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Las Vegas MM Summer Get-Together (Read 91929 times)
Mar
Ex Member


Re: Las Vegas MM Summer Get-Together
Reply #25 - May 5th, 2005 at 6:44pm
 
Smiley Reservations are made, and the plane ticket is purchased. Viva Las Vegas!!

Hey, if this old fart can handle the heat, anyone can. Now get on the ball and start making plans everybody. Let's make this a great turn out!  Smiley I can't wait!

Looking forward to meeting you all.

Mar
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jenanshanesmom
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Palm Springs, USA, usa, 55, 203, CA, California
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Re: Las Vegas MM Summer Get-Together
Reply #26 - May 8th, 2005 at 12:11pm
 
My husband, I and two kids are coming.  If you need anything, please tell me.  I can help.  I am not teaching over the summer so I am free.  If not see you in August.

Paula
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pattil647
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Langhorne, USA, usa, 484, 119, PA, Pennsylvania
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Re: Las Vegas MM Summer Get-Together
Reply #27 - May 9th, 2005 at 10:07am
 
Will any children with MoyaMoya be attending?  My 10 year old son has MoyaMoya and I think it would help him to see other children with MoyaMoya.  I also have a 5-year old without MoyaMoya -- will there be any little children around her age going?  I'm from PA so this will be a long trip for us if we decide to go..

Thank you for arranging this!
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Nancy_N.
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My daughter Mandy Has
Moyamoya

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Jasper, USA, usa, 436, 230, GA, Georgia
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Re: Las Vegas MM Summer Get-Together
Reply #28 - May 14th, 2005 at 9:16am
 
Pattil647,
                I didn't realize thats where you were from, my daughter Mandy the one with MM was from Fairless Hills when she had her strokes, we took her to Hup for diagnosis in Philly, I am from Croydon, I guess I never realized it before that you live in Langhorne.
                                  Nancy
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hillary
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My daughter Holly has
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new braunfels, USA, usa, 279, 285, TX, Texas
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Re: Las Vegas MM Summer Get-Together
Reply #29 - May 15th, 2005 at 11:24pm
 
i'm asking at work tomorrow if i can get off friday so i can come out thurs through sat or sun.  not sure if holly will come or not, but i definately want to be there.  will let you all know

hillary
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itsme
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Re: Las Vegas MM Summer Get-Together
Reply #30 - May 16th, 2005 at 1:50am
 
Hi...I am new on this site...just couldn't figure how to use this lap top...my name is "itsme". Any way I do plan to meet my MM family. I've emailed DJ a few times to ask him more questions about MM. Not to mention I was diagnosed 8 years ago and I think I better "smell the coffee" now, I was in denial because I really didn't know how SERIOUS it really was. I've been going to UCLA for yearly angiograms and the last one I recieved MM has caught up with me. To make a long story short, I decided to get one more opinion (before I came to my senses) and I went to Stanford this month and saw Dr. Steinberg....
he mentioned my MM was about 8 ( 10 ) being the worst.

So, no time wasted, I am scheduled for surgery 6/21st.
Although UCLA is great, the confidence Dr.Steinberg and his nurse Teresa and the office showed was wonderful.
I felt if any one can do it "right", it's Dr. Steinberg. Being that I've been a Diabetic since 12 was a factor that delayed my decision, but now "it's all good."

I am scared too, but I want to keep all of you posted so,I
can share my POSITIVE experience with all of you.

Again, thank you for hearing me out and organizing this
gathering. I would love to share my story with all of you and at the same token learn about others.

When I went on the internet 8 years ago there wasn hardly
nothing on MM. Thanks to DJ and everyone who is out there sharing, we know "we aren't alone."

Have a great week....again thank you!

LOL
itsme
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Jim
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Re: Las Vegas MM Summer Get-Together
Reply #31 - May 16th, 2005 at 3:26pm
 
It's been a while since we checked the site.  I want to thank all of you who answered our questions back in December when Christy had her surgery.  I finally got Christy joined up as a member.  Vegas sounds like fun!  It will be nice to meet our mm friends! We are hoping to make it.
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Mar
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Re: Las Vegas MM Summer Get-Together
Reply #32 - May 16th, 2005 at 4:24pm
 
Hi itsme, Smiley

Welcome to our mm family! Thank God you sought help when you did, you're very fortunate. I certainly can understand you being scared though, but I gotta tell ya, you've got so much on your side. You're in the best hands in the world, IMO. If I were to ever need brain surgery, there's no other hands I'd put my life into than Dr Steinberg, he's a leading mm specialist and the best there is, in my book. He saved my niece's life. And don't forget, you have "us", your mm family, for support and friendship every step of the way. What a wonderful group of people.

