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Really Scared!!!! (Read 2226 times)
kalise
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my son lives with moyamoya.

Posts: 36
westernaustralia, Australia, australia, 21, 203, WA, Western_Australia
Gender: female
Really Scared!!!!
May 9th, 2005 at 5:23am
 
Hi everyone, Im really struggling with things at the moment, so have come to the only place where there are other people who really understand.  As i said in my last post, Mitchell has been stuttering for the last 3 months after a knock on the head, which our neurologist assured me was nothing but a coincidence.  Mitchell's stuttering has got so bad now that he cant even say his sisters name (Shaye) and has resorted to pointing to things to try and tell me what he wants to say.  Also mid-way through a sentence, he will completely forget what he wanted to say.  I am not the only one who is worried, his teachers at school have expressed their serious concerns, as have just about every member of my family.  It is so distressing for me, but also for Mitchell, he has become so emotional, i can't begin to imagine how frustrated and confused he must be.  I rang our neuro today, who doesnt seem to worried about the stuttering, but says the memory loss is potentially serious, and will need to be looked into.  The earliest appointment he could give us was 2 weeks from today, so i guess its time to play the dreaded waiting game again.  Im not so sure anyone can offer advice, i just needed to let it all out, I am so scared and try so hard not to let my kids see that, but that's not always easy.  I hope everyone is well
Take care and best wishes always
Kalise
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Rena
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Hi, My son Tyler was diagnosed
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Re: Really Scared!!!!
Reply #1 - May 9th, 2005 at 8:36am
 
Kalise,
I'm sorry to hear about Mitchells problems. I will keep you both in my prayers.
Rena
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STrantas
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MoyaMoya Survivor Since
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Philadelphia, USA, usa, 490, 122, PA, Pennsylvania
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Re: Really Scared!!!!
Reply #2 - May 9th, 2005 at 8:59am
 
Kalise -

I am so sorry to hear about the struggles you and Mitchell continue to go through.  I wish I could offer you words of comfort and encouragement but I really don't know what to say except that you and Mitchell and your family will be in my thoughts and prayers.  Good luck!
Smiley[smiley=hug.gif]Smiley

-Shari
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A smile is contagious...start an epidemic!
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mg12061
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Albany, USA, usa, 492, 84, NY, New_York
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Re: Really Scared!!!!
Reply #3 - May 9th, 2005 at 9:35am
 
Kalise,I'm so sorry Mitchell is haveing such trouble right now. 2 weeks sure is a long time to wait  for an appointment when your so concerned about him.If anything gets any worse I wouldn't be afraid to go to the ER,.Just my opinion but it sure can get things moving quicker sometimes.I will keep your fmaily in my prayers. Please keep us posted.
Mary Grace
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