver City, USA, CA, California
Gender: female

Re: MM and Sex
Reply #2 - Mar 15^th, 2005 at 12:59am

hi there

no, i haven't had surgery. this month i need to have the spect test done...and then we should have a discussion about surgery. UCLA and KAISER seem to disagree about which surgical procedure should be done on me.

anyway, i always mention the symptom to the doctors and no one seems super concerned by it... i wondered if anyone else had experienced it, especially the weird eye site....

thanks for the reply

Shanna Wink

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Becky

Old-Time Poster

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Stroke10/03, Diagnosed6/04,
Unilateral Surgery9/04

Posts: 532
Minneapolis, USA, usa, 303, 84, MN, Minnesota
Gender: female

Re: MM and Sex
Reply #3 - Mar 15^th, 2005 at 3:59pm

Shanna,
I believe what you are experiencing is elivated blood pressure, that causes you to have these migeaine like symtomes. Sorry for my spelling. I get the same way after I work out too hard at the gym or when my husband gets to wild in bed, to some degree. You seem to have it as bad as I had it before my surgery. My sugestion is when you start feeling funny ask your lover to take it slow and give you a breather untill your blood pressure comes down. Then you can go back into it. Your partner may not like the pausing but if you don't like having those feelings then that might help you stablize yourself enough to truely enjoy sex without the after-pain. I still get woosy and some times doulbe vision but as soon as I feel like I can't lift my head up I just slow down and\or stop and rest then get back into the work out or sex. You can still get the Full enjoyment it just may take a bit longer to "finish" with all the pausing but it will be worth it not to have the migeaines afterword.
Good luck.
Becky

« Last Edit: Mar 15^th, 2005 at 4:02pm by Becky »

What doesn't kill us, makes us stronger. And sometimes leaves a cool looking scar. STA-MCA bypass and EMS Surgeries done at same time at the Mayo clinic

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daisy

Junior Poster

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I've had MM 4-ever & didn't
know it. Still here!

Posts: 70
Augusta, USA, usa, 461, 137, WV, West_Virginia
Gender: female

Re: MM and Sex
Reply #4 - Mar 16^th, 2005 at 2:11am

Shanna,

I, too went through very similar symptoms as yours. But, I actually passed out afterwards. Lost all consciousness. My then, husband...would joke and say he wore me out. Which, according to my neurologist, he did just that.
Prior to my surgery, it was recommended by my neurologist to postpone sexual activity until after my surgery and follow up. In my situation, it was told to me that I was pumping blood to other parts of the body, my breathing became shallow, therefore, MY brain was getting very little blood or oxygen.
Just my two cents. lol, I am now separated and going through a divorce, so I don't need to worry about this particular part of this illness.

Lee

Lee Timbrook

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tomg

Experienced Poster

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West and wewaxsation at
wast. What I crave.

Posts: 216
HowellNJ, USA, usa, 499, 119, NJ, New_Jersey
Gender: male

Re: MM and Sex
Reply #5 - Mar 24^th, 2005 at 2:25pm

Hi all I haven't been on in a while but all I can say is please be careful. I suffered a major stroke immediately following sex. I'm a male and 46 at the time. I met another MM sufferer online who is female and she suffered a major stroke during sex. We've become good e-mail and phone friends but she wont get involved with our web site here.
The neurosurgeon that first diagnosed my MM said that sex really raises your BP. He even asked if I was having an affair because that will sky rocket your BP so all Moyamoyaers remain faithfull! Smiley

. My friend was actually instructed by her doctor to take her BP med 2 hours before sex Smiley

. I should also mention that I was completely unaware that I even had MM. My stroke was my first and only symptom. I would see my doctor if I were you.
Stay healthy

Tom G. Roll Eyes

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Nancy_N. Old-Time Poster Offline My daughter Mandy Has Moyamoya Posts: 664 Jasper, USA, usa, 436, 230, GA, Georgia Gender:	Re: MM and Sex Reply #6 - Apr 2^nd, 2005 at 10:53am On a light note....2hrs. before so much for being spontaneous!
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Seachelles Old-Time Poster Offline God never gives us more than we can handle. Posts: 681 Fredericksburg, USA, usa, 474, 157, VA, Virginia Gender:	Re: MM and Sex Reply #7 - Apr 2^nd, 2005 at 11:07am LOL Nancy! Isn't that the truth!
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