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DJ YaBB Administrator Offline Been there, done that... Posts: 721 Wichita, KS Gender:	Article in the New York Times! Mar 29^th, 2005 at 5:51am Just noticed the article from Denise Grady from the New York Times just published. Here's the link: http://www.nytimes.com/2005/03/29/health/29moya.html You have to register, but it's free. I haven't even read it myself yet, just wanted to get it up here real quick... More to come. DJ
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DJ YaBB Administrator Offline Been there, done that... Posts: 721 Wichita, KS Gender:	Re: Article in the New York Times! Reply #1 - Mar 29^th, 2005 at 6:26am WOW! What a wonderful article! Finally, some national attention for moyamoya!! Hopefully, this will create a buzz in the media all over the country! Incredible... You go Kathleen!! DJ
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Seachelles Old-Time Poster Offline God never gives us more than we can handle. Posts: 681 Fredericksburg, USA, usa, 474, 157, VA, Virginia Gender:	Re: Article in the New York Times! Reply #2 - Mar 29^th, 2005 at 7:01am This is great! Wonderful article. Michelle
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Seachelles Old-Time Poster Offline God never gives us more than we can handle. Posts: 681 Fredericksburg, USA, usa, 474, 157, VA, Virginia Gender:	Re: Article in the New York Times! Reply #3 - Mar 29^th, 2005 at 7:27am If you all haven't picked up the New York Times yet, I suggest you do so. The article made it on the front page of the health section. And there are pictures that took up more than half of the front page! This is absolutely excellent! Thanks Kathleen! Michelle
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Mar Ex Member	Re: Article in the New York Times! Reply #4 - Mar 29^th, 2005 at 7:51am Many tears here! This is a long time coming and an excellent article. WTG Kathleen! This may save lives!! Thanks Deej! Made my day! Mar
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Chelsie Experienced Poster Offline Posts: 127 Columbus, USA, usa, 418, 135, OH, Ohio Gender:	Re: Article in the New York Times! Reply #5 - Mar 29^th, 2005 at 8:40am What a fantastic article!!! This is wonderful!
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CarasMOM

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My 11 year old Cara has
MM.

Posts: 525
Sedalia, Missouri
Gender: female

Re: Article in the New York Times!
Reply #6 - Mar 29^th, 2005 at 9:33am

So good to see the article as I was wondering how Kathleen was doing....last we heard from her was "she was on her way to Stanford". Jill (gotchlorine) did say she talked with her sister on the phone and that Kathleen was doing well but I was praying that all was okay with her. It is a great article...no doubt and won't be long before one of the TV shows does its story about it. Thanks DJ for posting it.

CarasMOM

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Warm Hugs and Prayers, CarasMOM (Carol)

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mg12061 Old-Time Poster Offline Posts: 946 Albany, USA, usa, 492, 84, NY, New_York Gender:	Re: Article in the New York Times! Reply #7 - Mar 29^th, 2005 at 9:54am Thanks DJ! Great article. Thanks Kahtleen! I sent the link to a coupkle friends. Mary Grace
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gotchlorine

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Our daughter, Tara, lives
with MM

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San Jose, USA, usa, 24, 158, CA, California
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Re: Article in the New York Times!
Reply #8 - Mar 29^th, 2005 at 5:07pm

Hey guys,

I feel like I've missed out on an entire day of celebrating with everyone! Saw the article first thing this morning, but had to attend a funeral today, so have been out for several hours.

All I can say is "wow"! What an amazing write-up! As Michelle suggested, get a copy if you don't have one - the pictures are great! And Denise did a bang-up job of writing the article. I'm excited at the ripple effect this could have, and the education it will bring to so many people. If it helps even one person get treatment before a devastating event, it will have been worth it!

Hugs to y'all!

Jill

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jenna New Poster Offline If life keeps kicking you in the head geta helmet Posts: 13 eugene, USA, usa, 38, 85, OR, Oregon Gender:	Re: Article in the New York Times! Reply #9 - Mar 29^th, 2005 at 8:00pm The article in the New York times ROCKS!!! this is awesome national attention!!!! And way to go again and as usual DJ you help so many people seriously!! ;
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DJ

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Been there, done that...

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Wichita, KS
Gender: male

Re: Article in the New York Times!
Reply #10 - Mar 29^th, 2005 at 9:22pm

For those of you who didn't have a chance to see the article, we didn't just get an article in the New York Times... we got a 1/2 page, FRONT PAGE article in the Health/Science section! I was able to round up a few copies for myself today. Here's what it looked like...

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

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Adversity does not build character... it reveals it... I help my neighbor and my neighbor helps someone else. Life is a wonderful circle!

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babyblue Senior Poster Offline Diagnosed 2003 Posts: 306 kennesaw, USA, usa, 417, 219, GA, Georgia Gender:	Re: Article in the New York Times! Reply #11 - Mar 29^th, 2005 at 10:25pm I thought the article was wonderful! Glad to get some MM attention especially good attention! Christy
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Lora New Poster Offline My niece has MM Posts: 9 Springfield, USA, usa, 350, 141, IL, Illinois Gender:	Re: Article in the New York Times! Reply #12 - Mar 29^th, 2005 at 11:25pm GREAT article~ Thanks for letting us know about it DJ!! Lora
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Seachelles Old-Time Poster Offline God never gives us more than we can handle. Posts: 681 Fredericksburg, USA, usa, 474, 157, VA, Virginia Gender:	Re: Article in the New York Times! Reply #13 - Mar 30^th, 2005 at 6:43am Just wanted to let everyone know that the New York Times article from yesterday was also picked up in the following newspapers: Wilmington Morning Star in Wilmington, NC Spartanburg Herald Journal in Spartanburg, SC Michelle
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Nancy_N. Old-Time Poster Offline My daughter Mandy Has Moyamoya Posts: 664 Jasper, USA, usa, 436, 230, GA, Georgia Gender:	Re: Article in the New York Times! Reply #14 - Mar 30^th, 2005 at 8:42am Unbelievable!!!!!!!!!!!! They even gave the correct info. This makes me cry its finally happening it has to have a snowball affect its already spreading, I am so thrilled I could scream. AWESOME!!!!! Nancy
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Rena Senior Poster Offline Hi, My son Tyler was diagnosed with MM in 2003 Posts: 467 , Colorado, USA Gender:	Re: Article in the New York Times! Reply #15 - Mar 30^th, 2005 at 10:10am This is GREAT news! And I see it is already bringing people to the site. The number of lives that can be helped by this artical is Wonderful!
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STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: Article in the New York Times! Reply #16 - Mar 30^th, 2005 at 1:42pm This is SO, SO, SO Awesome!!! [smiley=sayyes.gif]!!! (Maybe Oprah will pay attention now!) -Shari
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mark

