Click this link to read a post I like on the moyamoya.com message board...

Seachelles

Old-Time Poster

Offline

God never gives us more
than we can handle.

Posts: 681
Fredericksburg, USA, usa, 474, 157, VA, Virginia
Gender: female

Las Vegas MM Summer Get-Together
May 6^th, 2005 at 10:44am

Just wanted to make sure that everyone had the opportunity to plan and join us in Las Vegas for the August get-together we have planned. It's going to be a lot of fun and give others an opportunity to meet each other face-to-face. It could also give us a way to brainstorm on ideas of how we as a team and group can help spread the word about moyamoya and educate doctors about the disease.

Please check out the Daily Jibber Jabber board and the topic titled "Las Vegas MM Summer Get-Together" to gather more information about this fun event.

Back to top

« Last Edit: May 6^th, 2005 at 10:45am by Seachelles »

Michelle

IP Logged

Click Here to visit the Moyamoya.com Facebook page!

Rena Senior Poster Offline Hi, My son Tyler was diagnosed with MM in 2003 Posts: 467 , Colorado, USA Gender:	Re: Las Vegas MM Summer Get-Together Reply #1 - May 6^th, 2005 at 11:45am I am hoping I can make it with Tyler, even if I just take a road trip and spend the day. I would love to meet everyone. Rena
Back to top	I've learned to never underestimate the impossible. -Blake Sheldon-&&There are no failures, just options tried. -Thomas Edison-&& IP Logged

Annica

Experienced Poster

Offline

My daughter lives with
mm

Posts: 173
Stockholm, Sweden, europe, 317, 154
Gender: female

Re: Las Vegas MM Summer Get-Together
Reply #2 - May 7^th, 2005 at 3:37am

I don´t think Louise and I are going to make it this time but we really want to so we haven´t counted it out just yet. Louise doesn´t know that much English but I know kids are able to communicate in other ways and across languages. I´ll think about it jst a little bit longer before deciding. But I do count on lots and lots of pictures on the board so we´ll take part anyway even though the Atlantic and cross the USA maybe is to big of a travel for us to make! Wink

Annica

Back to top

IP Logged

twinsmom

Experienced Poster

Offline

16 year old twins with
MM

Posts: 128
hollis, USA, NH, New_Hampshire
Gender: female

Re: Las Vegas MM Summer Get-Together
Reply #3 - May 7^th, 2005 at 1:42pm

Wow!! The get together looks great!! Vegas is a long way from NH, but I'm going to try like heck to make it happen!!

Here's my question - since my girls' surgeries, I really don't travel without them - plus, the one thing I've really lacked here is local fellow MM survivors, so I'd really like the whole family to come!! So, is there a set schedule during the weekend - I'm just wondering if I need to make arrangements during any times that they couldn't participate in. (my kids are 10, 10 and will then be 9 - and let's just say, ACTIVE!! Roll Eyes

)

Are there any other families planning to come with children?

Thanks for all the hard work planning!! I really hope we'll be able to make it!!

Back to top

"Come to the edge." "We can't. We're afraid." "Come to the edge." "We can't. We will fall!" "Come to the edge." And they came. And he pushed them. And they flew. by Guillaume Apollinaire

IP Logged

Seachelles

Old-Time Poster

Offline

God never gives us more
than we can handle.

Posts: 681
Fredericksburg, USA, usa, 474, 157, VA, Virginia
Gender: female

Re: Las Vegas MM Summer Get-Together
Reply #4 - May 7^th, 2005 at 1:51pm

Twinsmom,

Your kids are more than welcome to come. We do not have any set activities as of yet, but we will certainly make sure to let you know when we do. I should come up with some things within the next month. We will definitely plan some activities for the children and adults, too.

I guess I'm really waiting to plan some activities once I know who is coming and the kind of activities everyone would like to do.

Please make sure you check out the Jibber Jabber board and the Las Vegas MM Summer Get-Together forum as that has all the information with some of the websites for some activities, shows, and adult entertainment on it. Let me know what you think and if there is anything that your kids would like to do and yourself.

Thanks,
Michelle

Back to top

Michelle

IP Logged

Kath41

Experienced Poster

Offline

SOOOO happy to have found
this website for support

Posts: 156
Kansas City, USA, usa, 297, 159, MO, Missouri
Gender: female

Re: Las Vegas MM Summer Get-Together
Reply #5 - May 7^th, 2005 at 5:22pm

Hi 'twinsmom'
I am hoping that my family will be able to make this trip and I have three girls 13, 12, and 10. I have to get my finances straight because I have to go back to Stanford in July so I am kinda waiting to see how my funds are before I can commit, but if I get to go our girls could hang out together if you don't mind? I thinking we will be hanging out at the pool mostly because I am not much of a gambler (I STINK!!) I will keep you up to date on how things are looking

Kathleen

Back to top

IP Logged

MJS452

Junior Poster

Offline

I love YaBB 1G - SP1!

