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Burr Holes (Read 1949 times)
dutchy
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I love YaBB 1G - SP1!

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Oud Gastel, Netherlands, europe, 216, 240
Gender: female
Burr Holes
May 9th, 2005 at 12:22pm
 
Smiley
anybody there who can tell us more abt
the burr holes operation.
i am female, 48 years old, 8 years ago diagnosed
with MM, used bloodthinners but now disease
is coming back via tia's/blockages.
Dutch hospital want to experiment with
burr holes. was not done before in Holland
with MM patients.
any info help available?
thks vm inadvance
brgds   Leo & Barbera Ploeg
email : Leo@yellowduck.nl
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kotipup
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My daughter, Daphne, has
Moyamoya

Posts: 247
Landenberg, USA, PA, Pennsylvania
Gender: female
Re: Burr Holes
Reply #1 - May 9th, 2005 at 8:42pm
 
Hi.... I've read a little about burr holes.   I am just curious, though, why burr holes?   I beleive the most effecive surgery would be a direct STA-MCA bypass.  Or, if not, an indirect bypass.   I am definitely no expert, but I remember - during my research for my daughter who has moyamoya - reading that multiple burr holes was really reserved, now, for those patients who did not have a suitable donor vessel to do either a direct or indirect bypass.  Also I've read about it being done alongside an indirect or direct bypass surgery.

I would be leery about anyone wanting to "experiment" with a surgery, unless they had very extensive experience and it was the only option available.

I don't know what your options are, but if you can afford to, you might consider going out of the country to have your surgery.   As you probably already know from this site, Dr. Steinberg, here in the US, has tons of experience.  I'm sure there are other doctors in many other countries (especially in the Asian region!) who have extensive experience, too.    Personally, though, I'd be afraid if a doctor started talking to me about experimental surgery where I would be the giunea pig.

Good luck... let me know if there's any way I can help (moyer305@comcast.net.

Jenny
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dutchy
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Oud Gastel, Netherlands, europe, 216, 240
Gender: female
Re: Burr Holes
Reply #2 - May 10th, 2005 at 11:58am
 
  Cheesy
dear Jenny
thks vm for yr reaction to which we agree.
thats also why we are seeking for more
info to make the right decision.
mwhile we have discussed the case
with Dr Steinberg of Stanford's who is
def willing to give his opinion abt this
case/patient. he confirmed that already
in a direct email to us.
we will therefore be talking to our present
specialist for organizing with his assist
a second opinion out of Stanford.
we also will check our health insurance
abt any special procedures.
this for yr help sofar. appreciated !
kind regards
from Leo & Barbera Ploeg
Leo@YellowDuck.nl
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