Hi... I am not sure about polymiocitis and Moyamoya, but I would not be surprised, at all, if you found out the two were related.

My daughter also has a number of "rare" problems that seem to be moyamoya related.  First, she has a heart defect called coarctation of the aorta, where the aortic arch of her heart was thickened/narrowed (she's had surgery).  She also had a rare form of epilepsy, called infantile spasms, which probably was a result of the decreased blood flow to the brain.  She also has some unusual eye findings that we think might be moyamoya related.

I've seen research on moyamoya being an autoimmune disease, which could go along with the muscle inflamation.  Also, my daughter's doctors are investigating her elastin gene... mutations of this gene can cause a number of problems throughout the body.  So, whatever the pathology of your moyamoya... it could be the same pathology of your other health issues.

Jenny

This thread was created by my brother three years ago. He has since had a massive stroke and has been in a vegetative state for eight months.

gotchlorine wrote on Jun 14^th, 2008 at 3:46pm:
He had the same surgeries I had seven years ago, the EDAS I think, sorry my memory is bad, and his surgeon was Dr Ogilvy at Mass General. Prognosis isn't good, as far as ever regaining higher functions.