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I love YaBB 1G - SP1!

Posts: 86
cato, USA, usa, 468, 87, NY, New_York
Gender: male

Re: Article in the New York Times!
Reply #17 - Mar 30^th, 2005 at 6:51pm

WONDERFUL,
My attorney gave it to me. He didn't know what he was reading. We just started talking of my family and the disease and he looked at me in amazement. Said hold that thought and went to his car to get the article. He was mesmorized as he read the article. It just caught his attention. We said at the same time who would have ever thought that there was something as rare as this and then to meet someone who has encountered it in a very small town.
My first 2 calls went to the doctors that first saw Mark.
I think we should all send 10 or 20 copies to doctors and news stations. Any thoughts.
DJ this site has brought all of us together in a strange sad way. But thanks, and thanks to everyone who stays together on this site. It is great news and hopefully many many people will benefit. Doctors need to know!
Ron

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CarasMOM

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My 11 year old Cara has
MM.

Posts: 525
Sedalia, Missouri
Gender: female

Re: Article in the New York Times!
Reply #18 - Mar 30^th, 2005 at 7:18pm

Thanks DJ....for putting it online in photo !!!!...the picture looks GREAT....but the title in my opinion is definitely EYE CATCHING !!!! Perfect choice of words..wow..wow....almost a perfect T-shirt line, too. And...of course I didn't get to run out to the local Borders Bookstore to get my copy....I had to squint tightly to read the line under the picture...made me cry...the one of Kathleen going off to surgery and her hubby wiping tears away...I remember my feeling when I went in the operating room with Cara...all the machinery, equipment...and kissing her goodbye after they put her out.

CarasMOM

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Warm Hugs and Prayers, CarasMOM (Carol)

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Seachelles

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God never gives us more
than we can handle.

Posts: 681
Fredericksburg, USA, usa, 474, 157, VA, Virginia
Gender: female

Re: Article in the New York Times!
Reply #19 - Mar 30^th, 2005 at 7:19pm

Hi Mark!

I've already sent the article and a link to this website to the Washington Post, our local paper here in Fredericksburg, VA, a paper back where I'm from in Harrisonburg, VA and the local ABC affiliate in Washington, DC - WJLA. Haven't heard back from any of them yet. I'm also working on some other coverage with some friends I have that work at tv stations or newspapers.

Michelle

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Michelle

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Seachelles Old-Time Poster Offline God never gives us more than we can handle. Posts: 681 Fredericksburg, USA, usa, 474, 157, VA, Virginia Gender:	Re: Article in the New York Times! Reply #20 - Mar 30^th, 2005 at 10:11pm The New York Times article was picked up 8 hours ago in the International Herald Tribune out of France. Michelle
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AndyMac New Poster Offline Emily's Dad Posts: 20 London, United_Kingdom, europe, 183, 232 Gender:	Re: Article in the New York Times! Reply #21 - Apr 4^th, 2005 at 6:29pm Published in the International Herald Tribune here in the UK too - great international coverage! AndyMac
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triciab New Poster Offline My daughter, Amanda, has moyamoya. Posts: 28 Hanmer, Canada, canada, 381, 398, ON, Ontario Gender:	IRe: Article in the New York Times! Reply #22 - Apr 4^th, 2005 at 8:36pm DJ: Thanks for posting this article, it is wonderful. Amanda has an appointment with her surgeon next Monday, at the Hospital for Sick Children in Toronto, I am going to bring a copy for him to read. I don't think we can buy the New York Times where I live. Tricia
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mark Junior Poster Offline I love YaBB 1G - SP1! Posts: 86 cato, USA, usa, 468, 87, NY, New_York Gender:	Re: Article in the New York Times! Reply #23 - Apr 4^th, 2005 at 9:16pm Hi all, I picked up a bunch of the NY Times and will take them to Stanford at the end of this month. Mark has his 3 month checkup. I also took the article to a document center and had it laminated. It should look pretty good when we walk into Dr. Steinbergs office! Ron
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PatM

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Woodcliff Lake, USA, usa, 498, 109, NJ, New_Jersey
Gender: female

Re: Article in the New York Times!
Reply #24 - Apr 5^th, 2005 at 9:06am

Tricia

In order to get a reprint of the NY Times Article, you can go to NewYorkTimes.com, register for free and , for a small fee, you can access a reprint. The Times only leaves the articles on file for 7 days; unfortunately, I was away and did not see the article until late Sunday night (APril 3rd) (my dentist left a message for me on voice mail). I wanted to reprint the article, but by Monday morning, it was in the archives........Good luck with your visit to the doctor next week.....our prayers are with you........God Bless you and your family, Pat

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"A life is not important except in the impact it has on other lives."...Jackie Robinson&&Worry looks around....Faith looks up......

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