Posts: 93
greenfield, USA, IN, Indiana
Gender: female

Re: Las Vegas MM Summer Get-Together
Reply #6 - May 7^th, 2005 at 10:32pm

I sure would like to make it ther too. But I am not sure if my financies would permit at this time. My husband probably couldn't come, but maybe I could get a girl friend to come with me! I won't be bringing any kids(that I know of so far), but I LOVE to be around kids! My grandkids are here now for the weekend. They are worried about me not wanting to do much and being somewhat depressed. But maybe my brother would come with me also! It would be a great thing for him. But that depends on his health and how it goes. I will figure it out and let you all know. But I will be driving, so will have to figure it out. I have never been in a big city, so it is kinda scary to even think about it! But my friend and my brother have, so they can help me. MJS

Back to top

Lost Sister w/Downs to MM,also have brother w/MM

IP Logged

Nancy_N.

Old-Time Poster

Offline

My daughter Mandy Has
Moyamoya

Posts: 664
Jasper, USA, usa, 436, 230, GA, Georgia
Gender: female

Re: Las Vegas MM Summer Get-Together
Reply #7 - May 8^th, 2005 at 10:20am

Unfortunatley I probably cannot make the trip, Mandy and I were dying for this to happen for months since you were talking about it back months ago. We are moving to Ga. the last week in July as school starts there Aug. 4th (EARLY). We will try but I think things will be so hectic and busy and my husband starting into a new buisness we will be busy and trying to get organized. We are so disappointed we can't go if there is anyway we can, we will make it....we have been known to do things last minute at the spur of the moment. Hope you all have fun, I know you will. Good Luck all you gamblers.
Nancy

Back to top

IP Logged

jenanshanesmom New Poster Offline MM survivor Posts: 19 Palm Springs, USA, usa, 55, 203, CA, California Gender:	Re: Las Vegas MM Summer Get-Together Reply #8 - May 8^th, 2005 at 12:00pm Count us in. I have two small (1 and 4) children going. If you need anything just tell me. I will be not teaching after late June so I will have some time. Paula
Back to top	IP Logged

Click Here to visit the Moyamoya.com Facebook page!

laura twin a New Poster Offline God grant me the serenity..... Posts: 21 Houston, USA, TX, Texas Gender:	Re: Las Vegas MM Summer Get-Together Reply #9 - May 8^th, 2005 at 7:45pm Hi! This really sounds great!! My 2nd surgery is tomorrow 5-9-05 but I should be OK by then. I'll talk to my sister (Lisa twin b) and we'll see if we can make it!! ;
Back to top	laura twin a IP Logged

jaredsis2 New Poster Offline Posts: 31 brooklyn, USA, usa, 488, 138, NY, New_York Gender:	Re: Las Vegas MM Summer Get-Together Reply #10 - May 8^th, 2005 at 11:12pm My mother, Jared and I are in the process of making arrangments to come for the weekend. Cant wait to see everyone!
Back to top	IP Logged

maka4868 New Poster Offline I am a survivor of Moyamoya Posts: 8 Kahului, USA, usa, 412, 359, HI, Hawaii Gender:	Re: Las Vegas MM Summer Get-Together Reply #11 - May 9^th, 2005 at 1:08am I am planning on coming with my sister. I hope it is alright even though we haven't been active within the message board. I just received an email about this event and thought it would be fun to meet people like me
Back to top	Aloha,&&Melly IP Logged

gotchlorine Old-Time Poster Offline Our daughter, Tara, lives with MM Posts: 776 San Jose, USA, usa, 24, 158, CA, California Gender:	Re: Las Vegas MM Summer Get-Together Reply #12 - May 9^th, 2005 at 1:39am Of course it's alright - the more the merrier! Hopefully DJ's email encourages people, whether or not they've been active on the board, to come. Looking forward to meeting you Melly. And, to everyone else who posted - I can't wait to meet you, too! Hugs from California, Jill
Back to top	IP Logged

twinsmom

Experienced Poster

Offline

16 year old twins with
MM

Posts: 128
hollis, USA, NH, New_Hampshire
Gender: female

Re: Las Vegas MM Summer Get-Together
Reply #13 - May 11^th, 2005 at 10:04pm

Hi, guys.

Well, I did the finances thing, and it doesn't look like we'll be able to make it after all. I'd love to go, I think it would really help my girls to meet others with MM - we live in a very small town in NH, and the only others we've met have been people at the hospital who've flown in from out of state. But, the trip down would cost way more than I thought.

Maybe the one year reunion of this shin dig could be on the east coast? Cheesy

I'll be thinking of you all, and we'll be with you in spirit!! Have a ball!!