Please know we'll be with you in spirit and in prayer, so try not to worry... You have the best doctor in the world and all our prayers... you just can't get better than that. Smiley

Please feel free to ask any questions, big or small, and keep us posted.

Mar


As an added thought... You may wanna post under the
Moyamoya related information and support section
you would probably get more of a response from people who've been through what you're going through. This
Daily jibber jabber section
is where we talk about non related mm stuff, and I wouldn't want anyone to miss your post. Smiley

Again, so happy you found us. Smiley
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« Last Edit: May 16th, 2005 at 4:39pm by N/A »  
 
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Cotadad
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My son, Kota, has MM

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Re: Las Vegas MM Summer Get-Together
Reply #33 - May 16th, 2005 at 9:12pm
 
Many thanks to Michelle, Shari, DJ, and everyone who has been working for this gathering.  This is an awesome planning.

Just let you all know, we have booked Circus Circus and round trip flights for Friday through Sunday.  Kota (10yrs, w/MM), his sister (6yrs, without MM so far), and parents are going with MM.com wrist bands.  We look forward to seeing all of you at Flamingo. ;Grin

Cotadad
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hillary
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Re: Las Vegas MM Summer Get-Together
Reply #34 - May 16th, 2005 at 10:32pm
 


hello everyone,

we looked at prices for all of us to go, but it was very expensive.  so this time, i will be the only one coming, i'll be there wed through sunday morning and staying at the stratosphere.  can't wait to see you all

hillary
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Re: Las Vegas MM Summer Get-Together
Reply #35 - May 17th, 2005 at 8:39pm
 
Hoping to be able to come to Vegas this summer.  We were thrilled that it is relatively close for us, as we can drive.  So we may be able to manage it.  Jessica is so excited just to meet other people who even know what moyamoya is!  Will be looking into reservations at the Flamingo.  Thanks for arranging this--what a great idea.
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Re: Las Vegas MM Summer Get-Together
Reply #36 - May 20th, 2005 at 12:20am
 
OK! Linda and I have booked our flight and hotel in Las Vegas!
We'll be staying a week starting Tuesday at the Stratosphere.
Booked through Southwest Airline Vacations - thanks Hillary!
Looking forward to seeing everyone who can make it there.

Jack and Linda
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Seachelles
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Re: Las Vegas MM Summer Get-Together
Reply #37 - May 20th, 2005 at 12:53pm
 
Shari (STrantas) and I still need one roommate for the Las Vegas trip for Thursday, August 11th through Monday, August 15th.  If anyone is interested please let us know. 

Michelle
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Michelle
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hillary
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Re: Las Vegas MM Summer Get-Together
Reply #38 - May 20th, 2005 at 6:32pm
 
Your welcome Linda and Jack...can't wait to see you there

Hillary
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CarasMOM
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Re: Las Vegas MM Summer Get-Together
Reply #39 - May 25th, 2005 at 5:32pm
 
Hi Guys.....just booked room for Cara and myself (CarasMOM)...at CircusCircus...can't imagine a more exciting place for Cara.   We do have a full and unpredictable schedule this summer so anything could go wrong and we always seem to have to cancel...but for now Cara and I will be driving up to Vegas on Thursday the 11th and leave Sunday morning....will look forward to finally meet someone that has MM in person...and any family members that have been through this path....and to give DJ big HUG for putting this awesome website up, and to Michelle for putting this gathering together...did it so fast, making it easy for us to see all the choices in one spot.

