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I have MM, My MoM was just diagnosed too with MM (Read 2342 times)
riosdallas
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Posts: 63
Templeton, USA, usa, 510, 83, MA, Massachusetts
Gender: female
I have MM, My MoM was just diagnosed too with MM
Apr 24th, 2005 at 9:48pm
 
I was diagnosed with MM in January 2005,
My mother was just diagnosed with MM last week.
The Dr. did tell me that it was genetic. But, I wondered.
I was the first in my family. Wouldn't someone generations ago been diagnosed??? I would ask myself these questions denying the genetic theory.
One day not too long after getting out of the hospital from one of my episodes of Right sided numbness, and weakness, problems with my speech. My mother had explained to me that the symptoms that I had been getting over the years that she also experienced them.
I told her to tell her DR. this and she did. She explained my situation and her symptoms.
They began the testing and sure enough she was diagnosed with MM and had had 2 big strokes and didn't realize it . I am still in shock. That I was 33 yrs old  and my mother 53 yrs old and in 3 months of each other being diagnosed with the same rare brain disease.
The Drs. say that we are very interesting cases!!!!
  Just thought I would let you know it can be genetic. I found out the answer that I had questioned myself so many times about the way I didn't want to.
It just still amazes me.
                                       Thanks for your support!!!!!
                                        Lena
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Nancy_N.
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My daughter Mandy Has
Moyamoya

Posts: 664
Jasper, USA, usa, 436, 230, GA, Georgia
Gender: female
Re: I have MM, My MoM was just diagnosed too with
Reply #1 - Apr 25th, 2005 at 5:21pm
 
No kidding it amazes me too! How bizzare!
                    Nancy
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yoki
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Posts: 19
houston, USA, usa, 293, 288, TX, Texas
Gender: female
Re: I have MM, My MoM was just diagnosed too with
Reply #2 - Apr 25th, 2005 at 5:55pm
 
Just keep your head and remain steadfast 8). Know that we are all in this together ;Grinand you have friends to lean on when times are rough. Never give up!!!!!
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kotipup
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My daughter, Daphne, has
Moyamoya

Posts: 247
Landenberg, USA, PA, Pennsylvania
Gender: female
Re: I have MM, My MoM was just diagnosed too with
Reply #3 - Apr 25th, 2005 at 10:35pm
 
Wow.... that is pretty incredible.  My daughter was dx with moyamoya, and I have been thinking about whether or not her father and I should have MR angiograms.   Migrains and circulation problems run in my family on my mom's side.  My Dad has narcolepsy, which isn't moyamoya-related, but it's wierd because it's a pretty rare neurological disorder (my dad, by the way, was a circuit court judge, so it didn't exactly slow him down, although he gets quite a ribbing from his friends for his episodes of suddenly falling asleep - including in the court room -- LOL).  My husband also, in a previous marriage, had a daughter who passed away in infancy due to complications from prematurity (broncho-pulminary displasia).   

I guess this diagnosis makes you just wonder about things.  One observation about your mom's case, is that I don't think Moyamoya was even known about until the 60's (and it still isn't widely known about).   If you did have a family history, how would you ever even know it?

Jenny
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