Back to top

"Come to the edge." "We can't. We're afraid." "Come to the edge." "We can't. We will fall!" "Come to the edge." And they came. And he pushed them. And they flew. by Guillaume Apollinaire

IP Logged

Seachelles Old-Time Poster Offline God never gives us more than we can handle. Posts: 681 Fredericksburg, USA, usa, 474, 157, VA, Virginia Gender:	Re: Las Vegas MM Summer Get-Together Reply #14 - May 17^th, 2005 at 6:58am Bump
Back to top	Michelle IP Logged

hillary Senior Poster Offline My daughter Holly has MM Posts: 340 new braunfels, USA, usa, 279, 285, TX, Texas Gender:	Re: Las Vegas MM Summer Get-Together Reply #15 - May 17^th, 2005 at 9:21pm for everyones information. southwest.com has vacation deals. thats where i got my tickets and room booked Hillary
Back to top	IP Logged

Seachelles Old-Time Poster Offline God never gives us more than we can handle. Posts: 681 Fredericksburg, USA, usa, 474, 157, VA, Virginia Gender:	Re: Las Vegas MM Summer Get-Together Reply #16 - May 20^th, 2005 at 12:55pm Shari (STrantas) and I still need one roommate in Vegas for Thursday, August 11th through Monday, August 15th. If you are interested, please let us know. Thanks, Michelle
Back to top	Michelle IP Logged

Click Here to visit the Moyamoya.com Facebook page!

CarasMOM Old-Time Poster Offline My 11 year old Cara has MM. Posts: 525 Sedalia, Missouri Gender:	Re: Las Vegas MM Summer Get-Together Reply #17 - May 25^th, 2005 at 6:29pm Cara and I will (if all goes well)....be there....so looking forward to meet all that is going !!!!! hugs, CarasMOM
Back to top	Warm Hugs and Prayers, CarasMOM (Carol) IP Logged

gotchlorine Old-Time Poster Offline Our daughter, Tara, lives with MM Posts: 776 San Jose, USA, usa, 24, 158, CA, California Gender:	Re: Las Vegas MM Summer Get-Together Reply #18 - May 26^th, 2005 at 2:16am Yeeeeesssssssss! Carol, I'm so happy to hear you're thinking you'll make it to LV! I'll say many prayers that it works out for you to come. Absolutely can't wait to meet you and Cara! Big , Jill
Back to top	IP Logged

Seachelles Old-Time Poster Offline God never gives us more than we can handle. Posts: 681 Fredericksburg, USA, usa, 474, 157, VA, Virginia Gender:	Re: Las Vegas MM Summer Get-Together Reply #19 - Jun 10^th, 2005 at 2:27pm Bump!
Back to top	Michelle IP Logged

Seachelles Old-Time Poster Offline God never gives us more than we can handle. Posts: 681 Fredericksburg, USA, usa, 474, 157, VA, Virginia Gender:	Re: Las Vegas MM Summer Get-Together Reply #20 - Jun 20^th, 2005 at 11:31am Bump
Back to top	Michelle IP Logged

STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: Las Vegas MM Summer Get-Together Reply #21 - Jun 24^th, 2005 at 9:08am Bump
Back to top	A smile is contagious...start an epidemic! Dr. Scott did my surgeries - 12/29/03 and 1/5/04 IP Logged

Seachelles Old-Time Poster Offline God never gives us more than we can handle. Posts: 681 Fredericksburg, USA, usa, 474, 157, VA, Virginia Gender:	Re: Las Vegas MM Summer Get-Together Reply #22 - Jul 12^th, 2005 at 8:06pm Please note the updates made to the Las Vegas MM Summer Get-Together Forum under the Daily Jibber Jabber topic. Thanks, Michelle
Back to top	Michelle IP Logged

Jack New Poster Offline Posts: 25 Kneeland, USA, usa, 16, 108, CA, California Gender:	Re: Las Vegas MM Summer Get-Together Reply #23 - Jul 27^th, 2005 at 1:42am Bump for time left to join us
Back to top	IP Logged

Seachelles Old-Time Poster Offline God never gives us more than we can handle. Posts: 681 Fredericksburg, USA, usa, 474, 157, VA, Virginia Gender:	Re: Las Vegas MM Summer Get-Together Reply #24 - Jul 28^th, 2005 at 10:46am Please remember that if you are interested in joining us in Las Vegas to please check out the same subject line in the JIBBER JABBER FORUM for all the details and latest information. Michelle
Back to top	« Last Edit: Jul 28^th, 2005 at 10:47am by Seachelles » Michelle IP Logged

	Welcome, Guest. Please Login or Register
	NEW search box below... Search Moyamoya.com with Google!