Much HUGS,  CarasMOM
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Warm Hugs and Prayers, CarasMOM (Carol)
 
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Seachelles
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Re: Las Vegas MM Summer Get-Together
Reply #40 - May 29th, 2005 at 12:07pm
 
Hi everyone!   Smiley

Just wanted to give an update to everyone of those that I have confirmed going to Vegas so far.  They are:
  • Michelle (Seachelles)
  • Shari (STrantas)
  • DJ
  • Rena
  • Mar
  • Paula (Jenanshanesmom) + Family (3)
  • Jaredsis2 + Family (2)
  • Maka4868 + 1
  • Hillary
  • Cotadad + Family (3)
  • Jack & Linda
  • Christy (Babyblue) + Mom
  • Carol (Carasmom) + Cara
  • Jill (Gotchlorine) + Family (Campbell & Tara)
  • Elaine
Remember.....if you end up making your reservations, please let me know by either PM or on this forum that you will be coming and how many will be coming with you.

Thanks,
Michelle
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« Last Edit: Jul 5th, 2005 at 12:21pm by Seachelles »  

Michelle
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Rena
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Hi, My son Tyler was diagnosed
with MM in 2003

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Re: Las Vegas MM Summer Get-Together
Reply #41 - May 29th, 2005 at 12:22pm
 
Well so far I just might be driving down for a day. Unfortunately Tyler won't be with me  Embarrassed . He's spending the summer in OH with my family and won't be back in time. However, I really want to meet y'all and just thank you face to face for all the help.

Rena
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I've learned to never underestimate the impossible. -Blake Sheldon-&&There are no failures, just options tried. -Thomas Edison-&&
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Seachelles
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Re: Las Vegas MM Summer Get-Together
Reply #42 - May 29th, 2005 at 12:26pm
 
Rena,

I fixed it up above.  Smiley   I sure wish Tyler was going to be able to make it, but I understand.

Michelle
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Michelle
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Seachelles
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Re: Las Vegas MM Summer Get-Together
Reply #43 - May 31st, 2005 at 5:01pm
 
Hello everyone!

Those of you that are going to Las Vegas in August,
MARK YOUR CALENDARS.

We will be having a group dinner on
  Friday, August 12th
at
Margaritaville
located in the
Flamingo Las Vegas
at 3555 Las Vegas Blvd South.  The dinner will be held at
6:30 p.m.
and we will meet in the common suite which is Shari (STrantas) and my (Seachelles) suite.  This will be our one meal as a group as the rest of the meals will be on your own.  If there is some interest in having a breakfast as a group, please let me know.

For the adults that are interested, we will go to the
New York, New York
hotel to
The Bar at Times Square
for the dueling pianos show after dinner.  And for the late owls....well there's tons of things to do and open until the wee hours of the morning.    

Michelle  
 
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« Last Edit: May 31st, 2005 at 7:31pm by Seachelles »  

Michelle
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itsme
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Re: Las Vegas MM Summer Get-Together
Reply #44 - May 31st, 2005 at 5:24pm
 
Thanks for all your hard work. I will be there at the dinner....is it on August 13th Saturday? I'm going to make my own hotel arrangement but I will be there to meet all of you, hopefully. I plan to be there from Friday
8/12th till the 14th.

Thanks again.
itsme
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Mar
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Re: Las Vegas MM Summer Get-Together
Reply #45 - May 31st, 2005 at 5:32pm
 
Michelle,

What day is the group dinner??
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« Last Edit: May 31st, 2005 at 5:33pm by N/A »  
 
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Seachelles
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Re: Las Vegas MM Summer Get-Together
Reply #46 - May 31st, 2005 at 7:32pm
 
LOL!  Oops.....sorry about that, Mar and everyone.  I added the date in the original post.

Michelle
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Michelle
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CarasMOM
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Re: Las Vegas MM Summer Get-Together
Reply #47 - Jun 1st, 2005 at 1:44am
 
Michelle....how many are coming so far ???  Smiley CarasMOM
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Warm Hugs and Prayers, CarasMOM (Carol)
 
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Seachelles
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Re: Las Vegas MM Summer Get-Together
Reply #48 - Jun 1st, 2005 at 10:06am
 
Carol,

I have a count of 29 so far counting you and Cara.  There is a post on page 3 of this forum where I showed a head count of those that I have confirmed as going. 

Michelle
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Michelle
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Re: Las Vegas MM Summer Get-Together
Reply #49 - Jun 28th, 2005 at 1:53pm
 
I just wanted to say I AM Going to Via Las Vegas and am looking Forward to Meeting everyone with MM. I will be staying at Circus Circus.
elainecalvert@aol.com Cheesy Roll Eyes
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Elaine
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