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Moyamoya.com Forum › Moyamoya Related Topics › Moyamoya Related Information and Support › Daphne's web page is up :)

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Daphne's web page is up :) (Read 4168 times)

kotipup Experienced Poster Offline My daughter, Daphne, has Moyamoya Posts: 247 Landenberg, USA, PA, Pennsylvania Gender:	Daphne's web page is up :) May 5^th, 2005 at 12:31pm Hi, everyone... I just wanted to let you know that I have finally posted Daphne's web page. It is still a work in progress, but if you want to check it out, go to: www.daphnestory.com If you find any mistakes (I'm sure there are tons!), or have any suggestions, I'd love to know. Thanks, Jenny
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Chelsie

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Posts: 127
Columbus, USA, usa, 418, 135, OH, Ohio
Gender: female

Re: Daphne's web page is up :)
Reply #1 - May 5^th, 2005 at 12:46pm

Jenny-
What an incredible job you've done with that website! I just read it from start to finish and of course, I'm sitting here crying! Daphne is an angel in every sense of the word....from her outer beauty to her fight and determination. Thank you for sharing her story with all of us. I pray that she improves with each passing day!
Chelsie

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Mar Ex Member	Re: Daphne's web page is up :) Reply #2 - May 5^th, 2005 at 2:13pm Ditto what Chelsie said, I couldn't have said it better. Outstanding job Jenny and your Daphne is absolutely precious! Please give her a hug from me.
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STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: Daphne's web page is up :) Reply #3 - May 7^th, 2005 at 9:43am Jenny - Great job! Daphne's website is wonderful! Daphne is beautiful! -Shari
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tomg Experienced Poster Offline West and wewaxsation at wast. What I crave. Posts: 216 HowellNJ, USA, usa, 499, 119, NJ, New_Jersey Gender:	Re: Daphne's web page is up :) Reply #4 - May 7^th, 2005 at 10:37am What a beautiful site but I have to say that Daphne is much more beautiful. You're a fighter too Jen so hang in there and keep praying and your little angel will be fine with a mom to be proud of. You're in my prayers. Tom G.
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Seachelles

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God never gives us more
than we can handle.

Posts: 681
Fredericksburg, USA, usa, 474, 157, VA, Virginia
Gender: female

Re: Daphne's web page is up :)
Reply #5 - May 7^th, 2005 at 2:10pm

Hi Jenny!

What a wonderful page you have put up for Daphne! She is such a beautiful little baby. I wish I would have been able to meet her and your family out at Stanford, but I know you were in good hands with the surgical team, Theresa, and Jill and her family. I just finished reading the whole website and was very interested in reading about Daphne's stay there. Truly amazing! I hope she continues to do well, show improvements, and amaze you everyday.

Smiley

from VA,
Michelle

« Last Edit: May 7^th, 2005 at 2:11pm by Seachelles »

Michelle

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Lora

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My niece has MM

Posts: 9
Springfield, USA, usa, 350, 141, IL, Illinois
Gender: female

Re: Daphne's web page is up :)
Reply #6 - May 7^th, 2005 at 11:24pm

What a great site!!.......loved hearing about your little miracle girl!.....her big blue eyes make me melt~ What a doll she is!

My prayers go out to your family......sounds like she is making great strides (at her own pace!!). Please keep updating your site, I will check often to see how all is going.

Happy Mother's Day~~
"Aunt" Lora Smiley

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kotipup Experienced Poster Offline My daughter, Daphne, has Moyamoya Posts: 247 Landenberg, USA, PA, Pennsylvania Gender:	Re: Daphne's web page is up :) Reply #7 - May 9^th, 2005 at 9:54am I just wanted to say thanks so much to everyone for visiting Daphne's web page, and for all the kind words! It really was therapeutic to go through the process of writing down her story, but it's also nice to share her story with others. Jenny
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